Senior Smarts:
THE IMPORTANCE OF ADVANCE CARE PLANNING
Plans to submit an article by August deadline were interrupted. I was told to go to the Emergency Room on August 12 because of symptoms and was hospitalized until August 15. I had to go to the Emergency Room again on August 30. Thus the title for this article.
Every year I assume the role of Advocate for National Healthcare Decisions Day (nhdd.org) regarding advance care planning.
To quote nhdd.org: “It always seems too early until it’s too late.”
When you are being put on a gurney or have to call for a taxi to drive you to the emergency room because your doctor tells you to “go to the emergency room,” it is not the time.
Emergency Contact
It is extremely important to have emergency contact information in your health records.
If your primary care physician is unable to contact you with an urgent message related to your care, the emergency contact will be contacted.
Likewise, this information is needed by your nurse when you are admitted to the unit.
Words of Wisdom
Fortunately, I had provided emergency contact information to my primary care physician.
I had recently arranged an advance care planning meeting with my representative. During the hospitalization, I was able to answer the doctor’s questions related to CPR, etc.
If at anytime during my hospitalization, I was unable to verbally answer questions I had a copy of my handwritten draft (what I refer to as a Memorandum of Understanding between me and my health care representative) of my customized Advance Health Care Directive with me.
I suggest updating information monthly for your emergency contact (health care agent).
Example: When recently thinking about the estate plan I had previously completed, and a query regarding current contact information for my designee, I learned that my designee as personal executor had been deceased for 10 years.
In addition to discussing and completing your Advance Directive, you need to have an emergency fund to cover: taxi fare, public transit, ambulance service (if necessary); copayment for: emergency room, hospitalization, primary care physician appointments, ancillary services (physical therapy, occupational therapy, speech therapy), prescriptions, durable medical equipment; groceries (dietary orders), meal delivery until you can go to the supermarket.
Preparing for hospitalization:
• Leave prescription medications at home. (Your nurse will give you your medications ordered during your stay.)
• Wear casual clothing that you do not care if they get lint from a blanket.
• Bring cell phone charger.
• Do not expect a private room (unless medically indicated). Your roommate will be determined by the next admission and available bed.
• Do not expect uninterrupted sleep. You will be monitored for vital signs, electrocardiogram, and blood draws for lab tests.
Aftercare Appointments:
• Arrive early to complete forms.
• Read all forms. Make necessary corrections.
• Know when the symptoms occurred.
• Know what medications you are taking.
• Know your medication allergies.
• Know your diagnosis.
CHOOSING A HEALTH CARE AGENT
When choosing your health care agent consider the following guidelines:
• Someone whom you have known for years.
• Someone who is amenable to assuming the responsibilities and duties expected.
• Interview the potential agent as you would an employee or contractor.
• What is the current condition of their life? (e.g., personal relationships, employment, financial). NB: Someone experiencing difficulties may not be the appropriate choice. • They will be distracted by events in their life.
• A willingness to schedule meetings to discuss the four parts of advance care planning: health care decisions, financial, obituary, funeral.
• Availability when needed (e.g., hospitalization and discharge conference with hospitalist).
• You work well as a team.
• Willing to accompany you on this chapter in life’s journey.
TERMINOLOGY
Care companion. Goes on the convalescence journey with you. Provides words of encouragement. Provides words of consolation.
Health care agent. A person you allow to make decisions for you in case you cannot make them yourself. [attorney-in-fact, health care proxy, representative, surrogate]1
Health care proxy. A document that names someone you trust as your proxy, or agent, to express your wishes and make health care decisions for you if you are unable to speak for yourself. [durable medical power of attorney, health care agent, health care surrogate.]2 NB: If you become incapacitated and have not appointed a proxy, state law determines who makes decisions on your behalf.3
Hospitalist.
1: Doctors who are specialists in the care of patients in the hospital.4
2: Physicians that organize the communication between different doctors caring for a patient, and serve as the point of contact for other doctors and nurses for questions, updates, and delineating a comprehensive plan of care.5
3: Main physician for family members to contact for updates on a loved one.6
4: COMMUNICATION between the primary care doctor and the hospitalist takes place at least twice during a hospitalization and again prior to discharge from the hospital.7
5: CARE may include: a) ordering and reviewing diagnostic tests in order to make a diagnosis; b) develop treatment plans; c) teach patients about their conditions; d) consult with other physicians in various specialties to determine the best care for their patients.8 6: ORDER medications, treatments and services (e.g., physical or respiratory therapy).9 7:
BOARD CERTIFICATION in hospital medicine is offered through the American Board of Physician Specialties after completion of a written exam.10
HISTORY: This movement was initiated about a decade ago and has evolved due to many factors: convenience, efficiency, financial strains on primary care doctors, patient safety, cost-effectiveness for hospitals, and need for more specialized and coordinated care for hospitalized patients.11
CONVALESCENCE
Convalescence. The period of recovery after a disease or an operation.12 Involves rest, diet, exercise.
Quiet rest periods are important. Rest. allows the body to do its job in recovering from the disease.
After a serious illness it takes time for the body to readjust to your previous routine or performing tasks (e.g., effect on extremities). To reduce the risk of recurrence gradually increase activity times (e.g., set 2-hour limit for completing any/all tasks each day). Ask and accept help. Delegate tasks.
DAILY JOURNAL
A summary of the day’s events, condition changes, appointments, thoughts, feeling, goals, daily activities, progress or setbacks, skin assessment. Can be private or shared with loved one(s) or care companion. Can be used to create a summary when preparing for an appointment with the primary care physician and specialists.
COMMUNICATION
While convalescing you can communicate with your loved one(s) by: telephone – discuss the best day and time to schedule a call, be punctual, be respectful of the other person’s time when it is time to conclude the call; text message – text at the same time when sending so that the recipient can be available to reply; Dub – A Google app for simple video calling. Works with iOS and Android devices.
HEALTHY EATING
Diet. A prescribed allowance of food adapted for a particular state of health or disease. It is also known as a strategy for eating or an eating plan; to drink or eat sparingly in accordance with prescribed rules.13
ACTIVITIES AND LIFESTYLE
Exercise. A physical or mental activity performed to maintain, restore or increase normal capacity. Physical exercise involves activities that maintain or increase muscle tone and strength, especially to improve physical fitness or to manage a handicap or disability.14
Daily physical activity for a minimum of 35 minutes will increase exercise capacity and the ability to use oxygen to derive energy for work, decrease myocardial demands for the same level of work, favorably alter lipid and carbohydrate metabolism, prevent cardiovascular disease and help to control body weight and composition.15
Mental exercise. Involves activities that maintain or increase cognitive facilities. Daily intellectual stimulation improves concentration, integration, and application of concepts and principles; enhances problem-solving abilities; promotes self-esteem; facilitates self-actualization; counteracts depression associated with social isolation and boredom; and enhances the quality of one’s life.16
Activity intolerance. Inadequate mental or physical energy to accomplish daily activities. Risk factors include debilitating physical conditions such as anemia, obesity, musculoskeletal disorders, neurological deficits (such as those following a stroke), severe heart disease, chronic pulmonary disease, metabolic disorders, and sedentary lifestyle.17
Activity intolerance (risk for). A state in which an individual is at risk of experiencing insufficient physiological or psychological energy to endure or complete required or desired daily activities.18
GRIEF
Depending on the diagnosis and prognosis, you may experience grief over the inability to maintain your previous lifestyle and the effects of the disease on your body (e.g., the ability to perform certain tasks).
ANGER
There may be a day when you feel grumpy and express: “this is becoming a hell I never asked for” when you drop objects or have to grasp an object several times before you are able to pick it up (e.g., safety pin) due to weakness of an upper extremity.
It is important to share your frustration and remember that the day before you were able to grasp and pick up objects and tomorrow will be different.
Discuss the incidents with your doctor. You may be referred for physical therapy or occupational therapy.
ACCEPTANCE
To progress during convalescence is acknowledging required lifestyle changes and your limitations. You are not the same person you were before becoming ill and the diagnosis.
RESOURCES
Form 3-1 Advance Healthcare Directive (Advance Directive Addendum). California Hospital Association. Download at https://www.calhospital.org/resource/advance-health-care-directive.
Sectarian Health Care Directive. My Healthcare Directive. Download at compassionandchoices.org/end-of-life-planning/plan/sectarian
-healthcare-directive/.
1www.webmd.com/healthy-aging/what-are-health-care-agents#1
2,3www.medicareinteractive.org/get-answers/planning-for-medicare-and-securing-quality-care/preparing-for-future-health-care-needs/health-care-proxies
4,5,6,7www.medicinenet.com/what_is_a_hospitalist/
8,9,10www.globalpremeds.com/blog/2014/10/10/what-is-a-hospitalist/
11www.medicinenet.com/what_is_a_hospitalist/views.htm
12,13,14,15,16,17,18Taber’s Cyclopedic Medical Dictionary
Future topic: Advance Care Planning – Preparing for the discussion. Meeting agenda.
Anise J. Matteson is a Certified Bereavement Facilitator, retired Registered Health Information Technician, and writer of reference books for seniors (Elder Diary: Starter Kit available at www.caringboomers.blogspot.com). She is convalescing after a sudden illness. (Information is educational only. For specific questions, contact your health care professionals and an attorney.)
November 2019
Medicare: The Robin Hood Syndrome
My articles are objective and apolitical, but Medicare is an important issue for seniors and other recipients as well as its role in the 2020 presidential election and candidates’ position statement.
To quote Kristin S. Held, M.D.: “No one in good conscience cast a vote for a candidate that is running on such incompetency. Anyone running on this bill has not read it or is a devout socialist intent on completing the fundamental transformation of the United States of America, destroying the U.S. economy and shredding our constitution once and for all.”
“If we are to secure our blessings of liberty, we must identify and vote against any candidate that supports this Medicare for All bill.”1
I equate Medicare for All to Robin Hood Syndrome. Dr. Held refers to MFA as a Utopian scheme that must be paid for.
Enrolling in Medicare is not optional. When you reach age 65 you receive a Medicare card. If you are receiving Social Security benefits you are automatically enrolled and the premium is deducted from benefits disbursement each month. You do not have the option of paying by check or automatic deduction from your checking account.
Insurance coverage for people under age 65 includes: COBRA (Consolidated Omnibus Budget Reconciliation Act); employee or union; TROCARE (for active-duty service member, active-duty family member, retired service members and their families); Health Insurance Marketplace; health savings accounts (HSAs).
Advocates are encouraging Medicare for All. It is not enough that San Francisco has Healthy San Francisco. Now San Francisco wants Medicare for All!
Remember the Affordable Care Act that was supposed to address health insurance coverage for all.
SENIORS UNITE. PROTECT MEDICARE.
Contact your district supervisor and share your stories and the importance of protecting Original Medicare.
San Francisco supervisors are supporting Medicare for All.
District 4 Supervisor Gordon Mar (“Affordable Housing Crisis,” Sunset Beacon, April 2019) said: “We joined SF Supervisor Sandra Lee Fewer for a rally and resolution in support of the Medicare for All Act, to say loudly and clearly that the City and County of San Francisco believes healthcare is a human right, not a privilege.”
Advocates encouraging an Improved Medicare for All: Barry Hermanson, Member of a statewide coalition formed to advocate for an Improved Medicare for All, HealthyCA.org; Gov. Gavin Newsom (Calif.); two San Francisco assemblymen; a Calif. senator;2 presidential candidates.
MEDICARE Medicare is federally financed. Established under the Social Security Act. Administered by the Health Care Financing Administration of the Health and Human Services Department. Medicare does not cover all expenses.5
The Parts of Medicare6 Part A (Hospital Insurance). Helps cover: inpatient care in hospitals; skilled nursing facility care; hospital care; home health care.
Part B (Medical Insurance). Helps cover: services from doctors and other health care providers; outpatient care; home health care; durable medical equipment (e.g., wheelchairs, walkers and hospital beds, and other equipment and supplies); many preventive services (e.g., screenings, shots, and yearly “Wellness” visits).
Part D (Prescription Drug Coverage). Helps cover: cost of prescription drugs. Part D plans are run by private insurance companies that follow rules set by Medicare.
Medicare also administers its own managed care plan.7
Eligibility Requirements8 Any citizen or long-term U.S. resident who is 65 or over and has worked long enough (or is the spouse of someone who has worked long enough) to qualify for Social Security retirement benefits.
People under 65 who are disabled and have been entitled to Social Security disability payments for 24 months or those of any age who require dialysis treatment or kidney transplants are entitled to Medicare hospital coverage. Wives, husbands and children of Medicare beneficiaries who require dialysis or kidney transplants.
People who have reached 65 but have not worked long enough to be eligible for Social Security benefits may purchase Medicare hospital coverage.
The State of Medicare3 Medicare will become insolvent in 2026. Its giant trust fund for inpatient care will not be able to fully cover projected medical bills starting at that point.
Medicare provides health insurance for about 60 million people, most of whom are age 65 or older.
To fully understand Medicare and the negative implications of Medicare for All, I respectfully recommend you request a copy of Medicare & You for information describing the Medicare program. Visit Medicare.gov, call (800) 633-4227 or write U.S. Department of Health and Human Services, Centers for Medicare & Medicaid Services, 7500 Security Blvd., Baltimore, MD 21244 to get the most current information.
The State of Social Security4 Social Security will become insolvent by 2034.
MEDICAID9
Medicaid is intended to provide basic medical and health services for low-income individuals and families.
It is authorized under the Social Security Act. Jointly funded by federal and state governments. States have the option of joining the program or refusing to participate.
The federal government establishes basic guidelines and requires that certain services be provided free of charge, but each state administers its own program.
Eligibility Requirements Categories of eligibility: 1) Categorically needy – includes individuals and families receiving some form of federally subsidized welfare payment. 2) Medically needy – individuals or families who are ineligible for welfare but lack the funds to pay for medical care.
*Medi-Cal in California. OVERVIEW: Medicare for All Act of 2019 – H.R.1384
Rep. Pramila Jayapal (D-Wash.) and over 100 cosponsors introduced the Act.10
OBJECTIVE: Improves and expands Medicare program, so that every person living in the United States is guaranteed access to healthcare with comprehensive benefits.11
SUMMARY12: Comprehensive Benefits and Freedom of Choice. 1) Comprehensive health care coverage including all primary care, hospital and outpatient services, dental, vision, audiology, women’s reproductive health services, maternity and newborn care, long-term services and supports, prescription drugs, mental health and substance abuse treatment, laboratory and diagnostic services, ambulatory services, and more. 3) Patients will have complete freedom to choose doctors, hospitals, and other providers they wish to see.
[REBUTTAL: #2 resembles the Affordable Care Act marketing.]
No Private Insurance Premiums, Co-Pays, or Deductibles. Enrollment would not require any private insurance premiums or deductibles. Upon receiving care patients would not be charged any co-pays or other out-of-pocket costs.
Long-Term Services and Supports for People with Disabilities and Older Americans. Recipients of all ages and disabilities will receive long-term services and supports through home and community based services unless the individual chooses otherwise.
Reducing Health Care Spending and Improving Care. Would: 1) simplify the healthcare system by moving to a single-payor model; 2) prevent healthcare corporations from overcharging for the costs of their services and profiting off illness and injury; 3) provide global budgets.
Reducing the Cost of Prescription Drugs. 1) Would allow Medicare to negotiate drug prices. 2) Authorizes Medicare to issue compulsory licenses to allow generic production if a pharmaceutical company refuses to negotiate a reasonable price.
[REBUTTAL: Medicare has Part D Copay Tiers. Tier 1 - Preferred Generic. Tier 2 - Generic. Tier 3 - Preferred Brand. Tier 4 - Non-Preferred Drug. Tier 5 - Specialty Tier. (Source: SCAN Classic (HMO) 2018 Medicare Advantage.) Or, Tier 1 - Generic. Tier 2 - Preferred. Tier 3 - Non-preferred. Tier 4 - Specialty. (Source: www.mymedicarematters.org/costs/part-d/)]
Transition. 1) One year after the date of enactment, persons over the age of 55 and under the age of 19 would be eligible. 2) Two years after the date of enactment all people living in the U.S. would be eligible.
Healthcare for Veterans and Native Americans. 1) Preserves the ability of veterans to receive their medical benefits and services through the Veterans Administration. 2) Native Americans to receive their medical benefits and services through the Indian Health Service.
[REBUTTAL: Veterans’ benefits: You may join a Medicare drug plan, but if you do, you can’t use both types of coverage for the same prescription at the same time. For more information visit va.gov, or call the VA at (800) 827-1000.13 Indian Health Services: If you’re getting care through an IHS or tribal health facility or program without being charged, you can continue to do so for some or all of your care. Getting Medicare doesn’t affect your ability to get services through IHS and tribal health facilities.14
ESTIMATED COSTS Costs to Federal Government15
Sen. Bernie Sanders (during 2016 Presidential campaign): About $14T over a decade.
Committee for Responsible Fiscal Budget: $28T through 2026.
Economist Kenneth Thorpe: $24.7T through 2026, excluding long-term care benefits (likely about $3T)
Urban Institute: $32T through 2026 including long-term care benefits.
Center for Health and Economy (American Action Forum): $36T through 2029.
Sen. Bernie Sanders proposed 2017 legislation…: $27.7T through 2028 assuming steep provider cuts and $32T assuming no provider cuts.
TAX INCREASES Debt impact would depend not only on the cost to the federal government but also on any funds the government might choose to raise through premiums, taxes or both.
NB: Enacting this type of Medicare for All would mean increasing federal spending by about 60% (excluding interest) and financing a $30T program would require the equivalent of tripling payroll taxes or more than doubling all other taxes.16
Commentary: There is not sufficient funding for this legislation.
Groups Backing the Legislation
Some of the many groups backing this “groundbreaking” legislation: Healthcare – Now, Labor Campaign for Single Payor, National Nurses United and Our “Revolution.17
COMMENTARY Freebies are called “charity.”
Individual(s) make a monetary donation which in turn enables the charitable organization or company to provide in-kind support and/or in-kind services.
Nothing in life is free! Even when it is stolen. The victim paid for the item(s) the thief takes.
RESOURCES Medicare: The Cost of Aging by Anise J. Matteson, Westside Observer, July 2018. http://westsideobserver.com/health.html#jul18.
…Series to be continued…
1. https://aapsonline.org/do-not-be-deceived-medicare-for-all-will-crash-the-system
2,10. San Francisco Bay View (March/April 2019)
3,4. www.latimes.com/nation/nationnow/la-na-pol-medicare-finances-20180605-story.html
5,8,9. READER’S DIGEST, You and Your Rights
6,13,14. Medicare and You 2019
7. Taber’s Cyclopedic Medical Dictionary
11,12. https://jaypal.house.gov/up-content/uploads/2019/02/Medicare-for-All-Act-of-2019_Summary-002.pdf
15,16. www.crfb.org/blogs/how-much-will-medicare-all-cost
17. www.healthcare-now.org/legislation/hr1384
Anise J. Matteson is a retired Registered Health Information Technician, and writer of reference books for seniors www.caringboomers.blogspot.com.) Information is educational only. For specific questions, contact Medicare, your physician or an attorney. matte59@lycos.
MAY 2019
National Healthcare Decisions Day
Advance Care Planning (Part 2)
By Anise J. Matteson, CBF
REMINDER: April 16 is a day to “inspire, educate and empower the public and providers about the importance of advance care planning.”
|
While health planning is no laughing matter, I wanted to share the cartoon above containing a discussion between an attorney and his client while reviewing a draft of Dilbert’s Health Care Directive |
This year marks the 12th Annual National Healthcare Decisions Day and the 6th Annual Healthcare Decisions Day in San Francisco, with Healthcare Decisions Week from April 9 through April 16. During the week, neighborhood branches of the San Francisco Public Library acknowledge advance care planning with books/materials display for Advance Directive, wills, trusts and estate planning, and a sign for April 16.
I would like to welcome the Main Branch as a participant. Regular participants are Bernal Heights, Chinatown/Lai, Excelsior, Glen Park, Merced, Mission, Mission Bay, Parkside, Visitation Valley, West Portal, Western Addition, and Library on Wheels/Senior Bookmobile.
National Healthcare Decisions Week April 16-22 has been discontinued. Per the Chair of National Healthcare Decisions Day Initiative: “we’re “officially” only honoring the NHD Day.” Regrettably, I did not have an opportunity to read the email in time for the March article.
I can understand why an estimated 37 percent of Americans have executed an advance directive and fewer than half of severely ill or terminally ill patients have an Advance Health Care Directive. Preparing for this article gives me an eerie feeling and sad—especially the form for Living Will/Advance Health Care Directive.
PLANNING FOR THE UNEXPECTED
- • Visit the library (Healthcare Decisions Week San Francisco: April 9 through 16).
- • Get your resources together (WSO: “Let’s Talk Boomer Legal and Advance Care Planning,” Mar. 2015, pp. 15 & 18); “Let’s Talk Boomer Legal and Advance Care Planning, National Healthcare Decisions Day,” April 2015, p.15); “National Healthcare Decisions Day,” RESOURCES, Mar. 2019, p. 13).
- • Think about your health care decisions.
- Discuss your wishes with your loved ones, primary care physician and/or attorney.
- • Name someone to speak for you when you cannot speak for yourself.
- • Complete your Advance Directive.
THE CONVERSATION1
You should talk about:
- • Your personal values and what makes living meaningful for you;
- • Your current medical condition and decisions you may foresee in the future;
- • Specific concerns or wishes you may have regarding life support or aggressive intervention, hospice or long-term care;
- • What concerns you most about death and dying; and
- • How you want to spend the last month of your life.
When possible, the discussion should include both your physician(s) and your health care agent…
Your loved ones should know in advance who is to speak for you in making medical decisions and where copies of your Advance Directive can be found.
Their “role” to make sure that your wishes are communicated and that those wishes guide their decision.
COMPLETING THE FORM2
- • Make sure the form has been properly signed, dated, and either notarized or witnessed by two qualified individuals.
- • Keep the original in a safe place where your loved ones can find it quickly.
- • Give copies to the people you have appointed as your agent and alternate agent(s), your doctor(s) and health plan, family member or anyone else who is likely to be called if there is a medical emergency.
- • Tell these people to present a copy of the form at the request of your health care providers or emergency medical personnel.
- • Take a copy of the form with you if you are going to be admitted to a hospital, nursing home or other health care facility. NOTE: Copies of the completed form can be relied upon by your agent and doctors as though they were the original.
- • Include the name, address, and telephone and fax numbers for each person or facility to whom you have given a copy of your Advance Directive.
- • Make a list of the people and institutions to whom you give a copy of the form, update contact information.
WALLET CARD
When you have completed your Advance Directive, you may indicate this with the wallet card that states you have advance directives.
Complete two cards: one for yourself; one for your spouse or emergency contact.
If you have recently experienced the loss of a loved one who did not have an Advance Directive, hopefully, this article will motivate you in making an informed decision about completing an Advance Directive.
For more information on this topic read “National Healthcare Decisions Day” (WSO, Mar. 2019—full article.)
TERMINOLOGY
Advance directive. A written document in the form of a living will or durable power of attorney prepared by a competent individual that specifies what, if any, extraordinary procedures, surgeries, medications, or treatments the patient desires in the future, when he or she can no longer make such decisions about medical treatment.3
PURPOSE: To identify clearly who has the authority to speak for you. EXPIRATION: Is valid forever unless you revoke it or state in the form a specific date on which you want it to expire.4
Do Not Attempt Resuscitation [DNAR]. An order somewhat more precise than “do not resuscitate” (DNR). DNR implies that, if a resuscitation attempt is made, the patient can be revived. DNAR indicates that resuscitation efforts should not be attempted regardless of their expected outcome.5
Do Not Resuscitate [DNR]. An order stating that a patient should not be revived. It may be written by a physician at the patient’s request. If the patient is not competent or is unable to make such a decision, the family, legal guardian, or health care proxy may request and give consent for such an order to be written on the patient’s chart and followed by the health care providers. The hospital or physician should have policies regarding time limits and reordering.6
Durable power of attorney for health care. An advance directive that designates another person to make health care decisions regarding how aggressive treatment should be if the patient becomes incompetent or unable to make decisions in the future, for example, in the case of a coma or a persistent vegetative state. The document also lists medical treatment that the person would not want to have. Durable power of attorney goes into effect when the document is signed. The Patient Self-Determination Act, enacted in 1991, mandates the responsibility of health care providers to develop written materials concerning advance directives. [health care proxy]7 NOTE: A DPAH executed before 1992 has expired and should be replaced.8
Health care proxy [health proxy]. A legal document that allows individuals to name someone they know and trust to make health care decisions for them if, for any reason and at any time, the individual becomes unable to make or communicate those decisions.9
AUTHORITY: Accept or refuse medical treatment; have access to your medical records; make decisions about donating your organs; authorize an autopsy; dispose of your body should you die.10 The California Medical Association (CMA) recommends that you name only one person as your health agent.11
Living will. An advance directive prepared when an individual is alive, competent, and able to make decisions, regarding that person’s specific instructions about end-of-life care. Living wills allow people to specify whether they want to be intubated, ventilated, treated with pressor drugs, shocked with electricity (to stop life-threatening heart rhythms) and feed or hydrated intravenously (if unable to take food or drink). Some also specify the person or persons who have power of attorney to make health care decisions on the patient’s behalf, if the patient is no longer competent to make choices for himself or herself.12 The Advance directive is now the legally recognized format for a living will in California. It replaces the Natural Death Declaration.13
LEGISLATION
Patient Self-Determination Act (PSDA). Passed by the U.S. Congress in 1990, it became effective on December 1, 1991. The purpose is to inform patient of their rights regarding decisions towards their own medical care, and ensure that these rights are communicated by the health care provider. Specifically, the rights ensured are those of the patient to dictate their future care (by means such as a living will or power of attorney should they become incapacitated). The PSDA requires information to be given to adult patients about their rights under state laws governing advance directives, including: 1) the right to participate in and direct their own healthcare decisions; 2) the right to accept or refuse medical or surgical treatment; 3) the right to prepare an advance directive; 4) information on provider’s policies that govern the utilization of these rights. The act also prohibits institutions from discriminating against a patient who does not have an advance directive. The PSDA requires institutions to document patient information and provide ongoing community education on advance directives.14
California law provides individuals the ability to ensure that their health care wishes are known and considered if they become unable to make these decisions themselves.15
The “End of Life Option Act,” ABX2-15, permits terminally ill adult patients with capacity to make medical decisions to be prescribed an aid-in-dying medication if certain conditions are met. On October 5, 2015, California became the fifth state to allow physicians to prescribe terminally ill patients medications to end their lives.16
Uniform Anatomical Gift Act.17 Passed in the U.S. in 1968, revised in 1987 and 2006. Sets a regulatory framework for the donation of organs, tissues, and other human body parts in the U.S. Helps regulate body donations to science, medicine and education. Has been consulted in discussion about abortion, fetal tissue, transplants, and Body Worlds, an anatomical exhibition.
Donor and Decedent:
Donor. An individual who agrees to donate his or her own body or who has the authority to donate the body of another person.
Decedent. The individual whose organs, tissues, or body are donated.
REGISTRIES
Advance Health Care Directive Registry. Maintained by the Secretary of State; as required by Probate Code Section 4800—it allows a person who has executed an advance health care directive to register information regarding the directive with the Secretary of State. This information is made available upon request to the registrant’s health provider, public guardian, or legal representative. A request for information must state the need for the information.18
Organ and Tissue Donation. To place your name on the Donate Life California Tissue Donor Registry, you may sign up to donate your organs and tissue for transplantation after your death when applying for or renewing your driver’s license/identification card.19
Donor Card
Donate Life California. The official state organ, eye and tissue donor registry. For more information about the donor registry, adding restrictions to your gift and the donation process, visit https://donatelifecalifornia.org or call (866) 797-2366.
Donor card. A document used by a person who wishes to make an anatomical gift, at the time of his or her death, of an organ or other body part needed for transplantation.20
MISCELLANEOUS
Medical Information Card
Call (800) 777-0133 to obtain a Medical Identification Card (DL390) to list your blood type, allergies, physician name, and other medical information. It can be carried with your driver’s license/identification card.21
1,2,4,8,10,11,13 www.stimmel-law.com/en/articles/durable-power-attorney-health-care-california-law-and-form
3,5,6,7,9,12,16,20 Taber’s Cyclopedic Medical Dictionary
14 http://definitions.uslegal.com/p/patient-self-determination-act-of-1990
15 www.cmanet.org/about/patient-resources/end-of-life-issues
17 https://embryo.asu.edu/pages/uniform-gift-act-1968
18 www.sos.ca.gov/registries/advance-health-care-directive-registry/
19,21 CALIFORNIA DRIVER HANDBOOK
Anise J. Matteson, CBF is an Advocate for National Healthcare Decisions Day, Certified Bereavement Facilitator, retired Registered Health Information Technician, and writer of reference books for seniors (Elder Diary: Starter Kit, visit www.caringboomers.blogspot.com.) Information is educational only. For specific questions, contact your physician and an attorney. matte59@lycos.com. ©2019.
April 2019
Advance Care Planning
By Anise J. Matteson, CBF
“It always seems too early, until it’s too late.”
“When good health fails” by Sally Stephens (San Francisco Examiner, November 19, 2017) helps to convey the purpose of National Healthcare Decisions Day: “Talking about a serious illness is difficult. But it’s better to have basic discussions about who can help, what they can do, what companies offer what services and how much they cost while you—or your elderly parents—are still feeling relatively good. Don’t wait until you desperately need help.
“Dealing with a serious illness is hard. But a little forethought and planning can go a long way to help you, your family and your friends cope. That way you’ll be more ready and prepared when you get one of those early morning jarring phone calls.”
PLANNING
It is time to start planning for National Healthcare Decisions Day (NHDD)—April 16.
In-kind support is needed for photocopies for Resources table and binder.
Why should you have written instruction for end-of-life care? Share your experience if you have recently experienced the loss of a loved one who did not have an Advance Directive. Respond by March 28.
Started by me in 2014 as Advocate for National Healthcare Decisions Day, this year marks the 6th Annual Healthcare Decisions Day San Francisco with Healthcare Decisions Week from April 9 through April 16.
HEALTH CARE DECISIONS DAY
National Healthcare Decisions Day
National Healthcare Decisions Day is designed to inspire, educate and empower the public and providers about the importance of advance care planning.
This year marks the 12th Annual National Healthcare Decisions Day. Beginning in 2018, nhdd.org extended the Day to April 16-22.
Neighborhood branches of the San Francisco Public Library now acknowledge National Healthcare Decisions Day from April 9 through April 22.
Healthcare Decisions Day San Francisco
During the weeks of April 9 through April 22, neighborhood branches of the San Francisco Public Library acknowledge advance care planning with books/materials for Advance Directive, wills, trusts and estate planning, and a sign for April 16. All branches are invited to participate. Contact your neighborhood branch to inquire if participating.
Facilitating “The Conversation”
To help facilitate “the conversation,” order a copy of my reference book for seniors, Elder Diary: Starter Kit, to help you organize your health information. Order at www.caringboomers.blogspot.com.
Elder Diary: Starter Kit
Anise J. Matteson
Elder Diary: Starter Kit
PREPUBLICATION EDITION
By Anise J. Matteson
An instructional guide designed to help non-medical persons better manage the care of their loved one. The kit contains a guide book with an Important Document Checklist; Self-Tests and a page that explains the form’s purpose and what information you will be asked to complete; examples of completed forms; sample forms for recording medical and other important information, and more. ©2007. MATTESON ELDER CARE SERVICES.
ADVANCE DIRECTIVE
An Advance Directive is a part of patient-centered care—a treatment plan specific to a patient’s needs. It provides instructions in your own words to family/caregivers, friends and health care professionals when there is a significant condition change.
You should have an Advance Directive to specify your decisions in the future regarding health care, end-of-life care, nutrition, hydration, hospice care, No Cardiopulmonary Resuscitation and organ donation when you become unable to express your wishes. (Examples with supporting documentation: do not hospitalize, autopsy request, feeding restrictions, other treatment restrictions.)
Medicare Coverage
Medicare covers voluntary advance care planning as part of the yearly “Wellness” visit. This planning for care you would want to get if you became unable to speak for yourself. You can talk about an advance directive with your health care professional, and he or she can help you fill out the forms, if you want to. An advance directive is an important legal document that records your wishes about medical treatment at a future time, if you are unable to make decisions about your care. You pay nothing if the doctor or other qualified health care provider accepts assignment.
NOTE: Medicare may also cover this service as part of your medical treatment. When advance care planning isn’t part of your yearly “Wellness” visit, the Part B deductible and coinsurance apply.
SOURCE – Section 3: Find Out if Medicare Covers Your Tests, Services or Item (Medicare & You 2018, p. 66.)
SECTARIAN HEALTH CARE DIRECTIVE
“An optional addendum to your advance directive. The language in this addendum clarifies that admission to a religiously-affiliated facility does not imply consent to particular care mandated by the institution’s religious policies and directs a transfer if the facility declines to follow the wishes outlined in an advance directive.” (CompassionAndChoices.org)
Medicare Coverage
Religious non-medical health care institution (inpatient care)
In these facilities, religious beliefs prohibit conventional and unconventional medical care. If you qualify for hospital or skilled nursing facility care, Medicare will only cover the inpatient, non-religious, non-medical items and services. Examples are room and board, or any items and services that don’t require a doctor’s order or prescription, like unmedicated wound dressings or use of a simple walker.
SOURCE: Section 3: Find Out if Medicare Covers Your Tests, Services or Item (Medicare & You 2018, p. 59.)
RESOURCES
A Letter to My Primary Health Care Provider Concerning Decisions to be Made at the End of My Life. www.compassionandchoices.org.
Advance Health Care Directive. (English/Spanish). California Medical Association. www.calhospital.org /resource/advance-health-care-directive.
Hospice by the Bay. Community services: include Advance Care Planning Seminars, Estate Planning Seminars, Community Grief Counseling and Support Groups: call (4415) 526-5699. www.hospice bythebay .org/index.php;/locations/san-francisco. (415) 626-5900
My Directive Regarding Healthcare Institutions Refusing to Honor My Healthcare Choices. [Sectarian Health Care Directive.] www.compassionandchoices.org.
My Life, My Choices™, Planning for Future Healthcare Decisions. Hospice of Marin Community Education Program. http://hospicebythebay.org/event/my-life-my-choices-planning-for-future-health-care-decisions/.
Physician Orders for Life Sustaining Treatment. Download “POLST FOR Patient and Loved Ones” at http://capolst.org.
Planning Ahead. SENIORS & THE LAW: A Guide for Maturing Californians. Section includes: What is a living will? Can I be barred from handling my affairs for any reason? What is a conservator? Do I need a will? How is the property in a will distributed? Does a will cover everything I own? What is a revocable living trust? Will my beneficiaries’ inheritance be taxed? Can I leave my savings in a bank account for later use? Download at http://www.calbar.ca.gov/portals/0/images/pamphlets/2015_Seniors062615-web.pdf.
The Good to Go Resource Guide. Compassion & Choices MAGAZINE, Special Resource Issue, 2012 Reprint. Chapters include: How to Make Your Health Care Decisions Known, Physician Orders for Life-Sustaining Treatment, Your Wishes, Glossary, The Conversation, and more. www.compassionand choices.org. (800) 247-7421.
DATES TO REMEMBER:
Healthcare Decisions Week San Francisco: April 9-16
National Healthcare Decisions Day: April 16
National Healthcare Decisions Week: April 16-22
Anise J. Matteson, CBF is an Advocate for National Healthcare Decisions Day, Certified Bereavement Facilitator, retired Registered Health Information Technician, and writer of reference books for seniors. Information is educational only. For specific questions, consult your physician and an attorney. matte59@lycos.com. ©2019.
March 2019
Smoking: Its Effects on the Body
by Anise J. Matteson
November 15 is Great American Smokeout Day!
Sitting digesting a delicious brunch of cinnamon bagel, open-face omelet with medium cheddar cheese, fresh peach cubes and a glass of orange juice, listening to classical music as I read the West Portal Monthly—Surfrider: 'Hold on to Your Butts,' Taraval cigarette filter recycling efforts helps reduce beach litter by Rae Doyle (Sept.) catches my attention. I am deciding on a topic for the Nov. article. Smoking seems like the choice after reading …" to make matters worse, they are also toxic. They trap nicotine, arsenic, formaldehyde and heavy metals like lead and cadmium and leach them into water and soil."
Rather than focusing on the effects of cigarette butts on the environment, I will focus on smoking and how it effects the human body.
Tobacco smoke is an environmental toxin to which San Francisco residents, tourists, and visitors are involuntarily subjected.
STATISTICS
More than 43 million people in the United States smoke cigarettes, about 1 in 5 adults.
Smoke particles are as small as 1/70,000 in. (0.00036 mm). As many as 25% of them may be trapped on the linings of the lungs and can also cause excessive scar tissue within the walls of the lungs. Probably help cause progressive destruction of the walls of the air sacs in the lungs of long-term smokers.
85% of cases of lung cancer are due to long-term tobacco smoking. About 10-15% of cases occur in people who have never smoked—caused by second-hand smoke. Worldwide in 2012, lung cancer occurred in 1.8 million people and resulted in 1.6 million deaths. Overall 17.4% of people in the U.S. diagnosed with lung cancer survive five years after the diagnosis.
An estimated 49,670 people will be diagnosed with oral cavity or oropharyngeal cancer in 2017, according to the American Cancer Society. And 9,700 of these cases will be fatal.
Cigarettes: The Cause of Fires
Smoking is considered the nation's leading preventable cause of death. Cigarettes are the leading cause of fatal fires, responsible for about a quarter of all U.S. fire deaths.
Cigarette fires cause close to 1,000 deaths and 3,000 injuries each year in the U.S., according to the National Fire Protection Association (NFPA). The igniting source in fires, cigarettes are responsible for over 20% of all fire deaths. Property loss: over half a million dollars. Economic costs, health care, productivity losses, and human cost of pain and suffering raise total costs to an estimated $4 billion.
Extent of Injuries and Fatalities in All Properties
|
|
Residential (1 & 2 Family)
|
Residential (Other)
|
Non-Residential
|
Fires
|
32%
|
15%
|
53%
|
Injuries
|
32%
|
35%
|
33%
|
Deaths
|
55%
|
30%
|
15%
|
Fires attributed to dropped cigarettes: one death to every four injuries. (e.g., Dropped cigarette burns through the cover of a seat cushion or mattress, starting a fire which may smolder for hours.
Vulnerable to smoking-fire deaths: elderly, or if elderly smoker uses alcohol or sedating drugs.
Hospital charges for cigarette fire admissions: Average over $100,000 per admission. (May 2000)
Treatment charges for initial hospital stay: At $100,000 per admission—estimated to exceed $65 million. (May 2000)
ETYMOLOGY
First-hand smoke. What is inhaled into the lungs.
Second-hand smoke. A mixture of exhaled smoke and other substances leaving the smoldering end of the cigarette that enters the atmosphere and can be inhaled by others.
Passive smoking. The inhalation of smoke from another's smoking. A cause of lung cancer in nonsmokers. Can be defined as someone living or working with a smoker. (Marijuana contains many of the same carcinogens as tobacco smoke.)Exposure of persons who do not smoke tobacco products to the toxic gases released by the burning of these products in their homes, workplaces, or recreational environment. Exposure to environmental tobacco smoke has been linked to allergies, asthma, cardiovascular diseases, lung diseases, and strokes, among other diseases and conditions.
Third-hand smoke. Residual nicotine and other chemicals left on indoor surfaces by tobacco smoke.
Exposure to chemicals: 1. By touching contaminated surfaces. 2. Breathing in the off-gassing from these surfaces.
Third-hand smoke clings to clothes, furniture, drapes, walls, bedding, carpets, dust, vehicles and other surfaces long after smoking has stopped. The residue builds up on surfaces over time and cannot be eliminated by airing out rooms, opening windows, using fans or air conditioners, or confining smoking to only certain areas of a home.
At-risk: Children and nonsmoking adults might be at risk of tobacco-related health problems when they inhale, swallow or touch substances containing third-hand smoke. Infants and young children might have increased exposure to third-hand smoke due to their tendency to mouth objects and touch affected surfaces.
Cigarette stench. Others can be exposed to the toxins that cause your hair and clothes to smell.
ADVERSE EFFECTS
The effects of smoking causes: Looseness of the under eye skin. Uneven skin tone. Sagging skin and wrinkles. Sagging arms and breasts. Lines and wrinkles around the lips. Age spots. Damaged gums and teeth. Stained nails and fingers. Hair loss. Cataracts. Psoriasis. Eye wrinkles (Crow's Feet). Brittle bones. Heart disease and ED. Reduced athletic ability. Reproductive issues. Early menopause. Oral cancer. Lung cancer. Cigarette stench.
THE PARTS OF A CIGARETTE
Filter. Cigarette filters, usually made of cellulose acetate, remove some of the tar and nicotine particles from cigarette smoke,23 helping block the largest tar particles, letting through smaller bits of tar that can travel deeper into your lungs.
Tipping paper. Traditionally, especially in the past, cigarettes were only produced with cork imitation tipping paper. Today—every kind of paper and color to personalize cigarettes as much as possible. "Light cigarettes" requires perforated tipping paper to lower nicotine and tar levels.
Cigarette paper. Is made from thin and lightweight "rag fibers" (non-wood plant fibers) such as flax, hemp, sisal, rice straw, and esparto. Available in rolls and rectangular sheets of varying sizes. Has a narrow strip of glue along one long edge.
Tobacco rod [filter rod]. Reduce the harshness of the smoke and keep tobacco flakes out of the smoker's mouth. Purpose: Filter rod is intended to reduce the amount of smoke, tar and fine particles inhaled during the combustion of a cigarette.27
TEMPERATURE
How hot is the smoke you inhale from a cigarette? Temperatures reach 900°C (1652°F) during a puff and fall to about 400°C (752°F) between puffs.
WHAT IS IN A CIGARETTE?
Cigarette smoke contains over 4,000 chemicals, including 60 known cancer-causing (carcinogenic) compounds and 400 other toxins. These cigarette ingredients include nicotine, tar, and carbon monoxide, as well as formaldehyde, ammonia, hydrogen cyanide, arsenic and DDT.
Cancer causing chemicals in tobacco smoke include: benzene, 2-naphthylamine, 4-aminobiphenol, chromium, cadmium, vinyl chloride, ethylene oxide, arsenic, beryllium, nickel, polonium-210.
As a cigarette is smoked, the amount of tar inhaled into the lungs increases, and the last puff contains more than twice as much tar as the first puff.
Carbon monoxide makes it harder for red blood cells to carry oxygen throughout the body.
Most of the chemicals inhaled in cigarette smoke stay in the lungs. The more you inhale the greater the damage to your lungs.
HEALTH RISK - PERCENTAGE OF TOXINS
ARSENIC [SYMB: As]. A poisonous, grayish-white metallic element. A common environmental toxicant. Toxic if ingested or inhaled in sufficient quantity. Forms: Organic arsenic: is formed when arsenic combines with carbon and hydrogen. Inorganic arsenic: Occurs when arsenic combines with elements such as oxygen, chlorine, and sulfur. Cause Cancer: The International Agency for Research on Cancer has classified arsenic as being carcinogenic (Group 1 classification in humans.). Inorganic arsenic has been linked to lung cancer.
Source of Arsenic Exposure: Cigarette Smoke
Arsenic-containing pesticides used in tobacco farming remain in tobacco through processing into cigarettes and is present in small quantities in cigarette smoke.
Inorganic arsenic is present in mainstream tobacco smoke and presumably in side stream smoke as well.
Indoor concentration of inorganic arsenic can be much higher than outdoors and is a constituent of third-hand smoke.
Arsenic, along with a host of other toxic chemicals in cigarette smoke exposes smokers (and nonsmokers) who breathe in the second-hand smoke produced by a burning cigarette to cancer-causing agents and poisons.
To date, researchers have identified more than 7,000 chemicals including 250 poisonous and 70 carcinogenic compounds in cigarette smoke.
Toxins: According to a report from the California Air Resources Board and the Department of Health Services, smokers breathe in approximately 0.8-2.4 mcg of inorganic arsenic per pack of 20 cigarettes, with approximately 40% of it being deposited in the respiratory tract. Of that amount 75-80% is absorbed by alveoli in the lungs, making the overall absorption of inhaled arsenic in cigarette smoke approximately 30-35%.
CADMIUM [SYMB: Cd]. A soft bluish-white metal present in zinc ores.Its salts are poisonous. Inhalation of cadmium fumes causes pulmonary edema, followed by proliferative interstitial pneumonia, and is associated with various degrees of lung damage. Cadmium is present in high levels in cigarette smoke. It damages lung tissue and can build up over time to cause kidney, liver, bone and blood damage.
Toxins: A single cigarette typically contains 1-2 mcg of cadmium. When burned, cadmium present at a level of 1,000-3,000 ppb in the smoke. Approximately 40-60% of the cadmium inhaled from cigarette smoke is able to pass through the lungs into the body. Smokers typically have twice as much cadmium in their bodies as nonsmokers. FORMALDEHYDE A gaseous compound, used in the preparation of toxoids from toxins.40
Toxins: In the main stream of smoke of various kinds of cigarettes the amount of formaldehyde vary between 3.4 mcg to 8.8 mcg/cigarette. The irritating effects of tobacco smoke to the mucous membrane are the result of the sum of irritating effects caused by several compounds and particles in the smoke and not only the impact of formaldehyde.
LEAD [SYMB: Pb]. A metallic element whose compounds are poisonous. Accumulation and toxicity occur if more than 0.5mg/day is absorbed.
Toxins: The quality of lead (Pb) inhaled of smoking one packet of 20 cigarettes is estimated to be 0.97-2.64µg. [The concentration of Pb in cigarettes were significantly different between cigarette brands tested.]
Editor's Note: This is part one of the author's extensive report on the dangers of smoking . It is available in full on the Westside Observer website: www.westsideobserver.com/health.html
NICOTINE A poisonous and highly addictive alkaloid found in all parts of the tobacco plant, but especially in the leaves. Cigarettes contain varying amounts. During cigarette smoking, the blood nitrogen level rises 10 to 15 sec after each puff. Average daily intake: Varies with the number and type of tobacco products used, the depth of inhalation during smoking, and any exposure to second-hand smoke. Many smokers experience withdrawal symptoms when their daily nicotine exposure falls below 5 mg/day. Nicotine in the blood acts to make the smoker feel calm.
Toxins: Domestic cigarette: 6.17-12.65 mg (1.23 ± 0.15 percent of tobacco weight in each cigarette). Imported cigarette: 7.17-28.86 mg (1.80 ± 0.25 percent of tobacco weight in each cigarette).46
Nicotine withdrawal. A group of symptoms that occur in the first few weeks upon the abrupt discontinuation or decrease in intake of nicotine. Symptoms include intense cravings for nicotine, anger/irritability, anxiety, depression, impatience, trouble sleeping, restlessness, hunger or weight gain, and difficulty concentrating.
Nicotinism. A pathological condition caused by excessive use of tobacco, and characterized by depression of the central autonomic nervous system. [nicotine poisoning]
Nicotine poisoning.The symptoms of the toxic effects of nicotine following ingestion, inhalation, or skin contact. Poisoning typically appear to be in the form of Green Tobacco Sickness* or due to unintended ingestion of tobacco or tobacco products or consumption of nicotine-containing plants.
Estimated lower limits of a lethal dose of nicotine poisoning has been reported as between 500 mg and 1000 mg.
NB: Children may become ill following ingestion of one cigarette, ingestion of more than this may cause a child to become severely ill.
*Green Tobacco Sickness (GTS). A type of nicotine poisoning caused by contact with wet tobacco leaves.
TAR Contains small quantities of carcinogenic (cancer producing) substances. The common name for the resinous, partially combusted particulate matter produced by the burning of tobacco and other plant material in the act of smoking.
TOBACCO A plant whose leaves are used chiefly in making cigarettes and cigars. Contains a small amount of nicotine, a substance that acts as a stimulant on the heart and other organs.
Tobacco smoke contains a number of toxicologically significant chemicals and groups of chemicals, including polycyclic aromatic hydrocarbons (benzoprene), tobacco-specific nitrosamines (NNK, NNN), aldehydes (acrolein, formaldehyde), carbon monoxide, hydrogen cyanide, nitrogen oxides, benzene, toluene, phenols.
Tumorigenic agents in tobacco and tobacco smoke are: Polycyclic aromatic hydrocarbons; aromatic amines; aldehydes; miscellaneous organic compounds; inorganic compounds.
Pesticides. Tobacco growers apply huge amounts of fertilizer, herbicides and pesticides to their crops during a three-month growing period. Among the pesticides that are commonly used on tobacco are the highly toxic aldicarb and chlorpyrifos.
LUNG CANCER [lung carcinoma]. The deadliest form of cancer. Includes four cell types: squamous cell carcinoma, adenocarcinoma, large cell cancer, and small cell cancer. Cause: carcinogens in tobacco smoke. Survival: Prognosis is five years. Most cases are not curable.
ORAL CANCER Oral cancer can form in any part of the mouth. Most oral cancers begin in the flat cells that cover the surfaces of your mouth, tongue, and lips. Oral cancer is divided into two categories – those occurring in the oral cavity (your lips, the inside of your lips and cheeks, teeth, gums, the front two-thirds of your tongue and the floor and roof of your mouth) and those occurring in the oropharynx (middle region of the throat, including the tonsils and base of the tongue).
NICOTINE REPLACEMENT THERAPY
(NRT). A treatment to help people stop smoking. Use: Products that supply low doses of nicotine. Goal: To cut down on cravings for nicotine and ease the symptoms of nicotine withdrawal.
Nicotine supplements come in many forms: Gum, inhalers, lozenges, nasal spray, and skin patch.
Nicotine gum. A type of chewing gum that delivers nicotine to the body. The nicotine is delivered to the bloodstream via absorption by the tissues of the mouth.
Nicotine patch. A transdermal patch that releases nicotine into the body through the skin. Available: With and without a prescription.
Prescription pills. Medications that can reduce the craving for cigarettes and reduce withdrawal symptoms.
SMOKING AND TOBACCO-USE CESSATION (MEDICARE)
Counseling to stop smoking or using tobacco products:
Medicare covers up to 8 face-to-face visits in a 12-month period. All people with Medicare who use tobacco are covered. You pay nothing for the counseling sessions if the doctor or other qualified health care provider accepts assignment.
SMOKING CESSATION (EVENTS)
Great American Smokeout. An annual event sponsored by the American Cancer Society (ACS). Held on the third Thursday in November. Focus: Encouraging Americans to quit tobacco smoking. Challenge: Stop smoking for at least 24 hours assuming that the decision not to smoke will last longer.66
LAWS/FINES
LITTER
Litter. The discarding, dropping, or scattering of small quantities of waste matter ordinarily carried on or about the person, including, but not limited to beverage containers and closures, packaging, wrappers, wastepaper, newspapers, and magazines, in a place other than a place or container for the proper disposal thereof, and including waste matter that escapes or is allowed to escape from a container, receptacle, or package. (Penal Code Sec. 374.4(c))67
Mandatory Fines
1st conviction: $250-$1,000. 2nd conviction: $500-$1,000. 3rd or subsequent conviction: $750-$3,000. (Penal Code Sec. 374.4(d))68
PROTECTION FROM SECOND-HAND SMOKE
Smoke-free Entrances
SF Health Code Article 19F, Sec. 1009.22: Smoking permitted only at the curb of commercial, multi-unit residential and mixed unit building entrances, exits, operable windows and vents. If there is no curb, no smoking within 15 feet of entrances, exits, operable windows and vents.69
California Government Code Sec. 7596-7598: Prohibits smoking within 20 feet of main entrances, exits and operable windows of city, county and state buildings.70
Smoke-free Public Transit Vehicles, Stations, and Stops
CA Health and Safety Code, Sec. 118925-118945 and SF Health Code Article 19F, Sec. 1009.22: Bans smoking on public transit vehicles or at public transit stops.71
Smoke-free Cars
CA Health and Safety Code, Sec. 11894(c): Unlawful for a person to smoke a pipe, cigar or cigarette in a motor vehicle, whether moving or parked, in which any one of the occupants is a minor. Fine: Up to $100 for each violation.72
Throwing Substances
CA Vehicle Code, Sec. 23111: No person in any vehicle and no pedestrian shall throw or discharge from or upon any road or highway or adjoining area, public or private, any lighted or nonlighted cigarette, cigar, match, or any flaming or glowing substance.73 Punishment: 1. Fine: $100. 2. Eight hours of community service picking up litter or cleaning graffiti. 3. Mandatory court appearance in front of a judge. Failure to appear—heavier fines and license suspension.74
COMMENTARY
In my opinion, should you decide to quit smoking, you should consult your primary care physician to discuss what to expect when you abruptly discontinue or decrease intake of nicotine (nicotine withdrawal).
After reading this article, you should be convinced to stop smoking. If not, do a Google search for images of "smoking and cancer". Warning! You may need an emesis basin. The photos are graphic.
Proposal for addressing the problem with smoking and cigarette butt littering:
Combatting litter: 1. Impose fine ($250) for leaving cigarette butts or partially smoked cigarette on the street. 2. Eight hours of community service picking up cigarette butts.
Public education: Mandatory listing of the contents per cigarette on the pack to encourage smokers to quit.
Helpline: A local (3-1-1) 24-hour quit smoking helpline.
Smokeout Day: Media publicity for American Smokeout Day every November.
Ashtray: Mandatory that all smokers MUST carry portable ashtray.
Enforce No Smoking laws.
RESOURCES
"Smoking Can Lead to Vision Loss or Blindness." A two-page PDF available at www.healthy.ny.gov/prevention/tobacco_control/smoking_can_lead_to_vision_loss_or_blindness.htm.
25 Effects of Smoking on Your Looks and Life. Quit smoking tips slideshow. View at www.rxlist.com/quit_smoking_tips_slideshow/article.htm.
American Cancer Society. www.cancer.org. (415) 495-1879. Programs include: Cancer information, Online communities and support, Cancer survivor network, MyLifeLine, Springboard Beyond Cancer, Belong – Beating Cancer Together. Cancer Helpline: (800) 227-2345.
California Smokers' Helpline. (800) 667-8887. A FREE telephone service to help you quit smoking.
Cancer Information Service. www.cancer.gov. (800) 422-6237. A program of the National Institutes of Health (NIH) through the National Cancer Institute. Provides personalized confidential responses to specific questions about cancer. Provides help to quit smoking. CIS Information Specialists are also available through instant messaging.
National Cancer Institute. www.cancer.gov. (800) 422-6237. A cancer education program. Information specialists provide personalized responses to a range of cancer questions, including: cancer research and clinical trials; how to find cancer treatment centers; cancer prevention; risk factors; symptoms; early detection; diagnosis and treatment; living with cancer; tissue donation; quit smoking. Questions: Call, live chat or e-mail.
Northern California Intergroup of Nicotine Anonymous. www.nica-norcal.org. 12-step self-help program. Bay Area Contact: (415) 995-1938.
100 Diamond St. (on 18th St.). Wed. 6pm. Contact: (415) 317-7208.
San Francisco Tobacco Free Project: Zuckerberg San Francisco General Hospital. Program consists of a series of classes aimed at assisting those that wish to quit smoking achieve goal. Classes provide: counseling and support, information on different methods for quitting, and assistance in navigating the insurance process for obtaining nicotine replacement and medication. Enroll at (628) 206-6074.
San Francisco VA Medical Center. Smoking Cessation Group, a drop-in group, meets Thur. 11:15am-12noon in Bldg. 1, 1st Fl., Room 14. Participation is voluntary and involves behavioral counseling, nicotine replacement therapy, other smoking cessation medications, and group intervention sessions. For more information: (415) 221-4810, ext. 2-4922. Currently seeking veterans to participate in a Stay Quit Smoking App Study. (The study is for Veterans age 18-69 who have had symptoms of PTSD, who want to quit smoking, and who have a smartphone.). For more information: (415) 221-4810, ext. 2-3097 or 4-4926. www.sanfrancisco.va.gov/services/smoking.asp.
SF Quits. www.SFQuits.org. (628) 206-6074. Information on: California Smokers' Helpline; To Be Tobacco Free Support Group at SFGH; Free Smoking Cessation Groups; Free Phone and Online Programs: Stop Smoking Counseling at San Francisco Health Network Health Centers for one-on-one support from Primary Care Behavioral Health program staff (Must be registered as a patient.); Non-Profit Organization and Other Hospital Programs (Some are fee for service); Alternative Programs (Most programs are fee for service.)
SFDPH Tobacco Free Project Stop Smoking Program at ZSFG and 25 Van Ness. 2250 23rd St. Zuckerberg San Francisco General. Weekly group cessation classes. (628) 206-6074. SFQuits.org.
The Dry Dock. 2118 Greenwich St. Sat. 10am. Contact: (415) 308-1886.
REMINDER: MEDICARE OPEN ENROLLMENT ENDS DECEMBER 7
HAPPY THANKSGIVING!
Anise J. Matteson is a retired Registered Health Information Technician and writer of reference books for seniors. Information is educational only. For medical questions and advice, contact your physician and/or health care professionals.
November 2018
The Reality of Stress
by Anise J. Matteson
There is an old saying: “What doesn’t kill you makes you stronger.” Not true! Stress can lead to high blood pressure, heart attack or stroke and other conditions (migraines, hay fever, asthma, uticaria, mild forms of dermatitis, peptic ulcer of stomach and duodenum, ulcerative colitis, mucous colitis, dysmenorrhea).
Analogy
Think of stress as a paper bag and your problems as the items. The bag is filled with items beyond its capacity and the bottom bursts or the sides tear.
The body has a tolerance threshold. When it is exceeded it sends warnings. If the warnings are not heeded medical issues arise.
“Stressed-out” is not a term meant to be used casually in conversation. When used, it should be clarified:
1. Are you taking on too many projects [saying yes when you should say no] because you want to be helpful? Or,
2. Are you worrying about money-related issues?
Expressions most frequently used in conversation are:
In over your head. Biting off more than you can chew. I’ve got my hands full. He’s got a lot on his plate. Trials and tribulations. Burden. Burdened down. Put-upon. Stressed-out. I feel like I’m losing my mind.
STRESS
Stress. (1). Is a mental or emotional strain or tension resulting from difficult or challenging situations.2 2. Is wear and tear on the body in response to stressful agents (stressors). Could be physical, physiological, psychological, or sociocultural.3 3. Can cause a number of physical health problems.4 4. Is your body’s natural reaction to any kind of demand that disrupts life as usual. GOOD STRESS: When it helps you conquer a fear or gives extra endurance and motivation to get something done. BAD STRESS: Caused by worries such as money, jobs, relationships, or health, whether sudden and short or long-lasting.5 5. Body’s way of responding to any kind of demand or threat. Stress response: The body’s way of protecting you.6
NOTE: Prolonged stress can cause imbalances in the brain and lead to anxiety and even more stress.7
Stress Symptoms
Stress symptoms can affect your body, your thoughts and feelings, and your behavior.8
Stress seems to worsen or increase the risk of conditions like obesity, heart disease, Alzheimer’s disease, diabetes, depression, gastrointestinal problems, and asthma.9
The workplace is the number one cause of life stress.10
NB: Ongoing chronic stress, however, can cause or exacerbate many serious health problems, including: Mental health problems such as depression, anxiety and personality disorders. Cardiovascular disease, including heart disease, high blood pressure, abnormal heart rhythm, heart attacks, and stroke.11
Common effects of stress on your body
Common effects of stress on your body are: headache, muscle tension, chest pain, fatigue, change in sex drive, stomach upset, and sleep problems.12
Common effects of stress on your mood
Common effects of stress on your mood are: anxiety, restlessness, lack of motivation or focus, feeling overwhelmed, irritability or anger, and sadness or depression.13
Common effects of stress on your behavior
Common effects of stress on your behavior are: overeating or undereating, angry outbursts, drug or alcohol abuse, tobacco use, social withdrawal, and exercising less often.14
Stress and high blood pressure15
Hypertension is one of the major risk factors for coronary artery disease, congestive heart failure, stroke, peripheral vascular disease, kidney failure and retinopathy.
Stage 1: BP readings between 140/90 and 160/100 mm Hg.
Stage 2: BP from 160/100 to 179/109 mm Hg.
Stage 3: BP 180/110 mm Hg and has no upper limit.
Normal: BP 100-120 MM Hg (systolic). Below 80 mm Hg (diastolic).
Prehypertension: 120-140 mm Hg (systolic). Between 80 and 90 mm Hg (diastolic).
Hypertensive crisis: BP 180/120 mm Hg. (Requires urgent treatment even if there are no accompanying symptoms.)16
Stress and Hair Loss17
Three types of hair loss that can be associated with high stress levels are:
Telogen effluvium. Significant stress pushes large numbers of hair follicles into a resting phase. Within a few months, affected hairs might fall out suddenly when simply combing or washing your hair.
Trichotillomania. Is an irresistible urge to pull out hair from your scalp, eyebrows or other areas of your body. Hair pulling can be a way of dealing with negative or uncomfortable feelings, such as stress, tension, loneliness, boredom or frustration.
Alopecia areata. A variety of factors are thought to cause alopecia areata possibly including severe stress. With alopecia areata, the body’s immune system attacks the hair follicles — causing hair loss.
Warning Signs of Stress18
Headache, muscle tension, neck or back pain. Upset stomach. Dry mouth. Chest pain, rapid heartbeat. Difficulty falling or staying asleep. Fatigue. Loss of appetite or overeating “comfort foods.” Increased frequency of colds. Lack of concentration or focus. Memory problems or forgetfulness. Jitters. Irritability. Short temper. Anxiety
NB: The warning signs of stress are not anything to take lightly or ignore.
STRESS MANAGEMENT STRATEGIES19Take care of yourself. (Remember you are the #1 priority).Take rest breaks: enjoy a cup of herbal tea, tea, coffee (your favorite beverage); enjoy the outdoors with your favorite beverage, a good book, and a lawn chair. Listen to music. Outside interests: get a hobby; read--visit a bookstore or the neighborhood public library. Become informed: ask questions. Communicate at your convenience: telephone, visit or write a letter. Accept phone calls and visits during prearranged times. Take a respite. Attend a support group. Ask for help. Delegate. Accept help. Write a TO DO List each day. Write a diary. Organize important information for easy access. Problem-solve: identify problem(s) and have an approach ready to use as needed. Postpone making major decisions in your life.
If you are a caregiver, can you recognize the signs of caregiver stress?*
Anger; Denial; Insomnia; Health Problems; Depression; Withdrawal; Exhaustion; Loss of concentration; Irritability.
*Senior World Online – Northern California Article. Ten Signs of Caregiver Stress.
WHEN TO SEEK HELP20
If you are not sure if stress is the cause or if you have taken steps to control your stress but your symptoms continue, see your doctor.
NB: If you have chest pain, especially if it occurs during physical activity or is accompanied by shortness of breath, sweating, dizziness, nausea, or pain radiating into your shoulder and arm, get emergency help immediately.
STRESS VS. ANXIETY
Anxiety.21 1. A sustained mental health disorder that can be triggered by stress. 2. Doesn’t fade into the distance once the threat is mediated. 3. Hangs around for the long haul. <chronic illness> 4. Can cause significant impairment in social, occupational, and other important areas of functioning. 5. A normal reaction to danger, the body’s automatic fight-or-flight response that is triggered when you feel threatened, under pressure, or are facing a stressful situation.22
Symptoms that can appear interchangeable:23
Sleepless nights, Exhaustion, Excessive worry, Lack of focus, Irritability, Rapid heart rate, Muscle tension, Headaches.
Symptoms of Stress (Common)24
Frequent headaches, Sleep disturbance, Back and/or neck pain, Feeling light-headed, faint, or dizzy, Sweaty palms or feet, Difficulty swallowing, Frequent illness, Irritability, Gastrointestinal problems, Excessive worry, Rapid heart rate, Muscle tension, Feeling overwhelmed, Having difficulty quieting the mind, Poor concentration, Forgetfulness, Low energy, Loss of sexual desire.
NOTE: Symptoms of stress can vary and change over time.
ANXIETY DISORDER
Anxiety disorder. Illicit an intense fear or anxiety out of proportion to the situation at hand. NOTE: Anxiety disorders are among the most common mental health issues—and are highly treatable.25
Signs and symptoms of anxiety disorders26 Primary symptom:
Excessive and irrational fear and worry, Common emotional symptoms:, Feeling of apprehension or dread, Watching for signs of danger, Anticipating the worst, Trouble concentrating, Feeling tense and jumpy, Irritability, Feeling your mind’s gone blank, Physical symptoms:, Pounding heart, Sweating, Headaches, Stomach upset, Dizziness, Frequent urination or diarrhea, Shortness of breath, Muscle tension or twitches, Shaking or trembling, Insomnia
STATISTICS
According to the American Psychological Association, chronic stress is linked to the six leading causes of death: heart disease, cancer, lung ailments, accidents, cirrhosis of the liver and suicide. And more than 75 percent of all physician office visits are for stress-related ailments and complaints.27
110 million people die every year as a direct result of stress. That is 7 people every 2 seconds.28
Anxiety is the most common mental illness in the U.S. impacting 18% of Americans.29
Stress Factors30
In the American Psychological Association 2017 survey on Stress in America, the stress factors increasingly affecting Americans’ well-being are: lying awake in the past month (45%); experienced one symptom of stress in the past month (75%). Of the symptoms reported: feeling nervous or anxious (36%); irritability or anger (35%); fatigue due to their stress (34%).
Health-related stressors
Cost of health insurance (66%)
Health care policy changes and having good health insurance (60%)
Stressors related to money
Worry about unexpected expenses (34%)
Thinking about saving for retirement (30%)
The ability to pay for life’s essentials (25%)
Stressors in the economy
Tax increases (33%)
Uncertain about the economy in general (30%)
Feeling unable to get ahead financially (26%)
Methods for Coping with Stress
Exercise or physical activity (53%)
Yoga or meditation (12%)
Emotional support (74%)
Psychologists (42%)
Pray (29%)
Listen to music (47%)
SUICIDE31
More women attempt suicide.
More men complete suicide.
Elderly and ages 15-24 are highest rates.
Eighth leading cause of death in the U.S.
COMMENTARY
Socioeconomic status (SES) is an important predicator of a range of health and illness outcomes. Lower SES is reliably associated with a number of important social and environmental conditions that contribute to chronic stress burden, including crowding, crime, noise, pollution, discrimination, and other hazards or stressors. Lower SES is generally associated with distress, prevalence of mental health problems, and with health impairing behaviors that are also related to stress.32 (e.g., smoking)
Other Stressors
More of one’s income will be needed for medical and mental health care because of increased life stress.
Confidentiality: With medical records online, patients will disclose less information to their health care providers. There is also the concern about health care providers’ computers being infected with malware or identity theft of their private data.
Stressors not mentioned in the American Psychological Association 2017 survey on Stress in America: commuting, caring for an aging parent or spouse, self-care, or a heartless neighbor.
Words of Wisdom
If you are a compliant patient, you do not have time to dwell on your problems. You have doctors and other health care providers appointments, prescription pick up, medication schedule and monitoring for adverse reactions, and patient education (becoming informed about your treatment plan).
Everyone can benefit from words of wisdom by adhering to the Serenity Pray: Accept the things I cannot change. Courage to change the things I can. Wisdom to know the difference.
REMINDER: MEDICARE OPEN ENROLLMENT
OCTOBER 15 – DECEMBER 7, 2018
Support Groups
San Francisco Free Clinic. https://sffc.org/stress-management/. (415) 750.9894. Ted Talks: 1. Help you manage your stress. 2. Slow down, enjoy life. Free online eight-week mindfulness-based/stress reduction course including guided meditations, articles, worksheets and videos and more.
Psychology Today. www.psychologytoday.com/us/groups/stress/ca/san-francisco. Psychology Today’s Therapy Directory lists clinical professionals, psychiatrists and treatment centers who provide mental health services. Find Stress Support Groups in San Francisco. Get help from a San Francisco Stress Group, or Stress Counseling Group.
San Francisco Public Library. https://sfpl.org. Adult Calendar: Affordable Housing. Build a Financial Foundation. Building Wealth. Cash Flow & Debt. Invest Smarter. Laughter Yoga. Meditation. Retirement Planning and Wealth Preservation. Sing-A-Long. SmartMoney Coaching. Tai Chi. Yoga. (Ref.: Sept. 2018 AT THE LIBRARY. For Online Version: sfpl.org/atl. Main Library: (415) 557-4400.
Grocery Delivery
Molly Stone. www.mollystone.com/Extra/Delivery-Info/. Order groceries for delivery.
Safeway. www.safeway.com. Same day delivery.
Sprouts Farmers Market. http://delivery.sprouts.com. Grocery delivery.
Meal Delivery
GrubHub. www.grubhub.com. Helps you find food and order from wherever you are. Place order online or by phone. Access reviews, coupons special deals.
Smartphone Apps
Inc. www.inc.com/lolly-daskal/13-of-the-best-apps-to-manage-stress.html. Lists some of the best apps Lolly Daskal found for managing and reducing stress (includes: My Mood Tracker, Pocket Yoga, The Mindfullness App).
Transportation
Lyft. www.lyft.com
Uber. www.uber.com
1The New Illustrated Medical and Health Encyclopedia
2https://sffc.org/stress-management/
3https://en.wikipedia.org/wiki/stress-related disorders
4www.cancer.gov/about-cancer/coping/feelings/stress-fact-sheet
5,18www.apa.org/helpcenter/stress-signs.asp
6www.helpguide.org/articles/stress/stress-symptoms-signs-and-cause.htm
7www.laserspineinstitute.com/back_problems/chronic/stress
8,12,13,14,20www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/stress-symptoms/art-20050987
9,11www.webmd.com/balance/stress-management/features/10-fixable-stress-related-health-problems#1
10,28https://richmondhypnosiscenter.com/2013/04/12/sample-post-two/
15Taber’s Cyclopedic Medical Dictionary
16healthline.com/health/high-blood-pressure-hypertension/blood-pressure-reading-explained
17www.mayoclinic.org/healthy-lifestyle/stress-management/expert-answers/stress-and-hair-loss/faq-200507820
19WHO TAKES CARE OF THE CAREGIVER? STRESS – DIET – EXERCISE (©٢٠٠٣)
21,23,24www.psycom.net/stress-vs-anxiety-difference
22,25,26www.helpguide.org/articles/anxiety/anxiety-disorders-and-anxiety-attacks.htm
27www.miamiherald.com/living/article/1961770.html
29www.bustle.com/articles/165839-5-mental-health-disorders-that-are-often-misdiagnosed
30http://stressinamerica.org
31www.stress.org/military/suicide/
32https://nyaspubs.onlinelibrary.wiley.com/doi/pdf/10.1111/j.1749-6632.1999.tb08111.x
REMINDER: MEDICARE OPEN ENROLLMENT:
OCT. 15 – DEC 7, 2018
Anise J. Matteson is a retired Registered Health Information Technician and writer of reference books for seniors, including excerpt from WHO TAKES CARE OF THE CAREGIVER? STRESS – DIET – EXERCISE (©2003) referred to in this article. Information is educational only. For medical questions and advice, contact your physician and/or health care professionals.
October 2018
Respect for the Aged
By Anise J. Matteson
JAPAN’S HISTORY
Respect for the Aged Day or Keirō-no-Hi, is a national public holiday in Japan. A day to honor and respect the country’s elderly citizens. It is held on the third Monday of September each year. This year it falls on September 17.
History: In 1947, a small town in Hyōgo Prefecture now known as Taka proclaimed September 15th to be Old Folk’s Day (Toshiyori no Hi). Over the years, the holiday’s popularity spread to every corner of the country. By 1966 it was proclaimed a national public holiday and was still celebrated on September 15. Respect for the Aged Day was moved to the third Monday of September beginning in 2003.
Purpose: Respect for the Aged Day is all about respecting and appreciating your elders.
Objective: Be extra kind towards any elderly citizens you come across on Keirō-no-Hi [Respect for the Elderly Day].
Focus: Admiring and acknowledging those senior members of the community who continue to live healthy, active lives.
Qualifications: Who qualifies as ‘elderly’ can vary depending on location, but it is generally for those aged 65 and up.
UNITED STATES HISTORY
In the United States the day is referred to as “Respect Day.”
History: Taking part each September, Respect Day has been created to encourage people to focus on ways in which they can be respectful to others.
Objective: The day can be used as a catalyst for treating any people with a more polite approach.
Goal: The day will inspire people to think more about how they treat others all year around.
COMMUNITY
• Ways to respect seniors year-round
• Drivers allowing seniors time to cross the street.
• Passengers looking up from cell phone or tablet to yield seat on public transit.
• Lowering the age to 62 for senior fare.
• Restaurants providing discounts.
• Keeping sidewalks free from trash cans and vehicles extending beyond the driveway.
• Folding strollers to keep the aisle up front clear for passengers boarding public transit.
• Senior Share
• Experiences (Life Story)
• Opinion on aging
• Healthy living tips
• Photo
• Age
• Email to matte59@lycos.com by October 6 for inclusion in Senior Smarts.
EPILOGUE
In my opinion, respect is: kindness, caring, compassion, helpful, empathy, loving, patience, cordial.
Webster’s Dictionary defines respect as:
1. [To esteem] regard, value, look up to—admire.
2. [To treat with consideration] appreciate, heed, notice, consider, note, recognize, defer or do honor or be kind or show courtesy to, spare, take into account, attend, uphold.
I hope you will be inspired to extend an act of kindness to seniors on September 17 and year-round.
Express respect through courtesy, recognition, consideration, kindness, caring, concern, compassion, sympathy, empathy, patience, cordiality, helpfulness, and friendliness.
Throughout life’s journey, live by the golden rule: “Do unto others as you would have them do unto you.”
Anise J. Matteson is a retired Registered Information Technician, writer of reference books for senior and advocate for the first annual Respect for the Aged Day San Francisco.
Sept 2018
Medicare: The Cost of Aging
By Anise J. Matteson, CBF
Welcome to the Senior Season in life's journey! You know you are now a member the day you open the mail and find your Medicare card and a "Welcome to Medicare" booklet.
If you have not thought about advance care planning, Medicare covers voluntary advance care planning as part of the yearly "Wellness" visit. Medicare may also cover this service as part of your medical treatment. (For my articles on advance care planning read: "Life Happens" (March 2018) and "When Your Decisions Matter!" (May 2018)).
This article stresses the importance of taking financial planning seriously—especially if you are receiving early retirement Social Security benefits.
Listening to the news on KCBS AM radio (June 5) there was mention that Medicare funds will run out in 2026 and Social Security will run out in 2034.
A Google search for the state of Medicare and the state of Social Security (years remaining for funds), I found a June 5, 2018 article by the Associated Press ("Medicare will become insolvent in 2026, U.S. government says") on latimes.com.
MEDICARE
Medicare is a popular name for the United States government system of financing medical care for persons 65 years old and older.
Etiology: In 1997, Congress created Medicare Part C (Medicare Advantage plans). You get Part A and Part B coverage from private insurance companies approved by Medicare 1
In 2003, Congress approved the creation of Medicare Part D, which provides low-cost plans that cover prescription drugs.2
Options:
1.Original Medicare: Hospital Insurance (Part A). Medical Insurance (Part B). Medical Prescription Drug Coverage (Part D). Medical Supplement Insurance (Medigap).
2.Medicare Advantage (Part C) includes: Hospital Insurance (Part A). Medical Insurance (Part B). Medical Prescription Drug Coverage (Part D).
THE STATE OF MEDICARE3
Medicare will become insolvent in 2026. It's giant trust fund for inpatient care won't be able to fully cover projected medical bills starting at that point.
Monthly Medicare "Part B" premium for outpatient care is projected to raise by about $1.50, to $135.50.
Note: Both the cost-of-living increase and the Medicare outpatient premium are not officially determined until later in the year, and the initial projections can change.
Statistics: 1. Medicare provides health insurance for about 60 million people, most of whom are age 65 or older. 2. Social Security and Medicare account for about 40% of government spending.
Inability to cover full cost of benefits: Could mean that hospitals, nursing homes and other providers of medical care would be paid only part of their agreed-upon fees.
Contributing factors: 1. "Lackluster economic growth in previous years, coupled with an aging population." 2. Growing number of beneficiaries. 3. Unpredictability of healthcare costs.
THE STATE OF SOCIAL SECURITY4
Social Security will become insolvent by 2034.
Recipients are likely to see a cost of living increase of about 2.4% next year—$31 a month.
Statistics: Financed with payroll taxes collected from workers and employers, Social Security and Medicare account for about 40% of government spending.
Inability to cover full cost of benefits: Could mean sharply reduced payments for some retirees.
Commentary: Fewer service providers will be willing to accept Medicare.
Terminology
Assignment. Your doctor, provider, or supplier agrees (or is required by law) to accept the Medicare-approved amount as full payment for covered services.5
Assignment of benefits. An arrangement by which a patient request that their health benefit payments be made directly to a designated person or facility, such as a physician or hospital.6
Coinsurance. The percentage of a covered health care service you pay after you have paid your deductible.7 [share-of-cost]
Copayment. A fixed amount (fee) you pay for a covered health care service or supply. [copay]8
Credible prescription drug coverage. Prescription drug coverage (e.g., from an employer or union) that's expected to pay, on average, at least as much as Medicare standard prescription drug coverage.9
Deductible. The amount you must pay for health care or prescriptions before Original Medicare, your prescription drug plan, or your other insurance begins to pay.10
Financial adviser.11 A professional who provides guidance to clients based on their needs and goals. Provides clients with financial products, services, planning or advice related to investing, retirement, insurance, mortgages, college savings, estate planning, taxes and more. [investment advisor, registered representative]
NOTE: Financial advisers can also be insurance agents, accountants or attorneys.
Financial advisor. Provides financial advice or guidance to customers for compensation. Services: e.g., investment management income, tax preparation and estate planning. License: Series 65 required.12 NOTE: Financial advisor is a general term, subsets of the financial advisor group include stock brokers, insurance agents, money managers, estate planners, bankers and more.13
Financial planner. A qualified investment professional who helps individuals (and corporations) meet their long-term financial objectives by analyzing the client's status and setting up a program to help the client meet those goals. Specialties: tax planning, asset allocation, risk management, retirement and/or estate planning.14
NOTE: Every financial planner is also a type of financial advisor. Every financial advisor is not necessarily a financial planner. Financial planners might be brokers or investment advisors, insurance agents, practicing accountants or individuals with no financial credentials.15
Designations: Certified Financial Planner (CFP), Chartered Financial Analyst (CFA) Chartered Financial Consultant (ChFC), Certified Investment Management Analyst (CIMA).16
In-Home Supportive Services (IHSS). Provides help with everyday activities, such as bathing, dressing, laundry, shopping, and cooking to older adults and persons with disabilities. Helps support older adults and persons with disabilities so that they can remain safely in their homes. If eligible, social workers help determine what support services each IHSS recipient is eligible for based on their functional abilities and needs in the home.17
Long-term care. Care can be provided at home [home health care], in the community [adult day health care], assisted living [assisted living facility], or in a nursing home [skilled nursing facility].
Medigap. Private health insurance plans sold to supplement Medicare. It provides coverage for many of the co-pays and co-insurance related to Medicare-covered hospital, skilled nursing facility, home health care, ambulance, durable medical equipment, and doctor charges. It exists to cover the difference or "gap" between the expenses reimbursed to providers by Medicare Parts A and B for the preceding named services and the total amount charged for those services by the Centers for Medicare and Medicaid Services (CMS). [Medicare supplement insurance, Medicare supplemental insurance]18
Etiology: Medigap offerings have been standardized since 1992. Marketing for plans E, H, I, and J have been stopped as of May 31, 2010. Plans M & N took effect on June 1, 2010. Congress passed the bill H.R. 2 on April 14, 2015, which would eliminate plans that cover the part B deductible for new Medicare beneficiaries starting January 1, 2020. After January 1, 2006, no new Medigap policies could be sold with drug coverage.
NOTE: A Medigap policy only supplements your Original Medicare benefits. Medicare Advantage Plan are ways to get Medicare benefits.20
Medicare Supplement Insurance also helps pay deductibles.21
NOTE: Medigap policies generally do not cover long-term care, vision or dental, hearing aids, eyeglasses, or private-duty nursing.22
Patient Assistance Program (PAP). Provides financial assistance or drug free product to low-income individuals to augment any existing prescription drug coverage. PAPs provide assistance to Part D enrollees and interface with Part D plans by operating "outside of Part D benefits" to ensure separateness of Part D benefits and PAP assistance.23
Professional Standards Review Organization (PSRO).24 An organization established to monitor health care services paid for through Medicare, Medicaid, and Maternal and Child health programs to assure that services provided are medically necessary, meet professional standards, and are provided in the most economic medically appropriate health care agency or institution.
Etiology: The PSROs are the outcome of the Social Security amendment of 1972 (Public Law 92-603) which requires the setting up of PSROs to monitor the health care services paid for wholly or in part under provision of the Social Security Act.
Share of cost. The share of cost covered by your insurance that you pay out of your own pocket. (Includes: deductibles, coinsurance, and copayments, or similar charges, Does not include: premiums, balance billing amounts for non-network providers, or the cost of non-covered services.)25
Abbreviations
HICAP: Health Insurance Counseling and Advocacy Program
LIS: Low Income Subsidy
MA: Medicare Advantage
"MA only" plans: MA plans that do not offer Medicare prescription drug coverage
"MA-PD" plans: MA plans offering Medicare prescription drug coverage
PDP: Prescription drug plan
PFFS: Private Fee-for-Service
POS: Point of Service
PPO: Preferred Provider Organization ("out of-network" providers)
SEP: Special Enrollment Period
SNP: Special Needs Plan
Original Medicare vs. Medicare Advantage and Medigap Plans
The Medicare Advantage (HMO) Plan, I reviewed, has an out-of-pocket limit. It does not cover durable medical equipment or home health services. You must choose a primary care physician and a primary care dentist. Coverage must be purchased as a package for medical, dental and prescription drugs. Monthly premium can cost: $35.00 (medical), $6.00 or $16.00 (dental).
Medicare Supplemental Insurance Plans [Medigap] (A-N), I reviewed, have no out-of-pocket limit (except Plan K and L). Plans do not include prescription drugs, ambulance services, durable medical equipment, emergency department services, home health services, or laboratory services. Monthly premium can cost from $72.25 to $215.00.
Stand-Alone Prescription Drug Plans premium can cost from $19.70 per month to $169.80 per month depending on the provider and type of plan. The average nationwide monthly premium for 2018 is $34. Annual deductible can be $0 or $405 (the highest deductible a plan can charge.)
Medicare Prescription Drug Coverage: Part D Copay Tiers26
Tiers. Each plan places the drugs it will pay for in different levels.
Tier 1: Generic – The least expensive drugs your plan covers, including all generic drugs and select brand names.
Tier 2: Preferred – Brand name drugs that have proven to be the most effective in their class.
Tier 3: Non-preferred – Drugs considered non-preferred (brand names that are not the "most effective") as well as preferred specialty drugs.
Tier 4: Specialty – The most expensive drugs because they are classified as brand name, specialty and not preferred.
Anise J. Matteson is a Retired Registered Health Information Technician and writer of reference books for seniors. Information is educational only. For questions and advice, contact Medicare, HICAP, Social Security Administration, your physician, and/or an attorney.
RESOURCES
Service Providers/Organizations
AARP. www.aarp.org. (888) 687-2277. A nonprofit membership organization of persons 50 and older dedicated to addressing their needs and interests. Members receive the bimonthly magazine "AARP The Magazine" which addresses the needs and concerns of the 50+ population. Members also receive the "AARP Bulletin" which is published 11 times a year and carries reports about national and state legislation and programs affecting older persons. Programs include, for example, AARP Independent Living/Long-Term Care/End-of-Life issues.
California Department of Aging (CDA). www.aging.ca.gov/. Administers programs that serve older adults, adults with disabilities, family caregivers, and residents in long-term care facilities throughout the state. Administers funds allocated under the federal Older Americans Act, the Older Californians Act, and through the Medi-Cal program.
California Health Advocates. http://cahealthadvocates.org. Focuses on Medicare advocacy and education. Provides information on Medicare and long-term care. Conducts state and national policy advocacy for increased consumer rights and protection.
Center for Medicare & Medicaid Services (CMS). www.cms.gov. (Previously known as Health Care Financing Administration). A federal agency within the U.S. Dept. of Health & Human Services (HHS) that administers the Medicare program and works in partnership to administer Medicaid. Provides publications related to Medicare.
HICAP. www.hicap.org. (415) 677-7520. The Health Insurance Counseling and Advocacy Program is a state sponsored volunteer-supported program that provides free counseling to people with Medicare about their benefits, rights and options, and other health insurance related questions.
Medicare. Medicare.gov. (800) 633-4227. Get information about Medicare health and prescription drug plans; find doctors or other health care providers and suppliers; what Medicare covers; appeals information and forms; get information about the quality of care provided by health care providers (Medicare.gov/quality-care-finder); look up helpful websites and phone numbers; view print or download copies of publications on different Medicare topics.
Social Security Administration. www.socialsecurity.gov. (800) 772-1213. Resource for information about all of Social Security's programs. On the website you can: apply for benefits; get the address of your local Social Security office; request a Social Security Statement, or a replacement Medicare Card; and find copies of publications.
Articles/Books/Publications
"Getting the Best Out of Medicare" by Dana Bunis, AARP Bulletin, (October 2017, pp. 23-30, 33). Covers: Choosing Your Coverage (Original Medicare – Part A and B), Medicare Advantage (Part C), Supplemental Insurance (Medigap); Navigating Medicare: What Medicare Won't Cover; Covering the Gaps (Choice of 10 policies: A, B, C, D, F, G, K, L, M or N); Your Medicare Timetable (deadlines); New Medicare cards.
FACT SHEET Medicare Advantage (Part C): An Overview (C-001). California Health Advocates. Includes information for: Costs and Benefits, Types of Plans, Medicare HMOs, Medicare PPOs, Medicare PFFS Plans, Medicare SNPs, How MA Plans Work, Enrollment, Disenrollment. https://cahealthadvocates.org/wp-content/uploads/2016/04/C-001-MA-Overview-12-10-15.pdf
Looking to save with Medicare Part D. Walgreens Brochure No. 316872-920. Choosing a preferred pharmacy. Walgreens.com/Medicare-Plans.
"Medicare." READERS DIGEST You and Your Rights: The Essential Guide to Federal, State and Local Benefits and Services (1982), pp.155-162. Covers: Eligibility Requirements; The Two Parts of Medicare; The Benefits of Hospital Insurance; The Meaning of "Benefit Period"; An Exception to the Benefit Period Rule; Nursing Homes Under Medicare; Home Health Visits; What Medicare's Hospitalization Plan Covers; What Medicare's Hospitalization Plan Does Not Cover; Hospital Services Outside the United States; Medicare Medical Insurance; Eligibility; Exceptions to the Automatic Enrollment Provisions; Enrollment Periods; What Medicare's Medical Insurance Covers; How Much Medicare's Insurance Pays; Services Not Covered by the Plan; Plugging the Medicare Insurance Gap; How Medicare Payments Are Made; Two Methods of Payment; For More Information.
Medicare & You 2018. www.medicare.gov (800) 633-4227. The official U.S. government Medicare handbook describes the Medicare program in 11 sections: e.g., Part B Covered Services; What's NOT Covered (A&B); Original Medicare; Medicare Advantage (Part C) – HMO (Health Maintenance Organization plan), PPO (Preferred Provider Organization plan), PFFS (Private Fee-for-Service plan), SNP (Special Needs plan), Medigap plans (Medicare Supplement Insurance); Prescription Drug (Part D) – Coverage gap, Catastrophic coverage, Coverage rules; Definitions; Index. Other ways to get Medicare information: Medicare.gov/publications, facebook.com/medicare, twitter.com/MedicareGov, YouTube.com/ cmshgov, blog.medicare.gov.
Medicare Hospice Benefits. Center for Medicare & Medicaid Services. CMS Product No. 02154. An 18-page booklet includes: information about Who's eligible for hospice care; What services are included in hospice care; How to find a hospice provider; Where you can find more information. Call (800) 663-4227 or visit Medicare.gov.
Medicare Savings Guide. Walgreens. Publication No. 273248-298. An 11-page guide for: Learn what to re-evaluate each year on your drug plan; Get tips to lower your out-of-pocket costs; Understand the benefits of a preferred pharmacy network. Call (844) 263-5972 for your free personalized advice or visit ehealthmedicare.com/walgreens.
Social Security Administration. www.ssa.gov:
Apply Online for Medicare – Even If You Are Not Ready to Retire. Publication No. 05-10530.
Medicare. Publication No. 05-10043.
Retirement. Publication No. 05-10035.
Understanding The Extra Help With Your Medicare Prescription Drug Plan. Publication No. 05-10508.
You May Be Able To Get Supplemental Security Income (SSI). Publication No. 05-11069.
Women with Medicare: Visiting Your Doctor for a Pap Test, Pelvic Exam and Clinical Breast Exam. CMS Publication No. 02248. Revised Sept. 2007. A 12-page booklet: What's covered in the Original Medicare; What Medicare Pays; What You Pay. (E-book: Revised Apr. 2002 at https://permanent.access. gpo.gov/gpo2048/women.pdf.)
Medicare Health Plans
AARP Medicare Supplement from United Healthcare Insurance Company. www.aarpmedicare supplement.com. (877) 596-3258. "Decision Guide" includes: Plans available in your area; Detailed plan benefits; How Medicare supplement plans complement Original Medicare. (Must be an AARP member to enroll.)
Kaiser Permanent Senior Advantage (HMO). www.kpo.org. Understand your options and get more than Original Medicare. Call (877) 425-7896 to talk with a licensed sales specialist or RSVP for a local Straight Talk Seminar. Visit www.kpo.org/info to: learn more about the Kaiser Permanente Medicare health plan options; watch the video The Road to Medicare; sign up for Getting Started email. Get a copy of Kaiser Permanente Guide to Medicare.
SCAN Health Plan. www.scanhealthplan.com. (877) 807-7226. An HMO plan with a Medicare contract. Enrollment in SCAN Health Plan depends on contract renewal. [You must continue to pay your Medicare Part B premium.] Benefits information packet includes: 2018 Benefit Highlights – SCAN Classic (HMO) Medicare Advantage Plan; 2018 Provider & Pharmacy Directory; 2018 Medicare Advantage Enrollment Sales Kit – SCAN Classic (HMO).
1,2 AARP Bulletin (Oct. 2017)
3,4 www.latimes.com/nation/nationnow/la-na-pol-medicare-finances-20180605-story.html
5 www.medicare.gov/your-medicare-costs/part-a-costs/assignment/costs-and-assignment.html
6 www.medicinenet.com/script/main/art.asp? articlekey=24244
7 www.healthcare.gov/glossary/co-insurance/
8 www.healthcare.gov/glossary/co-payment
9 ,10Medicare & You 2018
11,13,15,16 www.investopedia.com/articles/personal-finance/040215/financial-advisor-vs-financial-planner.asp
12,14 www.investopedia.com/terms/f/financial-advisor.asp
17 www.sfhsa.org/services/care-support/home-supportive-services-ihss
18,19 https://en.wikipedia.org/wiki/Medigap
20,21,22 www.medicare.gov/supplement-other-insurance/medigap/whats-medigap.html
23 www.cms.gov/medicare/Prescription-Drug-Coverage/PrescriptionDrugCovGenin/PAPData.html
24 Encyclopedia and Dictionary of Medicine, Nursing, and Allied Health
25 www.healthcare.gov/glossary/cost-sharing/
26 www.mymedicarematters.org/costs/part-d/
July 2018
Last Will and Testament
By Anise J. Matteson, CBF
The importance of advance care planning in preparation of the unexpected cannot be emphasized enough. You may need someone to express your wishes during your lifetime and after your death. If you have not named someone, hopefully, this article will encourage you to think about how indecision will affect your loved ones.
THE PUBLIC ADMINISTRATOR
The Pubic Administrator takes care of the affairs of those who have died and do not have family members able or willing to manage the estate. 1
Having the Public Administrator take over the administration of an estate is what is considered "administrator of last resort."2
Duties: Searches for family members and wills; arranges for disposition of remains; locates and manages all assets; monitors creditor claims; reviews taxes; and provides all services necessary to administer each estate through distribution to heirs and beneficiaries.
California Probate Code
Assembly Bill No. 2687, Chapter 888: Filed with the Secretary of State September 29, 2004. Approved by the Governor September 29, 2004. An act to amend Sections 58, 7601, 7602, 7603, 7620, 7622, 7660, and 7666 of the Probate Code, and Section 4986.6 of the Revenue and Taxation Code relating to public administrators.
Powers: The right to take control of a decedent's property; issue written notification of this fact; summarily dispose of property, as specified, under certain circumstances, when real property is discovered prior to a tax sale, the public administrator of the county where the property is located be notified and that he or she commence probate proceedings.
Expanded authority: To take control of property that, in the sole discretion of the public administrator, is subject to loss, injury, waste, or misappropriation; require specific entities, including private agencies, retirement fund administrators, insurance companies and others to provide the public administrator the property, as specified and would require these entities provide the property without requiring a death certificate or a charge; acts with the authority of a personal representative in certain cases; increases the maximum value of the decedent's estate that a public administrator may dispose of without court authorization; increases the minimum compensation that a public administrator receives for performing specific actions; establishes certain procedures for the sale of real property of the decedent.
Cases Referred to Public Administrator
The Public Administrator receives and investigates 300 to 500 new referrals each year. In about half of these cases, the Superior Court appoints the department as the administrator of the estate.
The Public Administrator must petition the Court to serve as Administrator in estates valued at more than $50,000.
The average time span of an estate from referral to final disposition by the court is 2.5 years.
Cost
IN MEMORIAM (Obituary): $15 per line. $125 per photo. (San Francisco Examiner, May 13, 2018)
FUNERAL: According to the National Funeral Directors Association, the median cost for a traditional funeral in the United States was around $7,045 in 2012 (This includes basic services of the funeral home, embalming, visitation, a funeral service, hearse and car rental, and a basic metal casket).5
CREMATION: the average cost was around $3,000 in 2012.6
Indigent Burial Assistance
The state of California does not provide burial or funeral assistance. Eligibility Requirements: Contact the county's social services department for what services they are able to provide. Benefits Received: Basic funeral or cremation costs for those on welfare or without funds to pay for a funeral. There are no provisions for services or viewing.
Decedents Property and Money
All property is inventoried, stored, and eventually liquidated. Personal property, including vehicles, are sold at auction. All cash and proceeds from the sale of property are deposited into a trust account held by the Public Administrator in decedent's name. Debts are paid, including the reimbursement to the State of California for Medi-Cal benefits received. The Public Administrator is paid a statuary fee (set by the Probate Code) and the remaining funds are distributed to persons named in the will or pursuant to the laws of intestacy) Probate Code Sections 6400-6455)…Items of sentimental or historical value are distributed to a designated family member whenever possible. If there are insufficient funds in the decedent's estate to pay for shipping the family is asked to bear this expense.
The Public Administrator's fees are paid at the end of the process and come from the decedent's funds.9
Conclusion
Estate planning is the best gift you can give your loved ones.
If you have not done so, contact an attorney so that your will is well-written to withstand contesting and your executor information is up-to-date.
RESOURCES
DFS. A network of local family owned and operated funeral homes and cremation providers who offer lower cost death care alternatives. Helps families locate low cost cremation and burial services throughout San Francisco. FREE consultation. www.dfsmemorials.com/state/california/city/san-francisco#.WwNUfGeG-Uk. (415) 281-9121.
Nolo. Provides a Directory of California Probate Lawfirms & Lawyers. You can view profiles and contact information. Also legal articles on wills, trusts and probate. nolo.com/lawyers/probate/california.
SF Bar Association, Lawyer Referral. Offers legal assistance from lawyers experience including Probate and Wills, Real Estate Law, Trust and Estate Planning. (Monday through Friday 8:30 am – 5:30 pm. sfbar.org/lawyerreferrals. (415) 989-1616.
1,4www.sfhsa.org/services/care-support/public-administrator
2,8,9vcportal.ventura.org/hsa/docs/brochures/pdf/2014/2014-04-04_FAQ_14inch.pdf
3leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=200320040AB2687
5,6 www.personalcapital.com/blog/retirement-
planning/cost-of-funerals-death-and-dying/
7www.funerals360.com/blog/funeral-costs/funeral-assistance-for-those-who-need-it
Anise J. Matteson, CBF is a Certified Bereavement Facilitator, elder care consultant, Retired Registered Health Information Technician and writer of reference books for seniors. Information is educational only. For questions consult an attorney.
June 2018
When Your Decisions Matter!
By Anise J. Matteson, CBF
Patient Self-Determination Act
Passed by the U.S. Congress in 1990, it became effective on December 1, 1991. The purpose is to inform patients of their rights regarding decisions towards their own medical care, and ensure that these rights are communicated by the healthcare provider. Specifically, the rights ensured are those of the patient to dictate their future care (by means such as a living will or power of attorney) should they become incapacitated. … (See Westside Observer – April 2016, p.17)
California law provides individuals the ability to ensure that their health care wishes are known and considered if they become unable to make these decisions themselves. (www.cmanet.org/about/patient-resources/end-of-life-issues/)
Advance Directive
An Advance Directive is a part of patient-centered care—a treatment plan specific to a patient's needs. It provides instructions in your own words to family/caregivers, friends and health care professionals when there is a significant condition change.
You should have an Advance Directive to specify your decisions in the future regarding health care, end-of-life-care, nutrition, hydration, hospice care, No Cardiopulmonary Resuscitation, and organ donation when you become unable to express your wishes. (Examples with supporting documentation: do not hospitalize, autopsy request, feeding restrictions, medication restrictions, other treatment restrictions.)
Sectarian Health Care Directive
"An optional addendum to your advance directive. The language in this addendum clarifies that admission to a religiously-affiliated facility does not imply consent to particular care mandated by the institution's religious policies and directs a transfer if the facility declines to follow the wishes outlined in an advance directive." (CompassionAndChoices.org)
Preparing for the Unexpected
Visit the library.
Get your resources together.*
Think about your healthcare decisions.*
Discuss your wishes with your loved ones, primary care physician and/or attorney.
Name someone to speak for you when you cannot speak for yourself.
Tell others that you have engaged in advanced care planning and encourage them to do the same.*
Complete your Advance Directive.
File or share your advance care plans so they will be available if needed.*
(* - Adapted from NHDD Themes for NHDD Week 2018. (nhdd.org/#signup)
When you have completed your advance directive, you may indicate this with the wallet card that states you have advance directives.
RESOURCES
A Letter to My Primary Health Care Provider Concerning Decisions to be Made at the End of My Life. www.compassionandchoices.org. To download sample of "Letter to my doctor" (Gentle-Death-A-Letter-to-My-Doctor.pdf).
Advance Health Care Directive (English/Spanish. California Hospital Association. www.calhospital.org/ resource/advance-health-care-directive.
GOOD to GO RESOURCE GUIDE. Compassion & Choices MAGAZINE, Special Resource Issue, 2012. (800) 247-7421. www.compassionandchoices.org. Chapters include: How to Make Your Health Care Decisions Known, Physician Orders for Life-Sustaining Treatment, Your Wishes, Glossary, The Conversation, and more.
Hospice by the Bay. (415) 626-5900. www.hospicebythebay.org/index.php/locations/san-francisco. Community services: include Advance Care Planning Seminars, Estate Planning Seminars, Community Grief Counseling and Support Groups: call (45) 526-5699.
My Life My Choices™, Planning for Future Healthcare Decisions. http://hospicebythebay.org/event/my-life-my-choices-planning-for-future-health-care-decisions/. Hospice of Marin Community Education Program.
Physician Orders for Life Sustaining Treatment. http://capolst.org. To download "POLST FOR Patient and Loved Ones."
Anise J. Matteson, CBF is an Advocate for National Healthcare Decisions Day, Certified Bereavement Facilitator, elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Information is educational only. For specific questions, consult your physician and an attorney.
May 2018
Life Happens
By Anise J. Matteson, CBF
Personal Perspective: In Loving Memory
It is with a heavy heart I take pencil in hand to draft this month's article, when since 2014 March articles have focused on advance care planning.
March 8 marks the 20th anniversary of mother's death.
She was performing her daily routine. Unfortunately when I arrived to check why she was not answering the phone, I found her deceased—probably from a fall. Fortunately, she was not found alive, unconscious, or with a fractured hip, or a nursing home resident losing her independence.
My reason for sharing: She and I never discussed her wishes in the event that she could not, regarding health care or funeral arrangements.
Mother's death profoundly affected the past 19 years.
I ask for your prayers as I address an important family matter and to visit gofundme.com/save-retirement-security.
National Healthcare Decisions Day and advance care planning are mentioned briefly to avoid a conflict of interest.
Professional Perspective: Preparing for the Unexpected
We know not the day nor the hour when our life will change forever. For example, Mayor Ed Lee's sudden death. Only his wife and family know if he had an Advance Directive.
Each year, I contacted Lee for a Mayoral Proclamation for National Healthcare Decisions Day. His schedule was always too busy.
Take the time to use the resource list included in this article and prepare for discussing your wishes and naming someone to speak for you when you cannot.
SAVE THE DATE: April 16 – National Healthcare Decisions Day.
RESOURCES
Let's Talk Boomer Legal and Advance Care Planning. Includes: Patient Self-Determination Act, defines elder law attorney and elder law; presents the elder law attorney perspective: Boomer Legal: Power of Attorney: The importance and Types of Designee; Advance Health Care Directive: How to Make It a Legal Document and Who Should Have a Copy; Physician Orders for Life Sustaining Treatment; Living Will; Will; The Difference Between a "Living Will" and a "Will." Resources: Advance Directive, Physician Orders for Life Sustaining Treatment, Seniors and the Law: A Guide for Life Sustaining Treatment, Wills. (Westside Observer, March 2015, pp. 15 & 18.)
Let's Talk Boomer Legal and Advance Care Planning, National Health Care Decisions Day. Includes: National Healthcare Decisions Day; presents elder law attorney perspective: Boomer Legal: Living Trust; What Happens To The Estate If The Deceased Does Not Have A Will?; Preparing for the Appointment if an Attorney Prepares Documents; The Difference Between "Revocable" and "Irrevocable" Living Trust. (Westside Observer, April 2015, p.15.)
Anise J. Matteson, CBF is a Certified Bereavement Facilitator, elder care consultant, retired Registered Health Information Technician, Advocate – National Healthcare Decisions Day, and writer of reference books for seniors. Information is educational only. For advice consult your physician or an attorney.
March 2018
Coping with the Holidays During Bereavement
By Anise J. Matteson, CBF
"Grief is a journey, often perilous and without clear direction that must be taken. The experience of grieving cannot be ordered or categorized, hurried or controlled, pushed aside or ignored indefinitely. It is as inevitable as breathing, as changing, as love. It may be postponed, but it will not be denied."—Molly Fumia (from Safe Passages) [Hospice by the Bay packet]
While Christmastide is usually a festive season from Christmas Eve until after New Year's Day, this holiday season many families, neighbors, friends, acquaintances, and co-workers will be coping with a loss due to the Napa-Sonoma fires or the hurricanes.
Those affected will grieve for various reasons. The loss of a home, mementos, job, vehicle, business, animals or a loved one; or a pending divorce.
The name of five classmates come to mind. Napa-Sonoma fires (Santa Rosa): Four. Hurricane Harvey (Houston, TX): One. I have not received a reply to my letter. Pray that God will keep them in the palm of His hand.
To all my readers, may you and your loved ones enjoy a Merry Christmas and a healthy New Year.
This article is intended to provide solace for families coping with an anticipated loss or who have lost a family member this year.
HOLIDAY COPING STRATEGIES
Evaluate Your Coping Plans
♥ Do your plans isolate you?
♥ Do your plans reflect what a particular holiday means for you?
♥ The most difficult part of the holiday season?
♥ The most difficult people to be with?
♥ Grief triggers?
♥ Traditions you want to include?
♥ Traditions you do not want to include?
♥ People you would like to be with you?
♥ People you do not want to spend the holidays with?
♥ Things that might help you when you are feeling intense grief?
Assert Yourself
Dr. Louis E. LaGrand offers the following advice in his book Healing Grief, Finding Peace:
♥ Your needs come first. Tell family and friends specifically what you can and cannot do.
♥ You may want to eat out, have someone else hold it this year, or have others assume more responsibility.
♥ You don't have to follow the exact schedule or routines of the past. Consider starting a new tradition.
♥ There is nothing wrong with reducing the amount of time you spend at events or in preparation for the day. Tell all concerned what your level of participation will be.
♥ Find a way to symbolically honor your deceased loved one. Make it a habit to acknowledge the memory of your loved one at major family events. It's okay if tears flow.
♥ Tell yourself and accept the fact that the holidays will be different. Identify what emotions you are feeling and express them to your grief companion.
♥ Diligently manage your anticipation. Keep things simple and focus on the values, beliefs, joy, and wisdom of the deceased. Remember that laughter and a smile are still important parts of life.
TIPS FOR ADULTS ON PROVIDING EMOTIONAL SUPPORT FOR THEIR KIDS DURING THE HOLIDAYS
1. Be aware of the behavior of adults, particularly parents on a grieving child. Parents must let the child know that adult tears are not a rejection of the child.
2. Don't avoid long-standing family tradition. Traditions are often comfortable for the children, (e.g., decorating the tree, lighting the candles, the big family dinner). Focus on available support from family and close friends.
3. Create a specific time during the holiday season to talk as a family about favorite memories of the person who died.
4. Provide children with special amounts of attention, praise and emotional support.
5. Take an active role in helping the child cope.
6. Pay attention to cues and talk openly about how natural it is to be thinking of your loved one.
7. Recognize that the child may have questions about the death…Be patient and honest in your answers.
8. Provide reassurance through actions as well as words.
9. Recognize that children need to talk, not just to be talked to.
©Suggestions provided by: Hospice by the Bay, from: Helping Children Cope With Grief, by Dr. Alan Wolfelt--printed with permission of Hospice by the Bay for inclusion in Elder Caregivers NEWSLETTER – October 2003, p. 8.
GENERAL TIP FOR ADULTS ON PROVIDING EMOTIONAL SUPPORT FOR ADOLESCENTS
They should be listened to and allowed to ventilate their feelings, whether they be guilt, anger or plain sadness. (Elisabeth Kübler-Ross, MD, On Death and Dying, p. 185.)
SYMPATHY NOTE
How to write a letter to enclose with a holiday card to someone who has experienced the death of a loved one?
Barbara Kate Repa, Senior Editor at Caring.com has these suggestions:
♥ A handwritten note.
♥ Avoid explanations or excuses for tardiness.
♥ The note can be brief or long. The intent is to convey that you are thinking of him or her and sending support.
♥ Concentrate on extending sympathy rather than personal updates. Do not inject recounting your own loss.
♥ If you do not know what to say, phrases often used are:
With deepest sympathy.
Our heartfelt condolences.
My heart goes out to you and your family.
I'm so sorry for your loss.
_______ will be sorely missed.
Your family is in my thoughts and prayers.
♥ Use the deceased's name.
♥ Talk about the deceased. Include specific comments about the person who died—an anecdote that captured the person's personality, comment on how the person inspired or taught you or made you happy.
♥ Skip the unpleasantries (dredging up past disagreements, sums of money owed, comparison to other relatives death, apologies or explanations for having been out of touch or less-than-flattering words about the deceased).
♥ Avoid platitudes—clichés about death.
♥ Write from your heart.
♥ Include your return address and full name.
(caring.com/articles/sympathy-note)
REMEMBERING A LOVED ONE
One winter I wore my husband's white sweat shirt with blue stripes and the word Air Force in blue letters. (He was a sergeant in the Air Force during the Vietnam War.)
One winter I wore my mother's beige sweater she had put on a dining room chair.
I framed and hung my husband's drawings in the kitchen and bathroom. Displayed his sculpture of a clown's head on my grandmother's whatnot cabinet. Used his drawing for the cover of Elder Diary: Starter Kit.
Photos of family and commemorative events displayed along cornice in the foyer: dad's sister, mom's mother, mom and me (B.A. commencement), dad and me (Father-Daughter Night, high school).
At the holidays the mantel is decorated with my arts and crafts items (painted pine cones, painted flour dough diamonds, hearts and donut holes made using cookie cutters) to decorate mom's holly garland.
Christmas tree ornaments include humming birds, a goose and other ornaments, tinsel and garland with which my husband and I would decorate our tree. Mom's ornaments are boxed as keepsakes.
TERMINOLOGY
Bereavement is the time we spend adjusting to loss. The period of grief and mourning we go through after someone close to us dies. The expected reactions of grief and sadness upon learning of the loss of a loved one.
Mourning is normal grief produced by the death of a loved one. It is an important part of bereavement. Mourning rituals—funerals, wakes—allow us to say goodbye.
Cyber mourning is the use of social media by mourners to express their condolences.
Bereavement counseling is designed to help people cope more effectively with the death of a loved one. Specifically, bereavement counseling can:
♥ Offer an understanding of the mourning process.
♥ Explore areas that could potentially prevent you from moving on.
♥ Help resolve areas of conflict still remaining.
♥ Address possible issues of depression or suicidal thoughts.
Bereavement counseling aims to get you to a point where you can function normally—however long it takes. (counselling-directory.org.uk/bereavement.html)
Bereavement support groups provide opportunities for you to discuss your experiences and learn about grief with others who have experienced loss. (http://www.ucsfhealth.org/education/bereavement_services _and_information/bereavement_ resources_and_services/)
Grief companion are people who will stand with you, listening to the pain being experienced and expressed. (LaGrand, p.111)
Grief counseling is a form of psychotherapy that aims to help people cope with grief and mourning following the death of loved ones, or with major life changes that trigger feelings of grief (e.g., divorce). (http://en.wikipedia.org/wiki/Grief_counseling)
A chaplain is accountable as part of a professional patient care team; provides supportive care through emphatic listening, demonstrating an understanding of persons in distress; provides grief loss care; designs and leads religious ceremonies of worship and rites (memorials and funerals). www.healthcarechaplaincy.org/userimages/professional-chaplaincy-its-role-and-importance-in-healthcare.pdf
RESOURCES
Most Holy Redeemer Church. Parish Library, 100 Diamond St. Drop-in grief support group. Meets third Thursday, 7:30-8:45 p.m.; inclusive nondenominational, and not restricted to type of loss. Questions: gcm@mhr.org.
St. Mary's Cathedral. www.stmaryscatheralsf.org. (415) 567-2020, ext. 218. Sessions provide information on grief process, and tips on coping with loss of a loved one. Meets third Wednesday, 10:30 a.m.-noon.
Life Transitions Network (LTN). www.transitionalworkshops.com. (415) 263-4822. Moving Through Loss and Transition workshops provide a safe place to share your story, fully experience your feelings and learn new approaches to coping with losses and obstacles of all kinds.
Senior Smarts: Learning from Grief (February 2015). Covers: Defining Grief, Physical Responses to Grief, Emotions Associated with Grief, Definitions, Rituals, Healing, Grief Journal, Words of Consolation, Resources.
Anise Matteson, CBF. is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors including Coping with the Holidays: Excerpts from Elder Caregivers NEWSLETTER, ©2007. Information educational only. For specific questions and advice, contact a chaplain, physician or an attorney. matte59@lycos.com.
December 2017
Dental Health: Surviving Oral Surgery
by Anise Matteson
When I began working two weeks after graduating from college in 1973, nurses wore white uniforms, caps and hose, jewelry was limited to two rings (wedding ring and/or school ring) and employees were told not to discuss their personal business. I have always practiced this rule. I make an exception and share with readers my recent dental appointment for an extraction.
There may be a reader who is preparing for an appointment or convalescing from an extraction who can benefit from this article in the series of articles on dental health.
IMPROVING YOUR APPOINTMENT
Step 1: Know in advance how you are going to pay for the procedure.
Know how much does it cost?
Do you have dental insurance? (If you do not, what are your options?)
Can you afford to pay the total amount on the day of the appointment? (If you cannot, how many payments will you need?)
NOTE: "If you've retired or soon will be, did you know that in most cases, Medicare just doesn't cover any dental care?"[1]
[1] "Your Medicare Benefits," Center for Medicare & Medicaid Services, 2014.
"Q: Won't Medicare or the Affordable Care Act pay for my dental care?
A: Medicare does not cover routine dental care or most dental procedures such as cleanings, fillings or dentures. The Affordable Care Act does not provide coverage for adult dental care, either." (Physicians Mutual Insurance Company)
Step 2: Schedule the appointment early in the week (preferably Monday) in case there are post-operative problems and need a post-operative check.
Step 3: Arrange for five days off from work to recuperate.
Expect:
Facial swelling (four days.)
Talking is uncomfortable.
Not feeling like doing much. (Naps helpful.)
Dietary restrictions.
Need to exercise care when chewing. (Keep food out of surgical area.)
Need to rinse [gently] after eating.
Need to exercise care when brushing teeth. (Avoid surgical area.)
NB: Follow your dentist's post-operative instructions following oral surgery.
SPECIAL DIET (CONVALESCENT DIET)
Soft Diet. A diet consisting of nothing but soft or semisolid foods or liquids, including fish, eggs, cheese, chicken, cereals, bread, toast and butter. Excluded are red meats, vegetables or fruits having seeds or thick skins, cellulose, raw fruits, and salads.
Personal soft diet preferences
Following oral surgery: Lemon-Lime soda, strawberry yogurt.
For 14 days after the surgery: Lemon-Lime soda, orange juice, peach yogurt, blueberry muffins, open-face omelet with cheese, bananas, cantaloupe, pancakes without syrup, Ramen noodle soup, bread with margarine and honey, Tina burritos, mashed potatoes, lemon cake, chocolate cake, hot tea, coffee, focaccia sandwich rolls (jalapeno).
For qualified advice on meal planning if your dentist's instruction is for a soft diet consult a dietitian.
Dietitian vs. Nutritionist
Dietitian. Organizes food and nutrition plan; promotes healthy eating habits to prevent and treat illnesses; teaches nutrition and health classes at colleges and universities; does research or focus on public health issues; diagnose eating disorders; plan meals for the managing of symptoms of health problems.
Registered dietitian (R.D.). A specialist in dietetics who has met the requirements for certification stipulated by the American Dietetic Association.
Nutritionist (food specialist)[18b]. Teach clients about the general nutrition and health properties in food; offer nutrition supervision; work as dietitian assistants or food journalists; most of their work is done with behavior issues.
NOTE: 1) Nutritionists typically do not have any professional training, and therefore, should not be involved in the diagnosis and treatment of any disease. 2) Nutritionists who pass the certification test are referred to as certified nutrition specialist (C.N.S.). 3) Practitioners – clinical nutrition: medical doctors, osteopaths, physician assistants, chiropractors, naturopathic doctors.
INFECTION PREVENTION
Wash hands before touching face.
Use plastic and paper cups for drinking water and beverages.
Thoroughly wash and rinse eating utensils and dishes after each use.
Wear an earloop face mask.
Mouth Care:
Follow your dentist's Post-Operative Instructions Following Oral Surgery sheet.
Avoid kissing or being kissed to reduce potential for spreading germs in saliva.
Fresh linen (pillow case and bed sheets).
Limit or avoid touching handles on garbage cans and garage door. (REMINDER: Car doors are a source of germs. Wash hands ASAP.)
Avoid picking up newspaper(s) delivered to your home that have been tossed onto your lawn. (REMINDER: Dog owners use your lawn for their dog's toilet. The newspaper may be tossed in feces or urine—wear gloves when picking it up.)
**Practice infection prevention for at least 14 days after oral surgery.**
PREPARE FOR THE UNEXPECTED
If you are retired on a fixed income you need an emergency fund to cover unexpected expenses.
With dental surgery there is a change in diet. You may need to go shopping for appropriate foods.
You are advised to have an Advance Directive in the event you are unable to express your wishes.
Likewise, advance planning is needed for dental health care. Dental insurance coverage in advance of a Treatment Plan. There is a waiting period (e.g., an extraction requires three months enrollment; a crown requires one year enrollment).
As with other health care providers, you will need to provide medication allergies and reactions, and any medications you are taking.
OVERVIEW: DENTITION
Teeth (sing. - tooth). The hard bone-like (calcified) organs supported by sockets and gums of the upper and lower jaws. FUNCTION: 1) To grind food into pieces small enough to be easily swallowed and digested. [2] The teeth in the upper jaw work with those in the lower jaw to cut, tear, and grind food. (Front teeth are for biting. Back teeth are for chewing.)[2a] 2) Help to form words. Many words cannot be pronounced correctly without teeth.[2b] 3) Aid with facial expressions. (Help support the facial muscles and hold the natural shape of the face.[2c]) If teeth are lost and are not replaced with dental restoration face muscles sag and deep lines appear around the mouth.
Types of Teeth
There are 32 permanent teeth.
Incisors. Eight front teeth (four upper/four lower). The cutting or shearing teeth for biting off large pieces of food.
Canines (cuspids) – [eyeteeth, dogteeth]. Four teeth (two upper/two lower) next to the incisors. The strong pointed teeth for tearing food into small pieces.
Premolars (bicuspids). Eight teeth (two next to each of the canines). Their pointed chewing surfaces crush food to a course, grainy mass.
Molars. Twelve teeth farthest back in the jaw (three grow on each side of the jaw). They shed and grind food.
Third molars (wisdom teeth). The last teeth to develop, some people never develop third molars at all.
Organs affected by abscessed tooth: lungs heart, liver, gallbladder, stomach, kidneys.
RESOURCES
Toothette Oral Swabs. Help maintain healthy teeth and gums by gently removing debris, cleaning between teeth, and stimulating oral tissue. Soft, ridged foam heads cleanse even sensitive areas comfortably.[20] (Sage Toothette Swab w/ Dentifrice available at Walgreens.com.)
"Dealing with Common Ailments – Special Diets For Special Needs, Soft Diet." Defines soft diet, its uses; what's allowed, what isn't; prohibited items in food products; appetizing ideas for soft foods.
Eat Better, Live Better, Reader's Digest, p. 361, Second Printing, Aug. 1984.
Fight Germs Wash Your Hands. A 3 minute video. This handwashing demonstration will show you how handwashing can get rid of germs and chemicals that get on our hands every day. Transcript is also available at .
Nutritionist San Francisco, Nutritionists Directory. Browse profiles of leading California nutritionists by neighborhoods, style type (clinical dietitian, community dietitian, consultant dietitian and more).
The American Clinical Board of Nutrition (ACBN) is a certifying agency in nutrition. Founded in 1986. The ACBN is a professional certification organization acting in the public interest by establishing education, examination, experience, and ethics requirements for certification.
Future articles: Managing Dental Care, Affording Dental Care
Other Resources: Taber's Cyclopedic Medical Dictionary, The New Illustrated Medical and Health Encyclopedia, The World Book Encyclopedia
Anise J Matteson is an elder care consultant, retired Registered Health Information Technician, and writer of reference books for seniors. Information is educational only. For specific questions and advice, consult your dentist.
September 2017
Who Takes Care of the Caregiver?
by Anise J Matteson
Early on as a writer, I wrote, WHO TAKES CARE OF THE CAREGIVER? STRESS – DIET - EXERCISE designed for non-medical caregivers providing at-home care to the elderly or ill.
The purpose was to encourage focusing on remembering that you are the number one priority while committing to being a good caregiver.
RESPITE
Webster’s New World Thesaurus identifies respite as reprieve, postponement, pause [delay].
Taber’s Cyclopedic Medical Dictionary defines respite as short-term, intermittent care, often for persons with chronic or debilitating conditions. One of the goals is to provide rest for family members or caregivers from the burden and stress of sustained caregiving.
HIATUS
Webster’s dictionary defines hiatus as a lapse in continuity.
CAREGIVER STRESS
Can you recognize the signs of caregiver stress?
Anger, denial, insomnia, health problems, depression, anxiety, withdrawal, exhaustion, loss of concentration, irritability. (Senior World Online – Southern California Article. Ten Signs of Caregiver Stress. www.seniorworld.com.)
STRESS MANAGEMENT STRATEGIES
Remember that you are the #1 priority.
Enjoy a cup of herbal tea, tea, coffee, (your favorite beverage).
Enjoy the outdoors—your favorite beverage, a good book and a lawn chair.
Listen to music.
Take a walk.
Involve: Family members, friends, co-workers.
Get a hobby.
Involve: Family members, friends.
Attend: Community programs.
Designate a pager or cell phone EMERGENCY ONLY.
Communicate at your convenience: telephone, visit, or write a letter.
Accept phone calls and visits during prearranged times.
Involve: Family members, friends.
Respite Registry for short-term temporary assistance.
Adult Day Care.
Alzheimer’s Day Care Resource Center.
Grocery delivery.
Home cleaners.
Meal delivery.
Transportation.
Resources: Health care professionals, support groups, auxiliary services.
Who Takes Care Of The Caregiver? Stress – Diet – Exercise.
For years as a health care professional, I have been helping others address self-care and/or caring for an aging loved one.
I refer to my absence as a short-term hiatus.
My column has been absent for May and June. I am addressing a family matter. For information, email matte59@lycos.com.
Enjoy the summer. Maintain a healthy diet, exercise, and minimize your exposure to stressful situations.
The weather is getting warmer. Remember to keep hydrated and refer to my article “Weather Forecast Preparedness: Hot Weather” on heat-related illnesses, (hyperthermia), protecting older workers, heat stress and older workers, sunstroke, heat exhaustion, sunburn. (Sept. 2016, pp. 9 & 22. Fully annotated version: www.westsideobserver.com/health.html.)
See you in September.
RESOURCES
Alzheimer’s Association. www.alz.org. (800) 272-3900. Provides information and services for individuals, caregivers and families. The Northern California and Northern Nevada Chapter Newsletter is published twice yearly in June and December.
Alzheimer’s Foundation of America (AFA). www.alzfdn.org. (866) 232-8484. AFA Care Quarterly. A quarterly publication for caregivers of individuals living with Alzheimer ’s disease and related illnesses.
Department of Aging and Adult Services. www.sfhsa.org/DAAS.htm. (415) 355-6700. Coordinates services to seniors, adults with disabilities, and their families to maximize self-sufficiency, safety, health, and independence so that they can remain living in the community for as long as possible and maintain the highest quality of life.
Safeway. http://shop.safeway.com. All your groceries, including produce, meats and frozen foods arrive in refrigerated delivery trucks. Grocery Delivery: (877) 505-4040.
Resources for Older Adults, People with Disabilities, Caregivers and Agencies Serving Seniors, Services for Seniors and Adults with Disabilities. Prepared by the City and County of San Francisco Department of Aging and Adult Services Intake Program. (150 pages.) www.sfdaas.org/asset/ Guide _2015.pdf.
Senior Smarts – Alzheimer’s Awareness by Anise J. Matteson, Westside Observer, (Nov. 2014, pp. 9 & 18. For a complete and extensive list of support groups and resources: www.westsideobserver.com/ health.html.)
Anise J. Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors.
July / August 2017
April 16 is National Healthcare Decisions Day
by Anise Matteson
A day to "inspire, educate and empower the public and providers about the importance of advance care planning."
"…an initiative to encourage patients to express their wishes regarding health care and providers and facilities to respect those decisions whatever they may be." (nhdd.org) National Healthcare Decisions Day - April 16, 2014 San Francisco Public Library - Glen Park Branch
This year marks the 1th Annual National Healthcare Decisions Day and the 4th Annual Healthcare Decisions Day in San Francisco with Healthcare Decisions Week from April 9 through April 16. During the week, neighborhood branches of the San Francisco Public Library acknowledge advance care planning with books/materials for Advance Directive, wills, trusts and estate planning.
Participating branches (at the time of this writing): Bernal Heights, Chinatown/Lai, Excelsior, Glen Park, Merced, West Portal. Library on Wheels (Seniors) [Bookmobile]. Past participants, RSVP not yet received: Mission, Mission Bay, Visitation Valley, Western Addition.
SFPL will be open on April 16, Easter Sunday. (Contact your neighborhood branch to inquire if participating.)
Patient Self-Determination Act
Passed by the U.S. Congress in 1990, it became effective on December 1, 1991. The purpose is to inform patients of their rights regarding decisions towards their own medical care, and ensure that these rights are communicated by the healthcare provider. Specifically, the rights ensured are those of the patient to dictate their future care (by means such as a living will or power of attorney) should they become incapacitated. … (See WSO – April 2016, p.17)
California law provides individuals the ability to ensure that their health care wishes are known and considered if they become unable to make these decisions themselves. (www.cmanet.org/about/patient-resources/end-of-life-issues/)
Prepare for the unexpected
Visit the library. Discuss your wishes with your loved ones, primary care physician and/or attorney. Name someone to speak for you when you cannot speak for yourself—complete your Advance Directive on April 16.
ADVANCE DIRECTIVE
An Advance Directive is a part of patient-centered care—a treatment plan specific to a patient's needs. It provides instructions in your own words.
Self-Check: Advance Health Care Directive
Do you know if the elder has named an individual as agent to make health care decisions if the elder becomes incapable of making his or her own decisions?
Do you know if the elder has named an alternate agent to act for him or her if the first choice is not willing, able, or reasonable available to make decisions for the elder?
Do you know if the elder wants artificial nutrition and hydration and other forms of care?
Do you know if the elder wants cardiopulmonary resuscitation?
Do you know if the elder wants to donate organs or tissues?
Does the elder's primary care agent know where to find a copy of the Power of Attorney document?
©2012. Rev. 2015. MATTESON ELDER CARE SERVICES. (Elder Diary: Starter Kit)
When you have completed your advance directive, you may indicate this with the wallet card that states you have advance directives.
RESOURCES
A Letter to My Primary Health Care Provider Concerning Decisions to be Made at the End of My Life. www.compassionandchoices.org. To download sample of "Letter to my doctor" (-Gentle-Death-A-Letter-to-My-Doctor.pdf).
Advance Health Care Directive (English/Spanish). California Hospital Association. www.calhospital.org/resource/advance-health-care-directive. To download FREE Form 3-1.
GOOD to GO RESOURCE GUIDE. Compassion & Choices MAGAZINE, Special Issue, 2010 Reprint. (800) 247-7421. www.compassionandchoices.org. Chapters include: How to Make Your Health Care Decisions Known, Your Wishes, Glossary, The Conversation.
Hospice by the Bay. (415) 626-5900. www.hospicebythebay.org/index.php/locations/san-francisco. Community services: include Advance Care Planning Seminars, Estate Planning Seminars, and Community Grief Counseling and Support Groups.
My Life My Choices™, Planning for Future Healthcare Decisions. www.hospicebythebay.org/ index. php/about/speakers-bureau. Hospice of Marin Community Education Program.
Physician Orders for Life Sustaining Treatment. http://capolst.org. To download "POLST FOR Patient and Loved Ones."
Anise Matteson is an Advocate for National Healthcare Decisions Day, elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Information is educational only. For specific questions, consult your physician and an attorney.
April 2017
When Your Decision Matters!
by Anise Matteson
Emergency preparedness includes preparing for a medical emergency. Who will speak for you when you cannot speak for yourself?
Your medical emergency could happen one evening when you are on your way home and you are taken to the hospital.
Your medical emergency could happen one evening when you are on your way home and you are taken to the hospital. An Advance Directive will provide your loved ones with the answers they need to assist health care professionals with a treatment plan.”
An Advance Directive will provide your loved ones with the answers they need to assist health care professionals with a treatment plan.
ADVANCE DIRECTIVES
Advance Directive and Durable Power of Attorney provide instructions in your own words to family/caregivers, friends, and health care professionals when there is a significant condition change.
An advance directive is a written document in the form of a living will or durable power of attorney prepared by a competent individual that specifies what, if any extraordinary procedures, surgeries, medications or treatments the patient desires in the future, when he or she can no longer make such decisions about medical treatment (Taber's Cyclopedic Medical Dictionary)
You should have an Advance Directive to specify your decisions in the future regarding health care, end-of-life care, nutrition, hydration, hospice care, No Cardiopulmonary Resuscitation, and organ donation when you become unable to express your wishes. (Examples with supporting documentation: do not hospitalize, autopsy request, feeding restrictions, medication restrictions, other treatment restrictions.)
Secular Health Care Directive
"An optional addendum to your advance directive. The language in this addendum clarifies that admission to a religious-affiliated facility does not imply consent to particular care mandated by the institution's religious policies, and directs a transfer if the facility policy declines to follow the wishes outlined in an advance directive." (CompassionAndChoices.org)
End of Life Options Act
A California law that permits terminally ill adult patients with capacity to make medical decisions to be prescribed an aid-in-dying medication if certain conditions are met. Signed into law by Governor Brown in October 2015, the law went into effect on June 9, 2016. (coalitionccc.org/tools-resources/end-of-life-options-act/)
ELDER LAW
Elder law attorney refers to an attorney who specializes in providing legal services for the elderly, especially in the area of Estate Planning and Medicaid Planning. They handle general estate planning issues and counsel clients about planning for the management of assets and health care with alternative decision-making documents to prepare for the possibility of becoming incapacitated.
Elder law is a specialized area of legal practice covering estate planning, wills, trusts, arrangements for care, social security and retirement benefits, protection against elder abuse (physical, emotional, financial) and other involving older people. (http://definitions.uslegal.com/e/elder-law-attorney)
For an elder law attorney perspective, see Boomer Legal by Helene V. Wenzel, Esq., solo practitioner in Estate Planning and Elder Law, "Let's Talk Boomer Legal and Advance Care Planning": Power of Attorney, Advance Health Care Directive, Physicians Orders for Life-Sustaining Treatment, The Difference Between a "Living Will" and a "Will" (March 2015); and Living Trust, What Happens To The Estate if the Deceased Does Not Have a Will?, Preparing for an Appointment if an Attorney Prepares Documents, The Difference Between "Revocable" and "Irrevocable" Living Trust (April 2015).©2015.
NATIONAL HEALTH CARE DECISIONS DAY
As Advocate for National Healthcare Decisions Day, in 2014 I started Healthcare Decisions Week in San Francisco from April 9 through April 16. I invited San Francisco Public Library neighborhood branches to participate in acknowledging advance care planning.
See the April issue for this year's details.
SAVE THE DATE: APRIL 16.
A day to "inspire, educate and empower the public and providers about the importance of advance care planning."
"…National Healthcare Decisions Day is an initiative to encourage patients to express their wishes regarding health care and providers and facilities to respect those wishes, whatever they may be." (nhdd.org)
The following Self-Check can help you prepare to discuss this important subject with your loved one.
RESOURCES
Advance Health Care Directive. To download form visit the California Health Care Association at cmanet.org.
End of Life Option Act. SB-129. Bill Text.1
Five Wishes – Aging with Dignity. MY WISH FOR: The Person I want to Make Care Decisions for Me When I Can't, The Kind of Medical Treatment I Want or Don't Want, How Comfortable I Want to Be, How I Want People to Treat Me, What I Want My Loved Ones to Know.2
Secular Health Care Directives. For more information contact.3
Seniors & the Law": Guide for Maturing Californians, "PLANNING AHEAD," pp.6-7, State Bar of California educational guide. To request publications contact (888) 875-5297 or visit www.calbar.gov.
Write Your Will Workshop, Write Your Will Seminar and Introduction to Wills & Trusts are held at various branches of the San Francisco Public Library. You can find information on upcoming session in the monthly publication At the Library or sfpl.org.
Anise Matteson is an Advocate for National Healthcare Decisions Day, elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors and Caring Boomers Newsletter, article excerpt ©2012, Information is educational only. For specific questions consult your physician and an attorney.
1. leginfo.legislature.ca.gov/faces/billNavClient. xhtml ?bill_id =201520160SB128
2. agingwithdignity.org/forms/5-wishes.pdf
3. CompassionAndChoices.org
March 2017
Getting Ready for Winter
By Anise J. Mattheson
The holiday season has arrived. On Thanksgiving Day, we reflected on our blessings and asked ourselves: What are you thankful for? As we prepare for Christmas, we [many Christians] will observe Advent—the solemn season of preparation—emphasizing repentance and hope.
Part 2: Hypothermia Senior Smart articles intended to provide solace for families coping with an anticipated loss or who have lost a family member this year: "Coping with the Holidays During Bereavement," December 2014, pp. 15 &18; "Learning from Grief," February 2015, pp. 15, 18 & 19.
I am currently drafting the Session Plan for a Bereavement Roundtable as part of a Seniors Ministry. More details later.
At the end of this article is more information to assist you during the hectic days of preparing for the holidays.
WINTER Writing the December article, today's November weather forecast: sunshine 60-63º, evening 30s to low 40s, rain over the weekend.
Winter has arrived! I encourage you to read and share the October article, "Getting Ready for Winter," p. 23.
Winter is the coldest season of the year—December through early March. Winterlike weather sometimes occurs in November or even earlier, and as late as May. Winter storms produce large snowfalls in some areas. The most snow falls in the western mountains and in much of the northern region east of the Rocky Mountains. Many winter storms bring rain to warmer southern areas.[1]
Remember to keep in touch with your loved ones, or have someone check on them. In addition to hypothermia, dehydration can pose serious problems for seniors during the wintertime.
Hypothermia. Occurs when the body temperature drops below 95ºF as a result of exposure to cold weather, prolonged exposure to indoor temperatures or immersion in a cold body of water.
BODY TEMPERATURE
ETIOLOGY[2] The heart rate and blood pressure decrease during mild to moderate hypothermia—95ºF to 82ºF. Breathing becomes slower and shallower. From 86ºF to 82ºF, the victim becomes unconscious. During hypothermia—64ºF to 59ºF—the action of the heart and the flow of blood stops completely. The electrical activity of the brain also stops at this level.
|
Mild Hypothermia 93.2ºF - 96.8ºF |
NB: Left untreated, hypothermia can eventually lead to complete failure of the heart and respiratory system and death.[3] Seek immediate medical attention
Accidental hypothermia. Occurs, for example, among hunters, sailors, swimmers, climbers, the indigent, homeless persons in winter, and alcoholics due to exposure to wet and cold conditions.[4] RELATED FACTORS[5]
Age: Older adults are more vulnerable to hypothermia because of: 1) the body's ability to regulate temperature and to sense cold may lessen; 2) a medical condition that affects temperature regulation; 3) inability to communicate when they are cold; 4) mobility issues inhibit seeking a warmer location. Mental Status: Dementia (wandering). Medical Conditions: Stroke, severe arthritis, Parkinson's disease, hypothyroidism, diabetes, dehydration. Medications: Antidepressants, antipsychotics, narcotic pain medication and sedatives.
SIGNS/SYMPTOMS[6a]
|
Moderate Hypothermia 86ºF - 93ºF |
Early Signs: Cold feet and hands; puffy or swollen face; shivering (not all individuals shiver); pale skin; slurred or slower than normal speech; sleepiness; anger or confusion. Late Signs: Slow movements, difficulty walking, or clumsiness; jerky arm or leg movements, stiffness; slow heartbeat; slow shallow breathing; loss of consciousness.
FIRST AID[6b] CAUTION: Do not rub arms and legs. Do not apply heating pads or electric blankets. Do not give the person a warm bath. Do not allow the person to consume alcohol.
NB: The condition can present itself differently in older adults. (For example, some seniors will shiver a lot, while others may not shiver or have obvious signs of dangerously low body levels.) Look for cold skin and hands, pale skin, bluish lips and fingernails, confusion, fatigue, weakness and slow breathing.[7]
|
Severe Hypothermia Less than 86ºF |
PROTECTING OLDER ADULTS An elderly person's home should be properly insulated and heated with living areas kept at a temperature of 70º F.[8] The thermostat should never be set below 65º F for a person who is 75 or older.[9]
Drink liquids consistently to prevent dehydration. Postpone outdoor activities when it is very cold outside.
Warm clothing and bedding are essential.[10] (Dress warmly indoors and outdoors—indoors: dress in layers, wear hat or cap; outdoors: wear a hat, a scarf, gloves or mittens, and warm clothing.) Use blankets or throws on your legs and shoulders, especially if you are sitting or lying down for prolonged periods of time.[11] Warm the bed and bedding before going to sleep.[12]
Heaters: Gas-powered: You should have a carbon monoxide detector. Electric: Make sure the cords are not damaged or frayed. NB: 1) Keep all heaters away from flammable materials—at least 2 feet—(e.g., cloth and paper). 2) Make sure the smoke detector is working properly[13]—functioning batteries. (As of July 1, 2015, California has ban the sale of smoke detectors with replaceable batteries. [abc7news.com – July 29, 2015])
Fireplace: Have the chimney and flues inspected. Clean yearly.[14]
RISKS of carbon monoxide poisoning: fireplace, gas heater, lanterns. NB: Never heat your home with a gas stove.[15]
Detectors*: Many local fire departments offer periodic free giveaways that include carbon monoxide detectors and/or smoke detectors. Contact the fire department to find information on their free carbon monoxide detector and similar programs. (www.ehow.com/facts_ 8054315_ can-carbon-monoxide-detectors.html)
The American Red Cross has distributed and installed free smoke alarms in some counties (e.g., Solano County). [Posted: Sep 30, 2015. www.redcross.org/news/press-release...] *NOTE: Due to submission deadline, this information has not been researched for updates.
Seniors who live alone should have someone they can ask to check on them—during very cold winter weather—at least once a day (e.g., a friend, a neighbor).[16]
Fire Extinguisher. A fire extinguisher is a metal container filled with water or chemicals used to put out fires. The kind used depends on the type of fire involved. [13] The extinguisher tells you for what class of fire it can be used. There are four types of fire extinguishers: dry, chemical, water, carbon dioxide and halon. [See: "Weather Forecast Preparedness: Rain, Lightning and Thunderstorm," WSO - June 2016, pp. 17 & 18.]
Readers were asked to contact me if you would be interested in my offering a seminar on how to use a fire extinguisher.
Warming Center. Short-term emergency shelter that operates when temperatures or a combination of precipitation, wind chill, wind and temperature become dangerous. Their purpose is the prevention of death and injury from exposure to the elements. This may include acute trauma from falling objects such as trees, or injury to extremities due to frostbite. A more prevalent emergency which warming centers seek to prevent is hypothermia, the risk for which is aggravated by factors such as age, alcohol consumption, and homelessness.[20]
DEHYDRATION IS A CONCERN According to Amedisys Home Health Care [literature from Boomer/Senior Expo several years ago], dehydration is one of the top 10 causes of hospital stays among people 65 years and over.
ETIOLOGY: Seniors are especially prone to becoming dehydrated because they eat and drink less than younger people. People also feel less thirsty during the winter and so are more prone to not drinking enough as they should.[17] AT-RISK are older adults who do not drink enough water.
SYMPTOMS: The person may appear flushed and have dry skin and mucous membranes, cracked lips, loss of skin turgor, and oliguria. Mental confusion and hypotension indicate a very serious dehydration.[18] Weakness or lightheadedness (particularly while standing), dark urine.[19]
ADVERSE EFFECTS: Results in fatal shock, acidosis, uremia, cellular disruption, renal failure, or death.
Parish Nurse. Nurses also provide services to congregation of a religious faith as a Visiting Nurse or Parish Nurse—another resource for the homebound.
Faith Community Nursing, also known as Parish Nursing, Parrish Nursing, Congregational Nursing or Church Nursing is a movement of over 15,000 registered nurses. (en.wikipedia.org/wiki_Faith_ community_ nursing)
Faith Roberts, RN, BSN (carle.com) defines a parish nurse as a registered nurse who acts as a vital link between the faith and medical communities. [See: "Defining the Parish Nurse," WSO - April 2014, pp. 3 & 14.]
ANNOUNCEMENTS
Medicare: Open enrollment ends December 7, 2016.
Covered California: Apply by December 15, 2016 to make sure your coverage begins on January 1, 2017. Open enrollment for private health coverage through Covered California begins Nov. 1, 2016 and ends on Jan. 31, 2017. (Tax penalty for not being covered: $695 or 2.5 percent of your income, minus federal tax filing threshold whichever is greater.)[www.coveredca.com]
MERRY CHRISTMAS AND LIFE'S BEST IN 2017!
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Seminars by announcement. Information is educational. For specific questions and medical care, contact your physician.
December 2016 / January 2017
StrokeSmart magazine: Issue 4 2016 is the last issue subscribers will receive this year. The National Stroke Association is asking subscribers to consider sending a donation to ensure that StrokeSmart remains free for subscribers who receive a print copy each quarter. To contribute: call (800) 787-6537 or donate online at www.stroke.org/strokesmart2016.
For this writer's articles, see WSO: "Stroke Survival: Understanding Stroke," June 2014, p. 9. "Stroke Survival: Stroke Aftercare" (The "Saebo Reach" Splint), July 2014, p. 9. "Adaptive Clothing for Stroke Survivors," (Simple Closures), September 2014, p. 6. "Stroke Survival: Assistive technology Products" (Mac OS X & Windows Software, October 2014, p. 8.
RESOURCES
Frostbite and Hypothermia, March 2007. American Red Cross. A guide sheet for information on: Signals of frostbite include; What to do for frostbite; Signals of hypothermia include; What to do for hypothermia. [m4340104_Frostbite_and_Hypthermia.pdf]. "Talking about Disaster: Guide for Standard Messages, Frostbite/Hypothermia-1" is available at www.redcross.org.
Lifeguardmonitor.net. (877) 877-0197. Lifeguard Monitoring systems (Senior Medical Alarm) provide a Wireless Personal Emergency Response System for: Fall Detection – detects if you fall and notifies the monitoring station; Inactivity Monitoring – notifies the monitoring station when no activity has been detected; Smoke Detection – alerts you and emergency services when smoke is detected; Carbon Monoxide Detector – gives early warning of carbon monoxide poisoning and alerts monitoring system.
Medical Alert® + Alzheimer's Association Safe Return®. A 24-hour emergency response service that provides assistance when a person with dementia wanders and becomes lost or has a medical emergency. Enroll at (888) 572-8566 or alz.org/safereturn. [Brochure #770-10-0003, p. 29.]
National Weather Service. Provides active alerts, current conditions, forecasts, weather safety, education. www.weather.gov. Recorded weather: (831) 656-1725.
Silver Alert: A public notification system in the United States to broadcast information about missing persons—especially senior citizens with Alzheimer's disease, dementia or other mental disabilities—in order to aid in their capture. http://en.wikipedia.org/wiki/Silver_Alert.
We Check On You. www.wecheckonyou.com. (888) 932-5668. A national telephone reassurances service for homebound persons, disabled and seniors that wish to remain in their homes instead of being institutionalized. This service is important for people who are without family, are too far from family and who may feel lonely and isolated. Provides regular phone calls to your loved ones.
1,2. The World Book Encyclopedia
3. www.mayoclinic.org/diseases-conditions/hypothermia/basics/definition/con-20020453
4. Taber's Cyclopedic Medical Dictionary
5. www.mayoclinic.org/diseases-conditions/hypothermia/basics/risk-factors/con-20020453
6,11. www.pharmacytimes.com/publications/issue/2016/january2016/hypothermia-in-seniors-stay-safe-andwarm-this-winter
7,14,15. www.generalsolutions.net/four-winter-safety-tips-for-seniors/
8,10,12,16. www.encyclopedia.com/medicine/diseases-and-conditions/pathology/hypothermia
9,13,17. www.agingcare.com/Article/cold-weather-protection-for seniors-148625.htm
18. Encyclopedia and Dictionary of Medicine, Nursing and Allied Health
19. Amedisys Home Health Care
20. https://en.wikipedia.org/wiki/Warming_center20
MERRY CHRISTMAS AND LIFE'S BEST IN 2017!
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Seminars by announcement. Information is educational. For specific questions and medical care, contact your physician.
Getting Ready for Winter
The weather is noticeably warmer—on some days reaching 70ºF. September 22 will be the first day of [autumnal equinox] autumn. After Thanksgiving the weather will begin to getcolder. Start now to get ready for winter.
Maybe you know a senior who would welcome an act of kindness to help them get ready for winter.”
Hypothermia is the cause of at least 1,500 deaths a year in the United States. It is more common in older people and males, and has caused deaths among soldiers during wars.[1]
BE PREPARED
Preparation should include:
• Checking your winter wardrobe for mending, replacing, and washing or dry cleaning.
• Warm clothing (hat, scarf, gloves, coat, sweaters, slacks, and socks).
• Warm shoes and slippers.
• Extra food and water.
• Flashlight and batteries.
• Advance Directive.
• Comforter for added warmth to bedding.
• Wash blankets or take to the cleaners.
• Heating system [furnace] is working properly.
• Weatherization (windows and doors) to eliminate drafts.
• Drapes and curtains (insulate the room).
• Cellular blinds. (The air inside the honeycomb structure creates a layer of insulation to help reduce heat cost.[2]
COLD WEATHER RELATED ILLNESS
Older adults are subjected to cold weather related illness due to prolonged exposure to a cold environment indoors (inadequately heated home or in an air-conditioned home.)[3]
HOMEBOUND
The homebound in some religious faiths are referred to as shut-ins.
Webster's Dictionary defines homebound as confined to the home, and shut-in as confined to one's home or an institution by illness or incapacity.
Degrees of confinement varies from one week, one month, to never leaving the home except in the case of emergencies, or no more than two days per week.
To learn more about "homebound ministry" see the October 2013 article "Homebound Survival" on page 8.
The article also includes questions for boomer and senior readers:
• If you are homebound, why?
• What are the challenges?
• What tools can help you age in place?
Your feedback is invited.
October 22 is Make A Difference Day. A day when people in the United States perform acts of kindness. Maybe you know a senior who would welcome an act of kindness to help them get ready for winter.
RESOURCES
Pacific Gas and Electric Company. www.pge.com/care. (800) 743-5000.
• CARE Program (California Alternative Rates for Energy). (866) 743-2273. Provides a monthly discount on energy bills for income-qualified households and housing facilities.
• REACH (Relief for Energy Assistance). (415) 648-0260. PG&E sponsored program administered by the Salvation Army. Provides financial assistance to low-income households. For more information call (800) 933-9677.
• FERA (Family Electric Rate Assistance). (800) 743-5000. Provides a monthly discount on electric bills for income-qualified households of three or more persons.
• LIHEAP (Low Income Home Energy Assistance Program). (866) 675-6623. Provides bill payment assistance, emergency bill assistance and weatherization services. (Department of Community Services and Development.)
• Medical Baseline. Provides services at the lowest rates to customers with documented needs. For more information call (800) 743-5000.
• Energy Partners. Free energy education and weatherization to income-qualified customers. For more information call (800) 989-9744.
PG&E also provides payment arrangements (payment schedules) and Balanced Payment Plan).
PG&E offers programs for: 1) Residential Single-Family, and 2) Tenants Sub-Metered Facility, per CARE Program Application for Residential Single Family Customers (01-9077 Rev. 06/01/06).
Canon Kip (Canon Kip Senior Center) Aging and Disability Resource Center. (415) 487-3370. Helps seniors and persons with disabilities to process their Pacific Gas & Electric bills with "HEAP Program."
• Home Energy Assistance Program from the Economic Opportunity Council (EOC) provides bill payment assistance once per year to your PG&E bill. Eligibility: Resident of San Francisco. Required documents for application.
Source: Episcopal Community Services of San Francisco, May 2010, Aging and Disability Resource Center. (flyer)
NOTE: Due to submission deadline, this list has not been researched for updates.
FOOTNOTES
• https://en.wikipedia.org/wiki/Hypothermia
•IKEA catalog
•www.mayoclinic.org/diseases-conditions/hypothermia/basics/causes/con-20020453
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Seminars by announcement. mattesonecs@yahoo.com.
October 2016
WEATHER FORECAST PREPAREDNESS: HOT WEATHER
As I am writing this article, the weather is 62° and sunny. Bay Area forecast (San Francisco chronicle, August 16): "Coastal fog and low cloud will be possible again, particularly in the morning. Skies will be mostly sunny across the interior, with highs reaching the middle 90s in spots."
Where is summer? According to a San Francisco meteorologist, forecast for San Francisco: "higher temperatures in two months."
BE PREPARED
When the body starts to perspire, it is signaling you are becoming overheated.
Perspiration is a means of removing heat from the body and is increased by temperature and humidity.—midsummer temperatures or during strenuous exertion.[2] The chief role of perspiration is to maintain the body temperature at a constant level. Diminished or total absence of sweating may occur in the elderly.[3]
STATISTICS
A CDC study of the five years ending in 2003 attributed 3,442 deaths to exposure to extreme heat, about 689 per year.[4]
UV radiation is considered the main cause of nonmelanoma skin cancer, striking more than a million, and more than 250,000 Americans, respectively, each year. UV radiation also frequently plays a key role in melanoma, which kills more than 8,000 Americans each year.[5]
HEAT-RELATED ILLNESS
Hot weather subjects older adults age 65 and over to heat-related illness.
ETIOLOGY: Difficulty adjusting to sudden changes in temperature⁶; Chronic medical conditions that changes the body's response to heat;⁷ Prescription medications that impair the body's ability to regulate its temperature or that inhibit perspiration⁸; Dehydration (not drinking enough water or binging on alcohol or caffeinated drinks)⁹ Diminished or total absence of sweating.[10] RELATED FACTORS: Age: Elderly have lower body temperatures. Exercise: Temperature rises with moderate to vigorous muscular activity. Hyperthermia: Body temperature elevated above the normal range.[11] Severe hyperthermia: Body temperature of 104°F or higher.[12] Forms: Heat stroke, heat cramps, and heat exhaustion. Medical Conditions: Heart disease, fever, obesity, mental illness, poor circulation, or a sunburn.[13] Medications: Diuretics (likely to cause dehydration). Antihistamines (can make the body more sensitive to sun exposure and high temperatures). [14] SYMPTOMS: Dizziness, fatigue, vomiting, headache, fast heartbeat, shortness of breath, or a high temperature (greater than 104°F). [Note: Get immediate medical care.[15] ADVERSE EFFECTS: Heat stroke (death or permanent disability if emergency treatment is not provided); sunstroke, heat exhaustion, heat cramp, heat rash (prickly heat).
PRECAUTION: Wear clothing that is lightweight, light-colored, and loose-fitting; take frequent rest breaks, especially during strenuous activities; ingest adequate amounts of fluids; avoid hot, humid environments if possible; use a fan or air conditioner; seek air-conditioned areas (e.g., cooling centers); avoid midday sun; wear a hat (wide-brimmed); sunglasses or solar shield that block both ultraviolet A and ultraviolet B rays[17]; sunscreen as a defense against damage to the skin by ultraviolet rays[18]; umbrella as a sunshade; lip balm. [Note: Even resting in a shaded area, seniors can overheat on a scorching summer afternoon. [19]
PROTECTING OLDER ADULT
Visit older adults at risk at least twice a day and watch them for signs of heat exhaustion or heat stroke. Encourage them to increase their fluid intake by drinking cool, nonalcoholic beverages regardless of their activity. [Warning: If their doctor generally limits the amount of fluid they drink or they are on water pills, they will need to ask their doctor how much they should drink while the weather is hot.] Take them to air-conditioned locations if they have transportation problems.[20]
HEAT STRESS AND OLDER WORKERS
According to Mike Sterns ("Hot conditions stress older works"), "studies show that older workers are more susceptible to negative consequences from heat exposure."[21]
Every year thousands of workers suffer from some form of injury or illness from becoming overheated on the job some even die.[22]
At higher risk are workers wearing protective gear that includes tight-fitting clothes that do not breathe.[23]
Once the heat index gets into the 90s and above, threats start getting severe and precautions need to be raised.[24]
Preventive measures suggested by OSHA: Increase the amount of fluids you drink; take frequent breaks in cool places; if working in the sun use a sunscreen rated SPF15 or higher; a wide-brimmed hat; wear light, loose-fitting clothes.[25]
[Note: If you experience weakness or dizziness, stop working immediately and rest in a cool place.[26]
Weather Forecast
Heat index. Takes both temperature and humidity into account to give a more accurate account of how conditions affect the body.[27]
High heat index. Indicates an increased risk of heat stroke due to humid air that makes it more difficult to breathe normally.[28]
High UV index. Implies that a person is likely to get sunburned even under cloud cover.[29]
HEATSTROKE
Heatstroke is a form of hyperthermia that results from prolonged exposure to high temperature (normally air temperature of greater than 79°F and relative humidity greater than 70%.)[30] It can cause death or permanent disability without medical treatment.[31]
CLASSIFICATION: Exertional heat stroke (EHS) is due to overexertion in hot weather. Non-exertional heat stroke (NHS) occurs in climatic extremes and affects the elderly, infants and chronically ill.[32] ETIOLOGY: In extreme heat, high humidity, or vigorous physical exertion under the sun, the body may not be able to sufficiently dissipate the heat and the body temperature rises, sometimes up to 106°F or higher. A dehydrated person may not be able to sweat fast enough to dissipate heat, which causes the body temperature to rise.[33] SIGNS AND SYMPTOMS: High temperature; absence of sweating, with hot red or flushed dry skin; rapid pulse; difficulty breathing; strange behavior; hallucinations; confusion; agitation; disorientation; seizure, and/or coma.[34] TREATMENT: It is important to reduce the temperature as quickly as possible.[35] PREVENTION: See Heat-Related Illness.
SUNSTROKE
Sunstroke is a heat stroke caused by prolonged exposure to direct, intense rays of sun or from general excessive heat. [36] ETIOLOGY: There is a disturbance in the body's heat-regulating mechanism [that controls perspiration], particularly when there is little or no circulation of air. [37] Exposure to the sun varies depending on elevation (i.e., sea level, time of day, the reflection, and the wind.)[38] Individuals more susceptible: the elderly with underlying chronic disorders; those who use alcohol and atropine-containing drugs; those with certain skin disorders.[39] SYMPTOMS: Headache, dizziness, weakness, extremely high fever, absence of sweating, convulsions, sudden loss of consciousness; may be fatal.⁴⁰ TREATMENT: Immediate steps must be taken to lower the body temperature.[41] Seek medical attention. PREVENTION: Adequate ventilation and hydration. Wear proper clothing. Vigorous activities should not be undertaken in extremely hot weather. [42]
HEAT EXHAUSTION
Heat exhaustion (heat prostration) is an acute reaction to a hot, humid environment [43] the result of over exposure to heat or to the sun. ⁴⁴ If untreated, it can progress to heat stroke.⁴⁵ ETIOLOGY: Long exposure to extreme heat or too much activity under a hot sun causes excessive sweating, which removes large quantities of salt and fluid from the body; When the amount of salt and fluid in the body falls too far below normal, heat exhaustion may result[46]; A milder form of heat-related illness that can develop after several days of exposure to high temperature and inadequate or unbalanced replacement of fluids.⁴⁷ SIGNS AND SYMPTOMS: Heavy sweating, paleness, muscle cramps, tiredness, weakness, dizziness, headache, nausea or vomiting, fainting, skin may be cool and moist, pulse rate fast and weak, breathing fast and shallow.⁴⁸ [Note: It does not take all of these symptoms to indicate exhaustion.⁴⁹ TREATMENT: Seek medical attention. PREVENTION: Avoid long exposure to sun or heat; drink plenty of water; regular breaks from work; in the event of weakness or dizziness stop working immediately and rest in a cool place. ⁵⁰
SUNBURN
Sunburn (erythema solare) is a discoloration or inflammation of the skin due to overexposure to the sun.[51]
ETIOLOGY: Damage from sunlight is chiefly due to the effects of ultraviolet rays, the short heat rays,[52] between 290 and 320nm (sunburn rays), produce the characteristic changes in the skin [53] and may become a second degree burn (blistered and sore).⁵⁴
SYMPTOMS: Reddening of the skin. Severe sunburn: blisters, dizziness, headache, fever, vomiting.⁵⁵ Serious signs: fever of 102ºF or higher, chills, severe pain, sunburn blisters that cover 20% or more of your body; dry mouth, thirst, reduced urination, dizziness, fatigue—signs of dehydration.[56] TREATMENT: Ointment, lotions, or creams. For cases of severe sunburn, consult a physician. [57] PREVENTION: Stay indoors between 10AM and 4PM, if cannot, stick to shady spots; wear sun-protective clothing (broad-brimmed hat, long-sleeved shirt and pants, UV-blocking sunglasses); apply sunscreen. [58]
Ultraviolet Radiation (UV Radiation) [59]
UV radiation is part of the electromagnetic (light) spectrum that reaches the earth from the sun. Wavelengths are classified as UVA, UVB or UVC. Most UVC is absorbed by the ozone layer and does not reach the earth.
UVA and UVB play an important role in conditions such as premature skin aging, eye damage (including cataracts), and skin cancer. They also suppress the immune system.
UVA rays. Are present with relatively equal intensity during all daylight hours, throughout the year; penetrates the skin more deeply than UVB; and is the dominant tanning ray.
UVB rays. Are the chief cause of skin reddening and sunburn; play a key role in the development of skin cancer and a contributing role in tanning and photoaging; intensity varies by season, location and time of day; most significant amount of UVB is between 10AM and 4PM from April to October; can burn and damage skin year-round, especially at high altitudes and on reflective surfaces (snow or ice).
HEAT CRAMPS
Heat cramps is a spasm accompanied by pain in the muscles in the arms and legs or the abdominal muscles; [60] may be accompanied by symptoms of heat exhaustion .[61]
ETIOLOGY: Muscle spasm caused by the excess fluid or electrolyte loss that occurs with profuse sweating.[62] Are usually in conjunction with strenuous activity.[63] Can occur during exercise or work in a hot environment or begin a few hours later.[64] At Rist: Doing work in a hot environment; Sweating a great deal during exercise and drink large amounts of water or other fluids that lack salt.[65] SYMPTOMS: Muscle spasms that are: painful, involuntary, brief, intermittent, usually self-limited (go away on their own).[66] TREATMENT: Stop activity and rest in a cool place. Drink juice or a sports beverage. DO NOT take a salt pill unless directed by a doctor. To avoid the risk of heat exhaustion or heat stroke, continue resting for several hours after the pain goes away. Seek medical attention, if heat cramps do not subside within one hour of resting.[67] PREVENTION: Avoid or keep activity to a minimum; frequent rest periods; drink ample amounts of water; wear light clothing and a hat to protect the head.[68]
HEAT RASH
Heat rash (prickly heat), [malaria rubra] is an inflammatory skin rash due to an inability of the skin to adapt itself to an increase in temperature and humidity during periods of heat and humidity. [69]
ETIOLOGY: Occurs when sweat glands are blocked and the sweat produced cannot get to the surface of the skin to evaporate causing inflammation that results in a rash.[70] May occur as a side effect of some medication.[71] SYMPTOMS: Red clusters of pimples or small blisters on the neck and upper chest, groin, under the breasts, and in elbow creases[72]; prickly or itchy feeling to the skin [prickly heat].[73] TREATMENT: Move to a cooler environment; keep the affected area dry.[74] If rash persists, consult a physician.[75] If the area becomes infected, medical treatment is necessary.[76] [Note: If the areas are not properly treated, secondary infection may result with pus formation and rapid spread.[77]] PREVENTION: Wear light clothing; frequent bath or shower; drink liquids; air-conditioning or fan; avoid hot, humid conditions.
SOLAR SHIELD
Solar shield. Solar Shield® ClipOns attach to prescription eyeglasses or readers for sun-protection. Provide UVA/UVB protection. [78]
COOLING CENTERS
Cooling centers. An air-conditioned public facility where people may go for relief during periods of extreme heat.[79] The Department of Adult & Aging Services (DAAS) list the following senior centers in the area: OMI Senior Center [fans], 65 Beverly Street, 587-1443 and YMCA-Stonestown Branch Annex [fans], 3150 20th Avenue, 252-7135.
RESOURCES
Senior Centers with AirCon or Cooling Fans (Cooling Centers for Seniors – 400385). Department of Adult & Aging Services (DAAS) list of cooling centers in San Francisco. http://sf311.org/senior-centers-aircon-or-cooling-fans-cooling-centers-400385.
LIHEAP. (866) 675-6623. Provides grants and money for cooling, utility, and air conditioning bills. Apply anytime. Aid is usually offered for people who are within 75% of state's median income level. www.needhelppayingbills.com/cooling_bill_assistance_progra.html.
Occupational Safety & Health Administration (OSHA). Information on heat exposure can be found at www.osha.gov/SLTC/heatstress/. Provides small businesses with free on-site consultations. For more information, call (800) 321-6742. www.oshaeducationcenter.com/articles/preventing-heat-illness.aspx.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Seminars by announcement. Information is educational. For specific questions and medical care, contact your physician. mattesonecs@yahoo.com.
1,11,17,18,30,43,45,51,52,53. Taber's Cyclopedic Medical Dictionary
2,3,10,26,37,39,40,41,44,46,50,54,60. Encyclopedia and Dictionary of Medical, Nursing, and Allied Health
4. http://Listosaur.com/miscellaneous/Top-5-Weather-related-causes-of-death-in-the-us/
5,59. www.skincancer.org/prevention-uva-and-uvb
6,7,8,20,47,48. http://emergency.cdc.gov/disaster/extremeheat/older-adults-heat.aspx
9,13,22,23,24,25,27,28,31,,63,67,72,74. www.oshaeducationcenter.com /articles/preventing-heat-illness.aspx
12,33. www.medicinenet.com/heat_stroke/article.htm#heat_stroke_facts
14,19,29. www.dallashomecareassistance.com/protecting-seniors-from-heat-stroke/
15,64,65,66. www.webmd.com/fitness-exercise/heat-cramps
21. www.ishn.com/article/104119-hot-conditions-stress-older-works?v=preview
34. www.medicinenet.com/heat_stroke/page2.htm
35. The World Book Encyclopedia
36,38,55,57,61,62,68,69,75,77. The New Illustrated Medical and Health Encyclopedia
42. http://medical-dictionary.thefreedictionary.com/sunstroke
56,58. www.webmd.com/skin-problems-and-treatments/guide/sunburn#2
70,73,76. www.medicinenet.com/heat_rash/article.htm
v71. www.medicinenet.com/heat_rash/page3.htm
78. http://solarshield.com/solar-shields-clip-ons/
79. www.google.com/?gws_rd=ssl#q=define:++cooling+centers
September 2016
Weather Forecast Preparedness: Tornado, Flood, Hurricane and Wind
Tornadoes occur in the United States during the spring and early summer, mostly in the Midwest and states that border the Gulf of Mexico—Nebraska, Kansas, Oklahoma, Texas, Iowa, Missouri, Illinois, Mississippi, Indiana, Alabama, Georgia, and Florida.¹
In the United States, Most hurricanes affect areas near the Atlantic Ocean or the Gulf of Mexico—Texas, Florida, New England, New York, North Carolina, Mississippi, Louisiana, New Jersey, Pennsylvania, and Virginia—from June to November—most of them in September.²
If you have a loved one who is a boomer or senior living in states subject to severe weather conditions, keep in touch during the season or have someone check on them.
If you are traveling or plan to travel in the future, please read Spencer Christian's contribution to "Weather Forecast Preparedness" thoroughly. (See the June issue, "Weather Forecast Preparedness: Rain, Lightning and Thunderstorm," for the health care professional's perspective and resource list.) You may want to take these articles with you when traveling and a copy for your disaster kit and to share with your loved ones.
Safe travels.
TORNADO
Tornadoes are spawned by violent thunderstorms that create extremely unstable conditions in the atmosphere. The Bay Area is fortunate to be situated in a region where thunderstorms are rare, and tornadoes are even rarer. However, there are some important facts we should remember about tornadoes. They are the most dangerously violent of all storms, and are capable of generating winds over 200 miles per hour. Because tornadoes are so powerful, it doesn't matter whether windows in a home are open or closed—they are still likely to be shattered by the winds.
The safest place to be during a tornado is in a low-lying area. In your home, that means a basement, storm shelter, or lowest floor in the house. If possible, gather all members of the household in that low-lying area and try to cover yourselves with a large cushion, mattress, or blanket—if you can't get below ground level.
Motor homes are extremely vulnerable to tornadoes. Sturdier structures (buildings or shelters) will offer much greater protection.
If you're driving, don't try to outrun the tornado. If you can determine the direction in which the tornado is moving, drive at a 90-degree angle away from it. Also, if time permits, seek a ditch, valley, or other low-lying area. Then, get out of the car and crouch as low to the ground as possible, covering your head and face with your arms, or a blanket if you have one.
FLOOD
Floods occur when heavy and/or continuous rain produces a greater volume of water than the ground can absorb and more than rivers and other bodies of water can contain. Floods are most common in low-lying coastal areas and river flood plains. Flooding may last only a few hours or several days or weeks, depending on how extensive and severe the flooding is. Flood waters can produce costly and permanent damage to homes. If there is a flood warning in your area, try to move valuable possessions to the highest possible location in your home, and obey evacuation alerts if they are issued. Flood waters can quickly become contaminated with infectious bacteria. For your safety, do not attempt to drive or walk through deep puddles or pools of water. If your car stalls in rising water, quickly abandon the car and seek higher ground.
MEDIA WARNINGS
All electronic and digital media provide frequent and ongoing alerts during all forms of extreme weather. That includes radio and TV stations, weather apps on mobile devices, and numerous websites online.
Warnings and alerts from the media are issued in many forms. Radio and TV stations will often interrupt regular programming with severe weather alerts; they post warnings on their websites; and they use social media—Twitter, Facebook, Instagram, etc.—to post urgent weather information. News and weather apps are also offered by print and broadcast media for the specific purpose of providing severe weather updates.
HURRICANE
When travelers are visiting an area that is hurricane prone, they should pay careful attention to local weather forecasts and take seriously all alerts and warnings related to evacuation, flooding, dangerous wind gusts, travel restrictions or delays, etc. Although hurricanes can be very destructive, they tend to move slowly and in predictable paths. Therefore, those who are attentive will have time to either prepare for a hurricane's impact or move out of its path.
WIND
Some descriptive words used regularly in weather forecasting for the Bay Area to inform the public are:
Light winds/light breezes: Generally under 10 miles per hour.
Breezy: Generally 10 to 20 miles per hour.
Windy: Generally sustained winds over 20 miles per hour, with occasional gusts that are 25 to 35 miles per hour or higher.
Media Warnings
Local Bay Area media will issue alerts to help the public prepare for potential wind damage whenever we experience a pattern of sustained strong winds. Some of the possible hazards are: downed trees and power lines, power outages, increased fire danger, personal injury, property damage, dangerous driving conditions, and many more. The possibility of trees being uprooted is greater when the ground is saturated by rainfall. All of these factors are incorporated in weather preparedness reporting, which we provide on the following platforms: regularly scheduled newscasts, live "cut-ins" which interrupt regular programming, our websites, news and weather apps, Facebook/Twitter/social media.
©Information courtesy of Spencer Christian, Weather Anchor, ABC 7/KGO-TV.
1,2. The World Book Encyclopedia
Anise J. Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors.
July 2016
Weather Forecast Preparedness: Rain, Lightning and Thunderstorm
By Anise J. Matteson
As I am writing this article, the weather is 65º and sunny. The forecast for later in the week is for a chance of rain in the North Bay. (Then, it likely will rain in San Francisco.)
I decided on the weather for a series of articles after my experience with the force of the "gusty winds" of 45 miles per hour announced in weather forecasts on Sunday, April 24, felt as if they would blow in the side of the house.
Stories of seniors who have homes and they are thinking, 'Well I can't climb the stairs much anymore' but where am I going to go? I'd like to stay in my neighborhood…”
San Francisco focuses its attention on earthquake preparedness, since the city is prone to earthquakes. Rainstorms are just as disastrous. They cause flooding, property damage, uprooted trees, and death.
This article will address the issues from a health care professional's perspective for concerned boomers and seniors managing self-care, or who have an aging loved one. In Part 2, weather-related issues will be addressed by weather forecaster Spencer Christian.
Warm weather brings an increase in tornados and lightning—the Atlantic hurricane season officially begins June 1. Weather events that draw the most media coverage and evoke our deepest fears, hurricanes and tornadoes.22
BE PREPARED
In March and April, I focused on advance care planning and the importance of an Advance Directive if you are unable to speak for yourself. A change in the weather is a reason to have an Advance Directive.
When there is little time to evacuate you will need to grab important papers, wallet with ID, keys, medications and eyeglasses. A valuable RESOURCE—"grab & go binder" (health and other important information)—Elder Diary: Starter Kit, Matteson, ©2007, addresses organizing important documents. For more information, see resource list. A list of emergency supplies organized by J. Matteson is available upon request.
When heavy rain is expected, precautionary measures should include sandbags, keeping extra food and water, and a relocation plan.1
Please contact me if you would be interested in my offering a seminar on how to use a fire extinguisher.
PREVENTIVE MEASURES 2
A rainstorm is a type of extreme weather which can produce heavy rain, poor visibility, and sometimes thunder and lightning. Rainstorms are formed sometimes from large weather systems (hurricanes, cyclones, etc.). As the weather systems move inland and start dissipating, they lose energy. Then they turn into ordinary thunderstorms, then rainstorms.3
A thunderstorm is a storm accompanied by lightning and thunder.4
For your safety, preparedness instructions insist adhering to the following preventive measures: Check drainage systems regularly. Secure objects that can be blown by severe wind (i.e., lawn furniture, outdoor decorations, trash cans, hanging plants).5 Do not leave home unless absolutely necessary; follow weather forecasts. Do not allow children to play outside. Stay away from windows and metal doors; stay off porches.6 Do not lie on concrete floors and do not lean on concrete walls.7 Lightning may cause fire. Have a fire extinguisher—A-B-C type accessible. Keep emergency and first aid bags ready. Keep flashlights available for backup lighting. If there is a call for evacuation, comply.
During a thunderstorm: Unplug the power supply for home appliances to protect them from the passage of a thunderbolt through the electric current. Move immediately to the nearest building, or to your car. Avoid standing under trees and electricity poles. Construction workers should avoid working or standing in upland areas or on the roofs of buildings under construction. Avoid contact with anything metal—motorcycles, golf carts, golf clubs, and bicycles.8
To avoid electrical accidents at home:9 Never touch anything electrical with wet hands or bare feet. Use caution when operating electrical appliances near water sources and always switch off after use. Appliances must be discarded immediately if they have been immerged in water. Always keep clear of overhead power lines.
When driving: Check information on the latest road conditions and closures due to high water.10 Be aware of the changes that could occur to the roads as a result of changing weather conditions. Heavy rain can produce slippery road surfaces. Stopping quickly on wet pavement is more difficult. Pavement markings will be harder to see. 11 Turn on low-beam headlights. Do not use the car to navigate in the flooded areas, (turn around and go another way 12). Drive with extreme caution—potential for landslides or limited visibility. If you are in the car and strong winds are blowing, leave the car and head to the nearest safe place.
HOLIDAYS DURING THE RAINY SEASON
If you are caring for an elderly loved one, the following suggestions are excerpts from Elder Caregiver's Newsletter, ©October ٢٠٠٣:
Mobility: Make sure the tips of assistive devices are well-maintained and in good condition. Have someone with you for transferring to car and buildings. Wear good, safe shoes. Get plenty of rest before and after the event so that you will not become fatigued. Have a wheelchair when needed. Use safety ramps and access, if possible. Watch floors for wet spots. Choose a time that is not peak hours for shopping. Have an emergency system to call for help. (e.g., cellphone). Keep oxygen safe, transportable; check the equipment; make sure you have enough oxygen.
Traveling: Call ahead for airline assistance on and off plane. Let public transportation services know that they will have an individual that needs special assistance. Use an alternative to public transportation. Suggestions provided by Sharol, Physical Therapist.
Writer's comments: Wear shoes that are: appropriate for weather conditions; comfortable and with the appropriate heel height, if doing a lot of walking. Remember rain gear: raincoat and rain boots in lieu of an umbrella; protective wheelchair cover. Consider a fanny pack or backpack to carry the necessary items so that your hands are free if pushing a wheelchair or providing ambulatory assistance.
FIRE EXTINGUISHER
A fire extinguisher is a metal container filled with water or chemicals used to put out fires. The kind used depends on the type of fire involved.13 The extinguisher tells you for what class of fire it can be used.
There are four types of fire extinguishers: dry chemical, water, carbon dioxide and halon.
Classification labels include A – wood, paper, and ordinary flammables; B - liquid flammables, such as greases, gasoline and oils; C - electrical fires; D - flammable metals; K - commercial restaurants and cooking fires. Some extinguishers may have multiple label ratings. (e.g., ABC Kidde Dry Chemical Extinguisher uses include: A – Trash, Wood, Paper; B – Liquid, Grease; C – Electrical Equipment.)
Maintenance instructions: check the pressure indicator and inspect extinguisher monthly, or more frequently if exposed to weather or vandalism; indicator pointer must be in the green area. If indicator is not in green area, extinguisher will not work properly and must be discarded.14
NOTE: A fire extinguisher feels heavy even when empty [per indicator].
Disposal: All fire extinguishers that are made entirely of metal can be refilled or recharged if necessary. Contact the fire department for fire extinguisher recharging companies. 15
If the extinguisher is empty, take the canister to any recycling facility that processes steel. If the extinguisher is full, or partially full, the local fire company can safely discharge it for you. Afterwards, take it to a recycling center. Some fire companies even recycle the extinguisher for you.
Check with the local waste management facility to verify that it accepts discharged fire extinguishers with household trash. Dry chemical and halon extinguisher may be considered hazardous—if so, you will have to take them to a local hazardous waste center for disposal.
Extinguishers made prior to 1960 can be very dangerous. These extinguishers may contain carbon tetrachloride—a known carcinogen. Use extreme caution when handling older extinguishers and contact the fire department for guidance on how to transport and dispose of them safely.
STATISTICS
Flood: In the past 5 years all 50 states have experienced floods or flash floods. 16 Flash flooding is responsible for more fatalities—more than 140 annually—than any other thunderstorm-associated hazard. 17
El Nino (February 2, 1998) – DR 1203. Severe and widespread landslides triggered by intense rain all winter occurred in many counties including San Francisco, which was declared a federal disaster area. Overall, resulted in 17 deaths and $550 million in damage.18
Conditions resulting in a flood: Hurricanes, overtopped levees, outdated or clogged drainage systems and rapid accumulation of rainfall, winter storms and snowmelt.19
Lightning: Is one of the top three storm-related killers in the United States. On average in the U.S., lightning kills 51 people and injures hundreds more. People struck by lightning often report a variety of long-term debilitating symptoms. Most lightning deaths and injuries occur when people are caught outdoors in the summer months during the afternoon and evening. 20
Lightning Fatalities by State, 2005-2014: California.7 Rank: 11-20. Source: Storm Data. (lightningsafety.noaa.gov)
U.S. Lightning Fatalities, 2016: Five so far this year. Female. 1 Male. 4 (National Weather Service. www.lightningsafety.noaa.gov/fatalities)
NATIONAL FLOOD INSURANCE PROGRAM
In 1968, Congress created the National Flood Insurance Program (NFIP) to help provide a means for property owners to financially protect themselves. Participating communities agreed to adopt and reinforce ordinances that meet or exceed FEMA requirements to reduce the risk of flooding. Congress mandated federally regulated or insured lenders to require flood insurance on properties that are located in areas at high risk of flooding. 21
PROTECTIVE CLOTHING (WHEELCHAIR USERS)
Your loved one, too, needs to be protected from the rain. There are numerous protective clothing on the Internet for wheelchair users: capes and ponchos that cover for the top half of the body with extra length at the front for knee protection. You may want to visit Amazon.com and Pinterest to select your preference. The Silvert's Unisex Lined Wheelchair Poncho, a winter poncho with zipper is water repellent is available at www.1800wheelchair.com. (800) 387-7088. Do not forget rain boots and gloves.
RESOURCES
National Flood Insurance Program. (800) 427-2354. Offers flood insurance to homeowners, renters and business owners, if their community participates in the NFIP. To find out if your community is a NFIP partner, check the Community Status Book at https://www.floodsmart.gov/gloodsmart/pages/flood_ facts.isp.
California Driver Handbook. See: Special Driving Situations: Driving Hazards: Water on the Road; Slippery Roads; High Winds; Driving in Rain or Snow. Department of Motor Vehicles. (800) 777-0133. (Copy subject to availability at San Francisco Public Library.)
Department of Public Works. Provides residents up to 10 free sandbags leading up to and during severe rainstorms for properties prone to flooding. Hours: Monday – Saturday, 8 a.m. to 2 p.m. at MarinStreet/ Kansas Street gate. Proof of address required or call 311.
Elder Diary: Starter Kit. Anise J. Matteson. 2007. An instructional guide designed to help non-medical persons better manage the care of their loved one. Includes sample forms for recording medical and other important information. Inquire: mattesonecs@yahoo.com.
National Weather Service. Provides active alerts, current conditions, forecasts, weather safety, education. www.weather.gov. Recorded weather: (831) 656-1725.
Outdoor Public Warning System (OPWS) Siren Information. San Francisco Outdoor Public Warning System alerts residents and Visitors of the Bay Area about possible danger. In times of a disaster, the 15 second alert tone will sound repeatedly for 5 minutes. www.sfdem.org.
Travelers with Disabilities. (800) 455-2700. Defines the airlines policy for planning reservations for travelers with special needs: airport assistance, aircraft accessibility and in-flight assistance. www.delta. com/content/www/en_US/traveling-with-us/special-travel-needs/disabilities.html.
1. Began, Brian. "Deluge of wet weather expected this week." THE EXAMINER, January 17, 2010.
2. www.ncema.gov.ae/en/e-participation/blog/preventive-measures-to-avoidthe-risk-of-heavy-rain-lightning-and-thunderstorm.asp#page-=1
3. http://weather.wiki.com/Rainstorm
4. Webster's New Collegiate Dictionary
5,12. https://www.providenceri.com/PEMA/residents-advised-to-take-precautions-as-heavy
6,7,8,17,20.
9. www.gplinc.net/node/346
10,11. www.smithvilleherald.com/news/article_da98bfba-ea-28-52ab-8644-1efab1f9c98a.html
13. The World Book Encyclopedia
14. Walter Kidde, The Fire Extinguisher Co.
15 .www.ehow.com/how_5649264_dispose-old-fire-extinguisher.html
16. https://www.floodsmart.gov/floodsmart/pages/flood_facts.isp
18. resillience.abag.ca.gov/wp-content/documents/ThePlan-D-2011.pdf
19,21.
22. (http://listosaur.com/top-5-weather-related-causes-of-death-in-the-us/)
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors and Elder Caregivers NEWSLETTER, ©2003. Information educational only. mattesonecs@yahoo.com.
June 2016
Senior Housing: Choosing Where You Live to Have a Dynamic Life
Iam prompted to express my expertise in elder care in response to Alexander Mullaney's interview with Joel Engardio ("Meet the District 7 Candidates," Ingleside-Excelsior Light, March 2016) regarding Engardio's response to: West Portal's commercial corridor. How do you see it growing in your term?
Stories of seniors who have homes and they are thinking, 'Well I can't climb the stairs much anymore' but where am I going to go? I'd like to stay in my neighborhood…”
Housing to which seniors can downsize.
Stories of seniors who have homes and they are thinking, 'Well I can't climb the stairs much anymore' but where am I going to go? I'd like to stay in my neighborhood…"
If my memory is correct, I read this statement in the West Portal Monthly sometime in the past few years.
There are service providers who can assist seniors with home modifications to age-in-place. They are Certified Aging-in-Place Specialists (CAPS).
There is medical equipment that can be installed: chair lift, platform lift, dumb waiter, home elevators, etc.
Mechanical lifts may be covered by health insurance.[1]
Neither you nor your loved ones have to experience this season of life alone. Everyone goes through each season. The difference is how it is experienced and who is willing to walk with you.
Michael Menn, a licensed architect, remodeler and frequent industry speaker provided the following information for the Glossary in my reference book, Caring for an Aging Loved One: The Family Caregiver's Guide Book, ©2007.
Definitions
Aging-in-place. 1: living in your home safely, independently and comfortably regardless of age, income or ability level; 2: the pleasure of living in a familiar environment throughout one's maturing years; 3: the ability to enjoy the familiar daily rituals and the special events that enrich our lives; 4: the reassurance of being able to call a house a "home" for a lifetime; 5: using products, services and conveniences to allow or enable you not to have to move as physical and social circumstances change.
Universal Home Design. Is intended to make the home friendly, or easy to navigate, for everyone.
Certified Aging-in-Place Specialist (CAPS). Professionals trained in working with older and maturing adults in remodeling their homes to provide comprehensive and practical "aging-in-place," "universal design" and "visibility" solutions.
What is CAPS?
The American Association of Retired People (AARP) and the National Association of Home Builders (NAHB) have been working together to create the "Certified Aging in Place Specialist" (CAPS) program to help home remodeling professionals meet the needs of the burgeoning market. This training program is offered through individual state homebuilders associations to home remodelers.
The program teaches the technical, business management and customer service skills essential to compete in this fast growing segment of the residential remodeling industry. It provides comprehensive, practical, market-specific information about working with older and maturing adults to remodel their homes for aging-in-place.
CAPS professionals have the answer to your questions. They have been taught the strategies and techniques for designing and building aesthetically enriching barrier-free living environments. The CAPS program goes beyond design to address the codes and standards, common remodeling expenditures and projects, product ideas and resources needed to provide comprehensive and practical "aging-in-place," "universal design" and "visibility" solutions. CAPS graduates pledge to uphold a code of ethics and are required to maintain their designation by attending continuing education programs and participating in community service.
The role of a the Specialist"
A Certified Aging-in-Place Specialist (CAPS) has been trained in the following:
The unique needs of the older adult population.
"Aging-in-Place" home modifications.
Common remodeling projects.
Solutions to common barriers.
Knowledge of "Universal Design."
Knowledge of "Visibility."
While most CAPS professionals are remodelers, an increasing number are general contractors, designers, architects and health care consultants.
Abbreviations
AIA - American Institute of Architects
CGR - Certified Graduate Remodeler © Information courtesy of Michael A. Menn, AIA, CGR, CAPS. Principal, Design Constructions Concept, Ltd.
AT-HOME LIVING: MECHANICAL LIFTS
Purpose: Mechanical lifts can be installed in homes in order to make uninhabitable areas more habitable.[2]
LIFTS
Stair chair. A device used to transport patients capable of being moved in a sitting position up and down a staircase or through narrow and confined spaces.[3] Attaches to the bottom of a stairwell.[4]
Stair Lifts [5]
Outdoor Stairlift. Weather-proofed. Waterproof cover.
Perched/Stairlift. When the user may have trouble bending at the knee and therefore cannot use a standard lift.
Sit/Stand Stairlift, For multiple users with different requirements.
Curved Stairlift. For more complex staircases.
Wheelchair stair lift: 1. Has a platform for a wheelchair instead of a comfortable chair. 2. Allows the senior to take their wheelchair with them up and down the stairs. 3. Provides them with a way to tackle the stairs by themselves. 4. Useful for seniors who are unable to transfer themselves from wheelchair to a chair lift.[6]
Platform Lifts
Platform lift. An unenclosed platform which carries persons and cargo in the manner of an elevator, usually over a short vertical distance. The platform is usually attached to theside of the lift mechanism.[7]
Wheelchair platform lift. Allows its user to roll onto the platform and then press a button to go up or down to reach the porch or the sidewalk.[8]
HOME ELEVATORS
Personal elevator. 1. For people in wheelchairs or seniors who have a walker or cane and find it difficult to go up and down the stairs in their home. 2. For homes that are two or more stories tall and that have a lot of stairs. 3. Can be installed into already established closets.[9]
Residential home elevator.
Residential home elevator
Personal elevator
Dumb waiter. 1. For seniors who are unable to maneuver the stairs easily and who often need items transferred from one floor to another. A mini manual elevator that allows the user to transfer laundry, prepared meals or other heavy items up and down floors.[10]
Seniors, you are a real estate developer or investor's dream come true!
Please contact me if you would be interested in my offering a seminar with service providers to learn more about options for remaining in your home when you are no longer able to climb the stairs.
Share "Your Story": If you are homebound, why? What would make your life more fulfilled?
RESOURCES
Home Safety Services. www.homesafety.net. (888) 388-3811. The Safety Fitting Experts provides in-home assessments and installations. Services to enhance independence include: home safety assessment, grab bars, stair railings, wheelchair ramp, stair lift, complimentary telephone consultation to help Bay Area residents enhance their independence and peace of mind. Certified Aging in Place Specialist. Licensed and Bonded General Contractor.
Home Improvement Assistance Programs for Seniors. Jim T. Miller. May 18, 2015. www.huffingtonpost.com/jim-t-miller/home-improvement-assistan_b_7306038.html. Programs that can help seniors with home repairs and improvement projects for aging-in-place. Options: Medicaid waivers; State and local programs (e.g., "nursing home diversion programs" or "deferred payment loans"), Area Aging Agency; Federal programs; Veterans benefits; Non-profit organizations (e.g., Rebuilding Together); Reverse mortgage.
Bruno's Residential Platform Lift. www.bruno.com/residential-vertical-platform-lift/. A 3:19 minute video on the automatic self-lowering ramp. (Also called porch lift.)
1,2,4,6,8,10. www.carefecthomecareservices.com/blog/types-mechanical-lifts-homes/
3. Taber's Cyclopedic Medical Dictionary
5. Acorn Stairlifts
7. standards.phorio.com/?t=definition&code=8152013099
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Information is educational only. For specific questions and advice, consult a licensed contractor
May 2016
April 16 is National Healthcare Decisions Day!
This year marks the 9th Annual Healthcare Decisions Day and the 3rd Annual Healthcare Decisions Day in San Francisco with healthcare Decisions Week from April 9 through April 16. During the week, neighborhood branches of the San Francisco Public Library acknowledge advance care planning with books/materials display for Advance Directives, wills, trusts and estate planning.
The purpose is to inform patients of their rights regarding decisions towards their own medical care, and ensure that these rights are communicated by the health care provider. Specifically, the rights ensured are those of the patient to dictate their future care (by means such as a living will or power of attorney), should they become incapacitated."
I would like to thank last year's participants: Bookmobile (Library on Wheels/Seniors), Excelsior, Glen Park, Merced, Mission, Mission Bay, Visitation Valley, and Western Addition.
Prepare for the unexpected. Set aside time on April 16—visit the library; discuss your wishes with your loved ones; primary care physician or attorney. (Since April 16 is a Saturday, schedule an appointment April 11-15.) Name someone to speak for you when you cannot speak for yourself.
Patient Self-Determination Act (PSDA)
|
When you have completed your Advance Directive, you may indicate this with the wallet card that states you have advance directives |
Passed by the U.S. Congress in 1990, it became effective on December 1, 1991. The purpose is to inform patients of their rights regarding decisions towards their own medical care, and ensure that these rights are communicated by the health care provider. Specifically, the rights ensured are those of the patient to dictate their future care (by means such as a living will or power of attorney), should they become incapacitated. The PSDA requires information to be given to adult patients about their rights under state laws governing advance directives, including: 1) the right to participate in and direct their own healthcare decisions; 2) the right to accept or refuse medical or surgical treatment; 3) the right to prepare an advance directive; 4) information on provider's policies that govern the utilization of these rights. The act also prohibits institutions from discriminating against a patient who does not have an advance directive. The PSDA requires institutions to document patient information and provide ongoing community education on advance directives. (1)
California law provides individuals the ability to ensure that their health care wishes are known and considered if they become unable to make these decisions themselves. (2)
End of Life Option Act
The "End of Life Option Act," ABX2-15, permits terminally ill adult patients with capacity to make medical decisions to be prescribed an aid-in-dying medication if certain conditions are met. On October 5, 2015, California became the fifth state to allow physicians to prescribe terminally ill patients medications to end their lives.[3]
An Advance Directive is a part of patient-centered care—a treatment plan specific to the patient's needs.
Your Story
In March, I asked readers: Why should you have written instructions for end-of-life care? And, to share your experience if you have recently experienced the loss of a loved one who did not have an Advance Directive. No responses have been received in time for this article.
I also wrote the Medical Director at UCSF Emergency Room to describe a case involving a patient brought to the Emergency Room who did not have an Advance Directive: Protocol; Medical team's decision for plan of care; Family's reaction; Family's decision.
And, the Medical Director at St. Mary's Medical Center to please provide information on: What patients and family members should know about Catholic hospitals honoring the patient's wishes who have advance directives when there is a change of condition? Will a Catholic hospital honor the patient's wishes conveyed by a family member orally that this is what the patient would or would not want when he or she became unable to speak for themselves? Are Catholic hospitals aware of the Secular Health Care Directive? No response has been received in time for this article.
April 16 is a day to "inspire, educate and empower the public and providers about the importance of advance care planning." I hope you find the information in the March and April articles helpful to make an informed decision about completing an Advance Directive.
RESOURCES
My Life, My Choices™. Planning for Future Healthcare Decisions. Hospice of Marin® Community Education Program. www.hospicebythe bay.org/index.php/about/speakers-bureau.
Hospice by the Bay. (415) 626-5900. Community services: include Advance Care Planning Seminars, Estate Planning Seminars and Community Grief Counseling and Support Groups. www.hospicebythebay.org/index.php/locations/san-francisco.
Good to Go RESOURCE GUIDE. Compassion & Choices MAGAZINE, Special Issue, 2012 Reprint, (800) 247-7421. www.Compassion AndChoices.org. Chapters include: How to Make Your Health Care Decisions Known, Your Wishes, Glossary, The Conversation.
1.http://definitions.uslegal.com/p/patient-self-determination-act-of-1990
2,3.www.cmanet.org/about/patient-resources/end-of-life-issues/
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors, and Advocate, National Healthcare Decisions Day. Information is educational only. For specific questions and advice, consult your physician and an attorney. mattesonecs@yahoo.com.
April 2016
When Your Decisions Matter!
Emergency preparedness focuses on more than an emergency preparedness kit in the event of an earthquake, or a grab-and-go backpack if you have to leave your home suddenly because of a disaster. It includes preparing for a medical emergency. Who will speak for you when you cannot speak for yourself?
An Advance Directive will provide your loved ones with the answers they need to assist health care professionals with a treatment plan.
You should have an Advance Directive to specify your decisions in the future regarding health care, end-of-life care, nutrition, hydration, hospice care, No Cardiopulmonary Resuscitation, and organ donation when you become unable to express your wishes.”
ADVANCE DIRECTIVES
Advance Directive and Durable Power of Attorney provide instructions in your own words to family/caregivers, friends, and health care professionals when there is a significant condition change.
An advance directive is a written document in the form of a living will or durable power of attorney prepared by a competent individual that specifies what, if any extraordinary procedures, surgeries, medications or treatments the patient desires in the future, when he or she can no longer make such decisions about medical treatment. [1]
You should have an Advance Directive to specify your decisions in the future regarding health care, end-of-life care, nutrition, hydration, hospice care, No Cardiopulmonary Resuscitation, and organ donation when you become unable to express your wishes. (Examples with supporting documentation: do not hospitalize, autopsy request, feeding restrictions, medication restrictions, other treatment restrictions.)
Sectarian Health Care Directive
"An optional addendum to your advance directive. The language in this addendum clarifies that admission to a religiously-affiliated facility does not imply consent to particular care mandated by the institution's religious policies, and directs a transfer if the facility declines to follow the wishes outlined in an advance directive." (CompassionAndChoices.org)
ELDER LAW
Elder law attorney refers to an attorney who specializes in providing legal services for the elderly, especially in the area of Estate Planning and Medicaid Planning. They handle general estate planning issues and counsels clients about planning for the management of assets and health care with alternative decision-making documents to prepare for the possibility of becoming incapacitated. Elder law is a specialized area of legal practice, covering estate planning, wills, trusts, arrangements for care, social security and retirement benefits, protection against elder abuse (physical, emotional and financial) and other involving older people. (http://definitions.uslegal.com/e/elder-law-attorney)
For an elder law attorney perspective, see Boomer Legal by Helene V. Wenzel, Esq. solo practitioner in Estate Planning and Elder Law, "Let's Talk Boomer Legal and Advance Care Planning": Power of Attorney, Advance Health Care Directive, Physicians Orders for Life-Sustaining Treatment, The Difference Between a "Living Will" and a "Will" (March 2015); and Living Trust, What Happens To The Estate if the Deceased Does Not Have A Will?, Preparing for an Appointment if an Attorney Prepares Documents, The Difference Between "Revocable" and "Irrevocable" Living Trust (April 2015). ©2015.
NATIONAL HEALTHCARE DECISIONS DAY
April 16 is a day to "inspire, educate and empower the public and providers about the importance of advance care planning."
"…National Healthcare Decisions Day is an initiative to encourage patients to express their wishes regarding health care and providers and facilities to respect those wishes, whatever they may be." (nhdd.org)
As Advocate for National Healthcare Decisions Day, in 2014 I started Healthcare Decisions Week in San Francisco from April 9 through April 16. I invited San Francisco Public Library neighborhood branches to participate in acknowledging advance care planning.
See the April issue for this year's details.
Your Story
Why should you have written instructions for end-of-life care?
Please share your experience if you have recently lost a loved one and they did not have an Advance Directive. Submit by March 12 for April article on Advance Care Planning.
RESOURCES: ADVANCE CARE PLANNING
Advance Health Care Directive. To download form visit the California Health Care Association at cmanet.org.
Five Wishes – Aging with Dignity. agingwithdignity.org/forms/5wishes.pdf.
FIVE WISHES
MY WISH FOR:
The Person I Want to Make Care Decisions for Me When I Can't
The Kind of Medical Treatment I Want or Don't Want
How Comfortable I Want to Be
How I Want People to Treat Me
What I Want My Loved Ones to Know
Secular Health Care Directive. For more information contact CompassionAndChoices.org.
RESOURCES: Planning
Seniors & the Law: Guide for Maturing Californians, "PLANNING AHEAD," pp. 6-7. State Bar of California educational guide. To request publications contact 1-888-875-5297 or visit www.calbar.gov.
RESOURCES: WILLS
Write Your Will Workshop, Write Your Will Seminar and Introduction to Wills & Trusts are held at various branches of the San Francisco Public Library. You can find information on upcoming sessions at sfpl.org.
Taber's Cyclopedic Medical Dictionary
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books and Caring Boomers Newsletter article excerpt ©2012, and Advocate, National Healthcare Decisions Day. Information is educational only. For specific questions and advice, consult your physician and an attorney. mattesonecs@yahoo.com
March 2016
Aging: Glaucoma and its Affects on the Eyes
Part 4 – Operative Treatment
If you have been following the series, you have a better understanding of why it is important to get tested, diagnosed, and treated early in the disease process. After reading this article, you will definitely realize the seriousness of this disease and two sources for eye surgery.
REASON FOR SURGERY
You may need surgery to treat glaucoma if you can’t tolerate medications or if they’re ineffective. Sometimes a single surgical procedure may not effectively lower your eye pressure. You may need to continue using eye drops, or you may need another procedure.[1]
COMPLICATIONS
Possible complications from glaucoma surgery include infection, inflammation, bleeding, abnormally high or low eye pressure, and loss of vision. Having eye surgery also may speed up the development of cataracts. Most of these complications can be effectively treated.[2]
LASER SURGERY
Trabeculoplasty.[3] May be performed as an outpatient surgery.
Indication: Open-angle glaucoma.
Procedure: A high-energy laser beam is used to open clogged drainage canals and help fluid drain more easily.
Action: Initially lowers intraocular pressure.
Complications:[4] Transient: Blurred vision, irritation and pain, conjunctivitis, iritis, ocular hypertension, photophobia, tearing, corneal opacities. Permanent: Peripheral anterior synechiae.
Types of Laser Trabeculoplasty (LP)
Argon Laser Trabeculoplasty (ALT)[5]
Indication: Open-angle glaucoma that continues to progress despite use of medications. Older adults who are unable to use medicines to treat.[6]
Procedure: An Argon laser beam is directed at the trabecular meshwork.
Action: Facilitate drainage of fluid from the eye. Lowers intraocular pressure.
Complications:[30] Transient rise in IOP. Low grade iritis. Formation of PAS. Corneal edema. Hyphema.
Selective Laser Trabeculoplasty (SLT)[7]
Indication: Primary open-angle glaucoma (POAG). An alternative for those who have been treated unsuccessfully with traditional laser surgery or with pressure lowering eye drops.[25]
Procedure: Uses a combination of frequencies that allow the laser to work at very low levels. It treats specific cells “selectively,” leaving untreated portions of the trabecular meshwork intact.
Action: Lowers IOP.
Side Effects: Soreness, redness, blurring of vision. Elevated eye pressure. Peripheral anterior synechiea. Inflammation and swelling.
Micropulse Laser Trabeculoplasty (MLT)[8]
Indications: POAG (primary open-angle glaucoma), pigmentary glaucoma, pseudoexfoliation glaucoma.[21]
Procedure: Uses repetitive low-energy laser pulses that are separated by brief rest periods.[15]
Action: Helps to minimize the IOP spikes that can sometimes occur after a laser procedure.
NOTE: This technology is still being evaluated by glaucoma treatment professionals.
Neodymium: YAG laser cyclophotocoagulation (YAG CP)[34]
An alternative to filtering microsurgery.
Neodymium: yttrium-aluminum-garnet (YAG) laser (1064 nm wavelength) has been used either with non-contact or contact methods to achieve cyclodestruction.[16]
Indications: Final and last ditch procedure to save an eye from glaucoma that are most difficult to control. Severe glaucomas that are resistant to therapies.
Procedure: Destroys part of the ciliary body, the part of the eye that produces intraocular fluid. The procedure may need to be repeated to control glaucoma.[9]
Action: Decreases the amount of fluid made.
Risks: Postop pain, marked inflammation of the outside and inside of the eye, markedly decreased vision for a period of one to six weeks after the procedure.
Complications: Permanent decrease in visual acuity in those with advanced glaucoma or retinas susceptible to swelling with intraocular inflammation.
Laser Peripheral Iridotomy (LPI)
Narrow-angle glaucoma occurs when the angle between the iris and the cornea is too small, causing the iris to block fluid drainage increasing inner eye pressure.[10]
Indication:[11] Narrow-angles and narrow-angle glaucoma. Acute angle-closure glaucoma. Chronic angle-closure glaucoma. Fellow eye of acute angle-closure glaucoma. Miscellaneous conditions, including phacomorphic glaucoma, aqueous misdirection, nanophthalmos, pigmentary dispersion syndrome, and plateau iris syndrome.
Procedure:[12] A small hole is made in the iris, allowing it to fall back from the fluid channel helping the fluid drain.
Action: [27] To prevent another attack of acute angle-closure glaucoma or progression to chronic angle-closure glaucoma. Chronic angle-closure glaucoma: IOP may remain the same or be lowered, depending on the extent of peripheral anterior synechiae.
Contraindications:[28] Conditions causing poor visualization of the iris. Angle closure due to synechial closure of the anterior chamber. Patient who is unable to cooperate.
Complications:[36] Brief blurred vision (common). Swelling of the clear covering (cornea) of the iris. Bleeding. Increased pressure in the eye. Later: Further clouding of the lens (cataract) compared to what the present was before laser treatment. Closure of the opening. Recurrent closed-angle glaucoma. Development of another type of glaucoma. Continued need for medications (depending on the person’s condition before laser treatment). Glare or double vision from light entering through the new opening.
RESOURCES
Eye Surgery Center of San Francisco. http://escsf.org. (415) 440-1100. Specializes in cataract surgery with intraocular lens placement, corneal transplantation, strabismus, treatment of glaucoma, and ophthalmic plastic and reconstructive surgery.
Glaucoma Clinic. UCSF. (415) 514-6920. TREATMENT: By referral, patients with conditions that have poor prognosis, including those who have had unsuccessful glaucoma surgery or have secondary glaucoma, advanced glaucomatous optic atrophy and patients who have vision only in one eye. SPECIALTY: Congenital, combined mechanism, narrow angle, open angle, and normal tension glaucoma. DIAGNOSTIC: Automated perimetry, darkroom prone provocative testing, specular microscopy testing, tonography, pachymetry, optic disk photography, optic nerve laser scanning, iris fluorescein angiography, A and B scan ultrasonography and ultrasound biomicroscopy. OUTPATIENT PROCEDURES: Contact Ng-Yag transcleral cyclophotocoagulation, endocyclophotocoagulation, Argon-laser trabeculoplasty, selective laser trabeculoplasty, Yag– iridectomies and laser sclerostomies. The Clinic also has extensive experience with surgically implanted valves and non-penetrating glaucoma surgery. www.ucsfhealthlorg/clinics/glaucoma/index.html.
Future articles: Filtering Surgery. Cyclodestructive Procedure. Drainage Implants
Reminder: April 16 is National Healthcare Decisions Day. Your decisions matter.
1,2,3. www.mayoclinic.org/diseasesconditions/glaucoma/basics/treatment/con-20024012
4. https://www.google.com/search?=free+photos:+trabeculoplasty…
5. www.djo.harvard.edu/site.php?url=patients/pi/417
6. www.webmd.eye-health/laser-trabeculoplasty-for-glaucoma
7. www.glaucomaresearch.ca/en/treatment/surgery_laser.shtml
8. www.glaucoma.org/treatment/micropulse-laser-trabeculoplasty-mlt.php
9,10,12. www.glaucomaresearch.ca/en/treatment/surgery_laser.shtml
11,27,28. http://enmedicine.medscape.com/article/1844179-overview
15. www.treatmyglaucoma.com/micropulse
21. www.aocoohns.org/wp-content/uploads/2012/90/Benjamin.pdf
25. Understanding Medical Terminology
26. http://ocvermont.com/glaucoma-surgery/selective-laser-trabeculoplasty-slt/
30. www.eyewiki.org/Laser_Trabeculoplasty:Alt_vs_SLT
34. http://willsglaucoma.org/nd-yag-cyclophotocoagulation-therapy-for-difficult-glaucoma
36. www.webmd.com/eye-health/laser-iridotomy-for-glaucoma
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors, and Advocate, National Healthcare Decisions Day. Information is for educational purposes. For specific questions and care, consult an ophthalmologist. mattesonecs@yahoo.com.
February 2016
Aging: Glaucoma and its Effects on the Eyes
By Anise Matteson
Part 3 – Nonoperative Treatment
At this time, there is no cure for glaucoma. Optic nerve damage cannot be reversed. If glaucoma has been diagnosed and there has been vision loss, treatment can slow or prevent further vision loss.
REASON FOR TREATMENT
The goal of glaucoma treatment is to lower the intraocular pressure. To treat, doctors may: 1) lower your eye pressure, 2) improve drainage of fluid in your eye, or 3) lower the amount of fluid produced in your eye. [1]
ADVERSE EFFECTS[2]
Medications placed in the eye are absorbed into the conjunctival blood vessels on the eye surface. A certain percentage of the active ingredient of the medication, though small, will enter the bloodstream and may adversely effect functions such as heart rate and breathing.
Likewise, some types of eye drops may worsen certain existing medical conditions such as asthma. Some glaucoma drugs also interact with other common medications such as digitalis, prescribed for heart conditions.
EYE MEDICATIONS
Eye drops are classified by the active ingredients that helps make the drug work.[3]
If eye drops alone don’t bring your eye pressure down to the desired level, your doctor may also prescribe an oral medication, usually in the form of a carbonic anhydrase inhibitor to reduce your eye pressure. [4]
Prostaglandins
Latanoprost (Xalatan). Indication: Ocular hypertension and open-angle glaucoma. Action: Lowers pressure in the eye. Increases fluid drainage.
Bimatoprost (Lumigan). Indication: Open-angle glaucoma. Action: Increases outflow of fluid. Reduces IOP.
Beta Blockers
Timoptic. Indication: Chronic open-angle, secondary, and aphakic glaucoma, ocular hypertension. Action: Decreases fluid production and pressure.
Betaxolol (Betoptic). Indication: Chronic open-angle glaucoma and ocular hypertension. Action: Decreases fluid production and pressure.
Alpha –Adrenergic Agents
Apraclonidine (Iopidine). Indication: Prevention or control of IOP elevation. Used in combination with other medications. Decreases fluid formation. Lowers IOP.
Brimonidine (Alphagan P). Indication: Open-angle glaucoma. Action: Decreases fluid production and IOP.
Carbonic Anhydrase Inhibitors
Acetazolamide (Diamox)** Indication: Secondary glaucoma and preoperative treatment of acute-angle closure glaucoma. Action: Decreases secretion of aqueous humor. Lowers IOP.
Methazolamide (Neptazene).* Indication: Chronic open-angle or preoperatively in obstructive or acute-angle closure glaucoma. Action: Decreases secretion of aqueous humor. Lowers IOP.
Dichlorphenamide (Daranide).* Indication: Adjunct in glaucoma. Action: Decreases secretion of aqueous humor. Lowers IOP.
NOTE: These are rarely used. These medications may reduce production of fluid.][5]
Miotic or Cholinergic Agents [parasympathomimetics]
Pilocarpine (Isopto Carpine). Indication: Primary open-angle glaucoma. Emergency treatment of acute-angle closure glaucoma. Action: Cholinergic. Reduces IOP.
Carbachol (Isopto Carbachol). Indication: Open-angle glaucoma. Action: Cholinergic. Causes contraction of the sphincter muscles of the iris, resulting in miosis.
Ephinephrine
Dipivalyl epinephrine (Propine). Indication: IOP reduction in chronic open-angle glaucoma. Action: Decreases aqueous production. Increases aqueous outflow.
Hyperosmotic Agents
Isosorbide (Ismotic). Indication: Short-term reduction of IOP caused by glaucoma. Action: Promotes redistribution of water producing diuresis.
Mannitol (Osmitrol).*** Indication: Reduction of IOP. Action: Osmotic diuretic.
NOTE: One-time emergency. Indication: Severely high intraocular pressure that must be reduced immediately before permanent, irreversible damage occurs to the optic nerve. Action: Reduces IOP by lowering fluid volume.[6]
Combined Medications
Timolol maleate (Timoptic Solution). Indication: Chronic open-angle glaucoma, secondary and aphakic glaucomas, ocular hypertension. Action: Beta blocker. Decreases fluid production and pressure.
EXAMPLES: Beta blocker and alpha adrenergic agonist, or beta blocker and carbonic anhydrase inhibitor.[7]
MARIJUANA[11]
The American Academy of Ophthalmology, among other authoritative sources, say the risky side effects of marijuana (such as lowered blood pressure, increased heart rate, poor pregnancy outcomes, poor motor coordination, impaired memory and increased risk of cancer and emphysema) far outweigh any benefit.
Popular opinion persistently exaggerates the benefit of marijuana for glaucoma. This is unfortunate, because people who use marijuana instead of their prescribed glaucoma medication run a high risk of having irreversible vision loss.—L.S.
*tablet **tablet, capsule *** I.V.
Source: Multiple including Nursing Drug Handbook.
POSSIBLE SIDE EFFECTS[8]
Prostaglandins: Mild reddening and stinging of the eyes and darkening of the iris, changes in the pigment of the eyelid skin and blurred vision.
Beta blockers: May worsen breathing problems, slowed heart rate, lower blood pressure, and fatigue.
Alpha-adrenergic agonists: Irregular heart rate, high blood pressure, fatigue, red itchy or swollen eyes, and dry mouth.
Carbonic anhydrase inhibitors: Frequent urination and a tingling sensation in the fingers and toes.
Miotic or cholinergic agents: Smaller pupils, blurred or dim vision, or nearsightedness.
Epinephrine: Pigmented eye surface membrane (conjunctival deposits), blocked tear ducts and heart palpitations with an increased heart rate.[9]
MANAGING EYE MEDICATIONS[10]
Smartphone application that reminds patients when and how to take their eye drops:
EyeDROPS
Free app from HarPas International; also allows patients to take a photo of each bottle to avoid confusion.
Can track multiple medications.
Demonstrates the correct way to administer eye drops.
Basic EyeDROPS app: Free. Available for Android and iPhone.
Available for: Android phones though Google Play. Apple iPhone through the App Store.
NOTE: For Premium EyeDROPS app, Premium users will need to log-in. Visit www.eyedropsapp.com for information.
Editor’s Note: This is a shortened version of this article. To read more go to: westsideobserver.com/health.html
NEXT MONTH: Operative Treatment
Wishing you a Merry Christmas and life’s best in 2016!
SUPPORT GROUPS
RESOURCES: BOOKS/PAMPHLETS
Medicare and You 2015. Available in Large Print and e-Reader (iPad, NOOK, Sony Reader, or Kindle). To download a free digital version of the handbook visit Medicare.gov/publications. For eHandbook online visit medicare.gov/gopaperless. (See pp. 175-194, “Get Information About Prescription Drug Coverage (Part D)” for answers to: drugs covered; copayments; “donut hole”; formulary; enrollment.) (See pp. 205-206, “Getting Extra Help Paying Your Health & Prescription Drug Costs for information on: qualifying requirements; resources included; rvesources not included.) Medicare.gov. (800) 633-4227.
MEDICARE PRESCRIPTION SAVINGS GUIDE. 2015, Walgreen Co. Publication No. 000010673 – 749. Pamphlet provides information on: Coverage Phases; Cost terms; Medicare Prescription Plan Advisor, and more. Copy available at local Walgreen stores.
Medication Instructions Organizer by Anise J. Matteson. Instructional guide designed for organizing medication and treatment orders to help non-medical persons better manage self-care and the care of their aging loved ones. Contains: Important Documents Checklist; Self-Tests; an explanation of the forms purpose and what information you will be asked to complete; examples of completed forms; sample forms for recording medication and treatment orders and other important information. ©2009. MATTESON ELDER CARE SERVICES. Inquire: mattesonecs@yahoo.com.
RESOURCES: DISCOUNTS
AAA Prescriptions. www.AAA.com/prescriptions. (866) 222-7283. AAA Prescription Savings is a prescription discount program that provides discounts at participating pharmacies for AAA Auto Members to use their card to purchase prescriptions that are not covered by insurance. http://ww1.aaa.com/services/ cms/templates/index.html?page=AAAPrescriptions&zip=94109&devicecd=PC&referer=www.aaa.com.
RESOURCES: FINANCIAL ASSISTANCE
Get help with your Medicare costs. Publication No. CMS -10126. Medicare.gov/publications at “Your Medicare Costs” tab. (See p. 9, “Help for some low-income people.”) For more information about getting help with your prescription drug costs: (800) 772-1213. Apply online: www.socialsecuirty.gov/extrahelp.
Social Security Administration. www.socialsecurity.gov:
Medicare. ICN 46000.
Medication Premiums: Rules For Higher-Income Beneficiaries. Publication No. 05-105 36. www.socialsecurity.gov/medinfo.htm.
Understanding the Extra Help With Your Medicare Prescription Drug Plan. SSA Publication No. 05-10508. ICN 470112.
To determine eligibility, file: Application for Extra Help with Medicare Prescription Drug Plan Costs [Form SSA – 1020]. Apply online: www.socialsecurity.gov/extrahelp. Call: (800) 772-1213 to apply or request application.
RESOURCES: PRESCRIPTION DRUG COSTS
RXOutreach. www.rxoutreach.com. (800) 769-3880 or (888) 769-1234. Nonprofit pharmacy. Mission: To provide affordable medications. To find out if you are eligible visit http://rxoutreach.org/find-out-if-you-are-eligible.
WeRx.com. WeRx (mobile version): Compares prices for prescription medications at local pharmacies; coupons; maps. Available for iPhone, iPod and Android.
1,5,7,8. www.mayoclinic.org/diseasesconditions/glaucoma/basics/treatment/con-20024042
2,3,4,6,9,11. www.allaboutvision.com/conditions/glaucoma-3-treatment.htm
10. www.glaucoma.org/news/free-smartphone-app-helps-patients-manage-eye-medications.php
NEXT MONTH: Operative Treatment
Wishing you a Merry Christmas and life’s best in 2016!
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Information is for educational purposes. For specific questions and care, consult an ophthalmologist. mattesonecs@yahoo.com.v
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Information is for educational purposes. For specific questions and care, consult an ophthalmologist. mattesonecs@yahoo.com.
December 2015
Aging: Glaucoma and its Effects on the Eyes
Part 2 – Detecting Glaucoma
Eye examination and eye care are important for maintaining vision during the senior years for safe and fulfilling senior years. The Glaucoma Research Foundation recommends that “people at high-risk for glaucoma and those over age 60 receive an eye examination through dilated pupils every one to two years.” If not diagnosed timely and treated, glaucoma can lead to blindness.
For resources addressing eye exams and glaucoma specialists see Part 1.15
ROUTINE EYE EXAMS
Tonometry [1]
Tonometry measures the pressure inside the eye [intraocular pressure (IOP) by recording the resistance of the cornea to pressure (indentation).
Appalanation (Goldman) tonometry uses a small probe to gently flattened part of the cornea to measure eye pressure and a microscope (a slit lamp) to look at the eye. The pressure in the eye is measured by how much force is needed to flatten the cornea. USE: To measure IOP after a simple screening test (e.g., air-puff tonometry) finds an increased IOP.
Using electronic indentation tonometry, the rounded tip of a tool that looks like a pen is gently placed directly on the cornea. The IOP reading shows on a small computer panel.
Noncontact tonometry (pneumotonometry) is used in determining intraocular pressure by measuring the degree of indentation of the cornea produced by a puff of air.[2]
Reason for exam: 1) As part of a regular eye exam to check for increased IOP. 2) To check the treatment for glaucoma—to see if medicine is keeping the IOP below a certain target pressure set by your doctor.
Normal pressure range: 13-22 mm Hg.[3]
Ophthalmoscopy
Ophthalmoscopy is the examination of the interior of the eye.[4]
Optical Coherence Tomography (OCT)[5] is a non-invasive imaging test that uses light waves to take cross-section pictures of the retina.
The retina is a light-sensitive tissue lining the back of the eye.
OCT allows the ophthalmologist to map and measure the thickness of each of the retina’s distinctive layers seen.
Purpose: The measurements help with early detection, diagnosis and treatment guidance for retinal diseases and conditions.
Nerve Fiber Analyzer GDX[6] detects earlier changes and more sensitive objective changes. It is able to determine if you have glaucoma prior to your experiencing any visual loss.
Heidelberg Retinal Tomography[7] is a diagnostic procedure used for precise observation and documentation of the optic nerve head. A special laser is used to take 3-dimensional photographs of the optic nerve and surrounding retina. The image is captured by the laser focused on the surface of the optic nerve.
Optic nerve[8] is the nerve in the back of the eye.
Cupping[9] is typical nerve damage that occurs in glaucoma. As the cells making up the nerve die, due at least in part to increased pressure inside the eye, they die and disappear. When a sufficient number of these cells are gone, they leave behind a small “cup” in the nerve.
What doctors look for when examining the optic nerve: 1) The presence and extent of the “cup.” 2) How deep. 3) How wide. USE: To compute (e.g., the area of the optic nerve, the volume of the cup, the area of the rim around the cup).
DIAGNOSTIC EXAMS
Perimetry (campimetry) is a method of testing the perimeter of the visual field; Maps and qualifies the visual field, especially at the extreme periphery of the visual field; The systemic measurement of different light sensitivity in the visual field by the detection of the presence of test targets on a defined background.[10]
White-on-white perimetry[11] [automated perimetry] is the use of a white background and lights of incremental brightness. The computer maps and calculates the patient’s visual field.
Purpose: 1) Used in clinical practice, and in research trials where loss of visual field must be measured. 2) Used for blind spots.
Gonioscopy is an eye examination to look at the front part of the eye (anterior chamber) between the cornea and the iris to see if the drainage angle is open or closed. It also can find scarring or other damage to the drainage angle[12]—signs of abnormality (new blood vessels or torn places from past injury) causing secondary glaucoma.[13]
Pachymetry[14]Corneal pachymetry is the process of measuring the thickness of the cornea. It is an important test in the early detection of glaucoma.
Method: Ultrasonic or optical.
Ultrasound Technology: Corneal Waveform (CWF) [A-scan], an echogram scan that provides the ability to: more accurately measure the corneal thickness, measure changes in corneal thickness over time, and measure structures within the cornea.
Optical: Optical Coherence Tomography (OCT, e.g., Vistane) and online Optical Coherence Pachymetry (OCP), e.g., ORBSCAN).
Purpose: Used by glaucoma researchers and glaucoma specialists to better diagnose and detect early cases.
1,8. www.webmd.com/eye-health/tonometry
2,3,4. Taber’s Cyclopedic Medical Dictionary
5. www.geteyesmart.org/eyesmart/diseases/optical-coherence-tomography.cfm
6. www.eyecentral.net/services/gdx-nerve-fiber-analyzer.html
7,9. http://ophthalmology.med.ucb.cal/patient-care/ophthalmic-photography/heidelberg-retinal-tomography
10, 11. http://en.wikipedia.org/wiki/visual_field_test
12. www.webmd.com/children/gonioscopy
13. www.hopkinsmedicine.org/wilmer/glaucoma_center_excellence/book/ch06s02.html
14. https://en.wikipedia.org/wiki/Corneal_pachymetry
15. westsideobserver.com/health.html#sep15
Next Month: Nonoperative Treatment
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Information is for educational purposes. For specific questions and care, consult an ophthalmologist. mattesonecs@yahoo.com
November 2015
Aging: Glaucoma and its Affects on the Eyes
By Anise Matteson
Defining Glaucoma is Part I in this series of eye disorders and their medical implications in the aged. It is the third most common cause of visual loss. The most common type of glaucoma is primary open-angle glaucoma.1 More than 2.8 million Americans currently have glaucoma—whites: 64%; blacks: 20%. By 2050 most glaucoma patients will be non-white, due primarily to the rapid increase in Hispanic glaucoma patients. By 2018, the largest age group will be 70-79.12
More than $6 billion is spent annually for medical treatment costs related to glaucoma and disorders of the optic nerve.13
Affects On Quality Of Life
The negative outcomes experienced by individuals: eye pain; loss of peripheral vision; reduced visual acuity (especially at night); halos around lights; potential for ophthalmic emergency; fatigue; anxiety related to change in health status, presence of pain, possibility/reality of visual loss.
In persons of color, African ancestry, the important issues relating to glaucoma are: 1) three to four times more chance of having open angle glaucoma than other ethnicities, and it develops at an earlier age than others; 2) it is a more aggressive form of glaucoma leading to vision loss and blindness more often; 3) even if you take your eye drops as others do, you won’t quite get as much pressure lowering from the same dose; 4) glaucoma surgery (trabeculectomy) works less often in African-derived persons.2
According to Gary Heiting, OD (“Medical Eye Exams for Eligible Seniors for No Out-of-Pocket Cost!”) at www.allaboutvision.com/over60/free-exams.htm, ‘seniors need the most eye care.’ “Many seniors neglect their eye care and vision problems because they have low or fixed incomes or inadequate vision insurance.”
Anatomy Of The Eye
Iris. The colored portion of the eye; the pupil is in the center of the iris.
Lens [crystalline lens]. Lies directly in back of the iris. It focuses light rays on the retina.
Vitreous body. A transparent jellylike substance that fills the space between the lens and the retina.
Anterior chamber. The space between the cornea and the iris.
Cornea. The first part of the eye that reflects light.
Retina. The innermost layer of the eye; it perceives and transmits impulses of light to the optic nerve.
Optic nerve. The second pair of cranial nerves; sensory for vision.
Aqueous humor. The clear tissue fluid that circulates through the anterior cavity.
Ciliary body. Lies behind the iris.
The trabecular meshwork is the network of fibers between the anterior chamber of the eye and the venous sinus of the sclera; it contains spaces between the fibers that are involved in drainage of the aqueous humor and is composed of two portions: the part attached to the sclera and the part attached to the iris.14
Trabecular Meshwork
The Canal of Schlemm. The space(s) at the junction of the iris and cornea into which aqueous humor is drained from the anterior chamber.
Glaucoma
Glaucoma is a group of eye diseases characterized by increased intraocular pressure, resulting in atrophy of the optic nerve.3
Glaucoma occurs when the aqueous humor drains from the eye too slowly.4 The damage produces gradual and progressive visual field loss5 and can lead to blindness, if untreated.
Phacoglaucoma is lens changes induced by glaucoma.6
Intraocular pressure (IOP) is the normal tension within the eyeball, equal to approximately 12 to 20 mm Hg.7
Symptoms8
The frequent need to change eyeglass prescriptions, vague visual disturbances, mild headache and impaired dark adaptation.
Open-angle glaucoma causes mild aching in the eyes, loss of peripheral vision, halos around lights and reduced visual acuity (especially at night) that is uncorrected by prescription lenses.
Acute angle-closure glaucoma (an ophthalmic emergency) causes excruciating unilateral pain and pressure, blurred vision, decreased visual acuity, halos around lights, diplopia, lacrimination, and nausea and vomiting due to increased IOP. The eyes may show unilateral circumcorneal injection, conjunctival edema, a cloudy cornea, and a moderately dilated pupil that is nonreactive to light.
Types
Absolute glaucoma. An extremely painful form of glaucoma—the eye is completely blind and hard (as a result of elevated intraocular pressures), insensitive cornea, shallow anterior chamber, and depressed optic nerve.
Chronic glaucoma. A tonometer intraocular pressure reading of up to 45 or 50, the anterior ciliary veins are enlarged, the cornea is clear, the pupil is dilated and pain is present.
Closed-angle glaucoma (narrow angle glaucoma). Caused by a shallow anterior chamber. Intraocular pressure increases because the rate of movement of the aqueous is impaired.
Low-angle glaucoma. Intraocular pressures are normal (less than 22 mm Hg).
Malignant glaucoma. Characterized by a shallow anterior chamber associated with raised intraocular pressure and in the presence of a patent iridotomy; usually follows intraocular surgery, but has also been described to follow laser iridotomy or miotic therapy.10
Pigmentary glaucoma. Produced by the dispersion of organic pigment from the zonula ciliaris to the trabecular meshwork of the eye.
Primary open-angle glaucoma. The most common type of glaucoma. It usually affects both eyes, and there is a characteristic change in the appearance of the optic disk (the depression in the center of the disk) is enlarged. Visual loss is determined by the visual-field test.
Secondary glaucoma. Is related to various eye conditions which bring about marked fluctuations and elevations in the intraocular pressure; e.g., iritis and iridocyclitis, intraocular neoplasms, dislocation of the lens, central vein occlusion and trauma.11
RESOURCES
EyeCare America. www.eyecareamerica.org. (877) 877-6327. A public service program of the Foundation of the American Academy of Ophthalmology for those age 65 or over. If eligible for free eye care services: can schedule free comprehensive eye exam; free eye care for the condition for up to one year; Medicare or other insurance accepted as full payment; uninsured – eye care is free. (www.allaboutvision.com/over60/free-exams.htm)
Glaucoma Center of San Francisco. www.glaucomasf.com. (415) 987-2020. Ophthalmologists provide complete eye exams and consultation, comprehensive medical, laser and surgical treatment.
Lions Foundation of Northern California – Nevada. www.lionseyefoundation.com. (415) 660-3950. In partnership with California Pacific Medical Center providing free ophthalmic examinations, operations and medication. Visit the website for guidelines for patient referrals.
Pacific Eye Associates. www.pacificeye.com. (415) 923-3007. A private multi-specialty Ophthalmology group providing comprehensive eye care for medical or surgical eye problems, eyeglasses and contact lenses. Some of the services provided: Cataract Surgery, Glaucoma, Retina & Vitreous, Low Vision Rehabilitation. Appointments: Routine visits, same day emergency. Thirteen ophthalmologists. Three optometrists have specialized training in contact lens fitting and low vision aids.
Prevent Blindness Northern California. http://northerncalifornia.preventblindness.org. (415) 567-7500. (800) 338-3041. Provides services to prevent blindness. Adult Vision Screening Program: Identifies early stages of eye disorders so they can find treatment. Online “Glaucoma Learning Center” provides free information, for additional information call (415) 567-7500.
Vision USA. www.aoafoundation.org/vision-usa/who-is-eligible. Provides a basic eye exam and eyewear to low-income individuals. Applicants must meet all five of the eligibility requirements to qualify. State-run program for California: California Vision Foundation. www.californiavision.org. (800) 877-5838.
1,5. newfrontiers.americangeriatrics.org/chapters/pdf/rasp_7.pdf
2. www.hopkinsmedicine.org/wilmer/glaucoma_center_excellence/book/chapter_glaucoma_operations.html
3,4,7,8,9. Taber’s Cyclopedic Medical Dictionary
6. http://medical-dictionary.thefreedictionary.com/phacoglaucoma
10. http://bjo.bjm.com/content/81/2/163.full
11. Understanding Medical Terminology
12,13. http://northerncalifornia.preventblindness.org/rise-and-cost-glaucoma
14. http://medicaldictionary.thefreedictionary.com/trabecular+meshwork
Next Month: Detecting Glaucoma
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors—Caring for an Aging Loved One: The Family Caregiver’s Guide Book and Caring Boomers Newsletter—AMD article revised from February 2012. Information is for educational purposes. For specific questions and care, consult an ophthalmologist. mattesonecs@yahoo.com.
September 2015
Aging: Macular Degeneration and its Affect on the Eyes
More than 3.3 million Americans aged 40 and over are either legally blind (having best-corrected visual acuity of 6/60 or worse (=20/200) in the better-seeing eye) or are low vision (having best-corrected visual acuity less than 6/12 (<20/40) in the better-seeing eye). The leading causes of blindness and low vision in the United States are primarily age-related eye diseases such as age-related macular degeneration, cataract, diabetic retinopathy, and glaucoma.
Twenty-five percent of persons aged 75 and over have nonexudative ARMD and five percent have exudative ARMD. Early diagnosis and treatment is crucial to preserving vision.
VISION
Low vision is a significant loss of vision that cannot be corrected medically, surgically, or with eyeglasses.
Visual impairment or visual loss, is a decreased ability to see to a degree that causes problems not fixable by usual means, such as glasses.
Certified Low Vision Therapist (CLVT), Vision Rehabilitation Therapist (CVRT) and Orientation and Mobility Specialist (COMS) often work in close partnership with the optometrist or ophthalmologist and can provide training in how to use low vision optical or non-optical devices in practical everyday situations.
Vision rehabilitation includes a wide range of professional services that can restore functioning after vision loss.
Vision rehabilitation services allow people who are blind or have low vision to continue living independently and maintain quality of life. Services available: communication skills; counseling; independent living and personal management skills; independent movement and travel skills; low vision evaluation and training with low vision devices; and vocational rehabilitation.
Affects on Quality of Life
The negative outcomes experienced by visually impaired seniors: potential for falls; potential for serious injury or death when combined with hearing loss (e.g., inability to hear an approaching vehicle); potential for depression (e.g., secondary grief, anxiety and depressed mood); affects overall function: performing ADLS (basic and instrumental); involvement in social and religious activities; loss wages.
Statistics defined in “Utility Values of Patients with Age-Related Macular Degeneration (ARMD) and Response Groups” (The Burden of Macular Degeneration: A Value-Based Medicine Analysis by Gary C. Brown, MD et al) indicate patients’ enjoyment of life: Mild ARMD: 83%, Moderate ARMD: 68%, Severe ARMD: 47%, Very Severe ARMD: 40%.
CARING FOR THE AGED
Science
Ophthalmology. The health science pertaining to the eye and its diseases.
Optometry. The science of diagnosing, managing, and treating conditions and diseases of the eye and visual systems.
Eye Care
Ophthalmologist. A physician (M.D.) who specializes in the treatment of diseases of the eye and vision, prescribes glasses and contact lenses and performs eye surgery.
Optometrist. A doctor of optometry (O.D.) who prescribes glasses and contact lenses, gives vision exams. If an optometrist detects symptoms that indicate diseases in the eye, the doctor refers the patient to a physician. (The World Book Encyclopedia)
Optician. A specialist in filling prescriptions for corrective lenses for eyeglasses and contact lenses.
Vision Rehabilitation Services
Certified Low Vision Therapist (CLVT) instruct individuals in the use of residual vision with optical devices, non-optical devices, and assistive technology, and help determine the need for environmental modifications in the home, workplace, or school.
Certified Vision Rehabilitation Therapist (CVRT) teach adaptive independent living skills, enabling adults who are blind or have low vision to confidently carry out a range of daily activities.
Certified Orientation and Mobility Specialists (COMS) teach the skills and concepts that people who are blind or have low vision need in order to travel independently and safely in the home and in the community. They teach safe and independent indoor and outdoor travel skills, including the use of a long cane, electronic travel devices, public transportation, and sighted guide, human guide, and pre-cane skills.
MACULAR DEGENERATION
Age-related macular degeneration (AMD) is a progressive eye condition affecting as many as 15 million Americans, with 200,000 new cases each year.*
AMD causes severe vision loss—it attacks the macula of the eye.
The macular area is the area of the retina that provides central vision.
The retina is the innermost area of the eye, which receives images transmitted through the lens and contains the reception for vision, the rods and cones.
Central vision is vision resulting from light falling on the fovea centralis.
Symptoms
Blurring of central vision. Straight lines may appear distorted or warped. As the disease progresses, blind spots may form within the central field. The extent of central vision loss varies depending on the type of AMD—dry or wet.
AMD can make it difficult to: read, drive, recognize faces, watch television, safely navigate stairs, and perform other daily tasks.
Stages
Mild AMD. Visual acuity 20/20 to 20/40 in the better-seeing eye (e.g., visual acuity of 20/40 means that a person sees at 20 ft. what the normal eye could see at 40 ft.).
Moderate ARMD. Visual acuity 20/50 to 20/100 in the better-seeing eye.
Severe ARMD. Visual acuity ≤20/200 in the better-seeing eye.
Very severe ARMD. Visual acuity ≤20/800 in the better-seeing eye.
Types
Dry AMD (atrophic nonexudative, drusenoid macular degeneration). A characteristic is the accumulation of tiny protein and fat-containing “drusen” deposits in a tiny layer of cells beneath the photoreceptors in the retina called Bruch’s membrane. Reduction in central vision occurs gradually over many years. Total loss of central vision is usually not experienced—tasks that require finely focused vision may become more difficult. TREATMENT: No standard therapies currently exist.
Wet AMD (choroidal neovascularization (CNV), subretinal neovascularization, exudative, disciform degeneration). Abnormal blood vessels grow beneath the macula that discharge photoreceptor cells. Often progresses rapidly. Can cause substantial loss of central vision.
Treatment: Wet AMD
AREDS formulation [The Age-Related Eye Disease Study] is an over-the-counter antioxidant supplement recommended for people who are at risk of developing more advanced forms of either wet or dry AMD.
EYLEA™ (alflibercept) administered as an intraocular injection to block the development of unhealthy blood vessels underneath the retina.
Lucentis™ (ranibizumab) administered as an injection effective in reducing the risk of losing vision from the abnormal blood vessel growth under the retina associated with wet AMD.
Avastin® [colorectal-cancer drug] used “off-label” by some ophthalmologists to treat wet AMD.
Macugen® (pegaptanib) administered by injection into the eye to inhibit the growth of abnormal blood vessels under the retina.
Visudyne (verteporfin) Photodynamic Therapy (PDT) injected intravenously, it involves the use of a light-activated drug that targets and destroys the blood vessels that cause vision loss in wet AMD.
Vision-Enhancing Implantable Telescope is an implantable miniature telescope (IMT) for enhancing the central vision of people with end-stage, untreatable AMD. The IMT provides improved central and detailed vision by focusing and magnifying images onto the functional, outer regions of the recipient’s retina.
Clinical Trials: DRY AMD
Advanced Cell Technology (ACT) is a cell-based therapy using transplants of retinal pigment epithelial cells derived from stem cells.
Encapsulated Cell Technology (ECT) is a tiny capsule—the size of a rice grain—implanted into the eye. The capsule contains retinal cells that produce a vision-preserving protein, Ciliary Neurotrophic Factor (CNTF).
Fenretinide reduces the accumulation of vision-robbing toxins in the retina.
Clinical Trials: AMD
RetinoStat® is a gene therapy that blocks the growth of leaky, unhealthy blood vessels under the retina that cause vision loss in wet AMD.
Fenretinide reduces the incidences of wet AMD.
Clinical Trials: Therapies
Therapies include: eye drops, ocular injections, gene therapy and pharmaceutical agents.
Visual Field Testing
Visual field test is an examination that can detect dysfunction in central and peripheral vision which may be caused by various medical conditions.
|
Tangent screen [Bjerrum screen] |
A simple device used in perimetry to test the central position of the visual field.
|
Amsler Grid |
A grid of horizontal and vertical lines used to monitor a person’s central visual field.
A diagnostic tool that aids in the detection of visual disturbances caused by changes in the retina, particularly the macula, as well as the optic nerve and the visual pathway to the brain. Patients with macular disease may see wavy lines or some lines may be missing.
ASSISTIVE TECHNOLOGY DEVICES
Spotlight Text. A reading app and ebook reader specifically for readers with vision loss. Download at www.amg.org.
To address the topic of eye disorders I will be considering a Resource Fair. Date and details to be announced.
RESOURCES
Service Providers
California Telephone Access Program. www.ddtp.org (800) 806-1191. Provides assistive telecommunications equipment for persons with difficulty using a standard telephone because of vision, memory, speech or mobility difficulties. Products provided: big button, amplified, captioned, speech assist, picture dial, and portable.
Foundation Fighting Blindness.14 (800) 683-5555. Mission is to drive research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal diseases. Visit www.FightBlindness.org for the latest information on AMD treatments, research and clinical trials.
Lighthouse for the Blind and Visually Impaired. (415) 431-1481. Services include a Low Vision Clinic in partnership with UC Berkeley School of Optometry, offering low vision examinations on Fridays with a physician, and a follow-up visit with the Lighthouse Rehabilitation Specialist. To find out if you qualify, contact your primary eye care professional or the Lighthouse. For information or to schedule an exam, call (510) 642-5726or Lighthouse San Francisco.
NanoPac Inc. (800) 580-6086. Supplies products and services for individuals with disabilities (low vision, blindness, reading disabilities, quadriplegia, blind, legally blind): reading machines, hand-held magnifiers, software, adjustable tables ADA compliant, voice recognition and more.
Prevent Blindness Northern California. (415) 567-7500 (800) 338-3041. Provides services to prevent blindness. Adult Vision Screening Program: Identifies early stages of eye disorders so they can find treatment.
Senior Eye Care Program (National Eye Care Project). (800) 222-3937. Ensures seniors have access to eye care and promotes annual dilated eye exams. Raises awareness about age-related eye disease. Provides free eye care educational materials. Facilitates access to eye care. Visit www.eyecareamerica.org for referral questionnaire to determine if you qualify for a referral from Eye Care America.
The Macular Degeneration Partnership. (888) 430-9808. An outreach program of the non-profit Discovery Eye Foundation. Visit the website for up-to-date and accurate information about age-related macular degeneration, treatment, research, and vision rehabilitation. Call the toll-free “warm line” to have your questions answered or to receive support and local referrals.
Support Groups
Lighthouse for the Blind and Visually Impaired. (415) 431-1481. Promotes the independence, equality and self-reliance of people who are blind/visually impaired through rehabilitation training, employment placement, Enchanted Hills Camp and other relevant services. Programs: Learning Blindness Skills provides training to people who are new to blindness or low vision, teaching them how to use a white cane for getting around, reading braille, use accessible technology and master nonvisual techniques for graceful daily living. Access to Information Technology provides Access to Information Services, create braille and textile maps, audio files, accessible museum exhibits, braille documents, and assist web and app developers in creating content that is fully accessible. Adaptions, the Lighthouse Store is open Monday-Friday.
Books/Pamphlets
If You Are Blind or Have Low Vision—How We Can Help. Publication No. 05-10052. www.socialsecurity.gov/work (800) 772-1213.
Macular Degeneration: The Complete Guide to Saving and Maximizing Your Sight by Lylas G. Mogk, MD and Marja Mogk.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors—Caring for an Aging Loved One: The Family Caregiver’s Guide Book and Caring Boomers Newsletter—AMD article revised from February 2012. Information is for educational purposes. For specific questions and care, consult an ophthalmologist. mattesonecs@yahoo.com.
July-August 2015
Aging: Its Gerontology, Psychogerontology and Socioeconomic Implications
By Anise J. Matteson
The Older Americans Act (Aging Magna Carta), a Bill of Rights for Older Americans was passed by Congress in 1965. “Its purpose strengthened by amendments in 1975 and 1978 is to “make available comprehensive programs which include a full range of health, education and social services to our older citizens…” In 1973, the Act was amended for eligibility to anyone 60 or older. Congress in cooperation with state and local government, established a structure of agencies that have become popularly known as ‘the aging network.’ ” (READER’S DIGEST. You and Your Rights.)
Geriatric specialists keep abreast of the different medications that an elderly person is prescribed to treat their more common health issues in order to decrease adverse side effects and avoid dangerous drug interactions.”
The Older Americans Act and National Aging Network can be found at www.aoa.gov.
CARING FOR THE AGED
Geriatrics is a branch of health care concerned with the diagnosis and treatment of diseases associated with the aged.
A geriatrician specializes in diseases and care of the aged for falls resulting in fractures, impaired memory, multiple diagnoses, hospitalizations due to heart disease, heart failure, cancer, hematologic conditions, accidents, enlargement of the prostate gland, rheumatoid arthritis, digestive disorders, pruritis and dermatology disorders. [geriatric specialist]
Geriatric specialists keep abreast of the different medications that an elderly person is prescribed to treat their more common health issues in order to decrease adverse side effects and avoid dangerous drug interactions. (www.vitals.com/geriatric-doctors/ca/san-francisco)
There are more than 122 geriatric doctors in San Francisco, according to www.vitals.com.
A gerontologist is a scientist who studies the process of aging and its biologic, mental and socioeconomic implications.
Gerontology is the study of aging and its affects—physiological, pathological, psychological and socioeconomical.
Psychogeriatrics is a branch of health care concerned with the psychiatric disorders associated with the aged.
Psychogerontology is a science that deals with the mental and emotional life of the aging, their ideation, memory and level of consciousness.
PHYSIOLOGICAL
Physical Disorders (Diagnostic)
Some physical disorders that may affect the elderly are:
Senile degeneration: The bodily and mental changes that occur during pathologic aging.**
Macular degeneration: Loss of pigmentation in the macular region of the retina, produces central visceral fluid loss.**
Senescent osteoporosis: A disorder of protein metabolism marked by increased porosity of bone.*
Physical Disorders (Symptomatic)
Blepharochalasis: Baggy eyelids.
Geroderma: Atrophic thickening and wrinkled skin of old age.*
Presbycusis (pesbyacusia): Progressive loss of hearing with aging.**
Presbyopia: Defective vision resulting from changes in accommodation in the aging process,* marked by the inability to maintain focus on objects held near the eye. [farsightedness].**
Progeria: Premature aging—early graying, baldness, sparse eyebrows, fine wrinkles around the mouth.*
Senescent pruritis: Itching of brittle dry skin of the aged, leading to scratching followed by excoriations and eczematoid changes.*
Senescent tremors: A benign essential tremor, marked by rapid alternating movements of the upper extremities.**
PSYCHOLOGICAL
Mental Disorders (Diagnostic)
Some mental disorders that may affect the elderly are:
Alzheimer’s disease: A chronic progressive cognitive disorder.**
Organic brain syndrome: Acute and chronic mental disorder associated with brain damage or impaired cerebral function.**
Senescent psychosis: A variety of states from mild senescent mental disorders to the extreme deterioration of senile dementia. Clinical types: delirium and confusion; depression and agitation; paranoia; presbyophrenia; senile dementia.*
Mental Disorders (Symptomatic)
Agnosia: Inability to recognize or comprehend sights, sounds or other sensory information.**
Apraxia: Inability to perform purposive movements although there is no sensory or motor impairment; Inability to use objects properly.**
Confabulation: A behavioral reaction to memory loss in which a person fills in memory gaps with inappropriate words or fabricated ideas, often in great detail.**
*Understanding Medical Terminology
**Taber’s Cyclopedic Medical Dictionary
SOCIOECONOMIC
In 2013, the percentage of persons 65 years and older in San Francisco was 14.2% and 12.5% in California (http://quickfacts.census.gov/ qfd/states/06/06075.html)
Financial
Income during retirement affects the life of seniors. Some seniors receive social security payment with no other source of income. Other seniors receive funds from earnings, savings, private insurance or pension plans.
An adequate income is needed to: maintain the standard of living to which seniors are accustomed to; afford home health services; long-term care (assisted living, care home, skilled nursing/rehabilitation facility); pursue interests or hobbies; afford transportation (owning and driving your own vehicle for as long as you are able); burial expenses (life insurance).
Health
Some seniors who have health problems cannot afford health care. Public health insurance (Medicare and Medi-Cal) pay only a percentage of the total medical expense. Fewer service providers are accepting Medicare.
A senior’s income affects the ability to: experience good physical and mental health to maintain self-care; find happiness in their life—‘doing what makes you happy.’
Family
Income affects seniors ability to engage in their relationships with family and friends because of related expenses (long distance or toll telephone calls, travel fares, gasoline costs, entertaining, etc.).
Housing
Seniors who are homeowners prefer independent living—aging in place in their own home, or, transitioning to senior apartment, retirement community, or independent living center. Low-income seniors housing choice is a low-income apartment.
There are 50 affordable senior housing facilities listed in New LifeStyles Guide to Senior Living and Care.
Assistance Programs
Special benefits for seniors: reduced property taxes; free legal services [60 years and older]; reduced fares for public transportation; reverse mortgage; HUD 202 Program [affordable senior housing].
RESOURCES
Administration on Aging (AOA). www.aoa.gov. An agency of the U.S. Department of Health and Human Services designated to carry out the provisions of the Older Americans Act of 1965. Programs: Office of Supportive and Caregiver Services; Office of Nutrition and health Promotion Programs; Office of Elder Justice and Adult Protective Services; Office for American Indian, Alaska Natives and Native Hawaiian Programs; Office of Long-Term Care Ombudsman Programs; National Aging Network.
City College of San Francisco. www.ccsf.edu/en/educational-programs-/school-and-departments/school-of-health-and-physical-education/older_adults.html. Non-credit classes designed for those 55 plus, but all are welcome to attend. Course offerings span several different disciplines, including computer, health and wellness, language arts, and the arts. Contact: Shelley Glazer, (415) 452-5839.
Department of Aging and Adult Services. www.sfhsa.org. Intake and Information Referral: (415) 355-6700; Adult Protective Services: (800) 814-0009 or (415) 355-6700; In-Home Supportive Services; Transitional Care Program; Meals for Seniors; SF Connected Program; Information Resources, Advocacy and Legal Services; County Veterans Service Office; Services for Active People with Disabilities and Seniors.
Episcopal Community Services of San Francisco – Canon Kip Senior Center. www.ecs-sf.org. Senior Services: (415) 487-3300 x 6211. Provides hot lunches (Congregate Meal Program); case management and community services (computer lab; exercise classes; support groups; nutrition; workshops; occasional field trips; read newspaper or play cards).
Little Brothers – Friends of the Elderly. http://littlebrotherssf.org. (415) 771-7957. Provides outreach, advocacy and companionship. Monthly visits; Medical Escorts: to and from doctor’s appointments and obtaining medication from pharmacy; Phone visits: Calling elders regularly.
On-Lok Lifeways 30th Street Senior Center. www.onlok.org/30th-Street-Senior-Center. (415) 550-2210. Activities Program; Always Active Program; Nutrition Program; Bilingual Case Management; Aging and Disabilities Resource Center (ADRC).
Osher Lifelong Learning. http://olli.sfsu.edu. (415) 817-4243. Offers classes, interest groups, and events at the SF State downtown and main campuses for those age 50 and up.
Paratransit Services – Whistle Stop. www.whistlestop.org. (415) 456-9062. Serves residents with special transportation needs in Marin County and individuals traveling to and through Marin from surrounding counties of San Francisco, Sonoma and Contra Costa. Also group van.
San Francisco Paratransit. www.sfparatransit.com. (415) 351-7000. Provides complementary paratransit services—SF Access--for SFMTA in accordance with the ADA.
Senior Center Without Walls. http://seniorcenterwithoutwalls.org. (877) 797-7299. Offers activities, conversation, classes and support groups through teleconferencing to homebound elderswho find it difficult to go to a community senior center.
Stonestown YMCA Senior Annex. /www.ymcasf.org/stonestown/facilities/senior_center. (415) 242-7115. Provides exercise classes, trips and lifelong learning program.
We Check on You. www.wecheckonyou.com. (888) 932-5668. Offers offering reassurance and daily reminders to elderly, convalescent, those who have no family, or who live alone, and routinely ascertain their state of well-being for caretakers if unable to contact loved ones.
BOOKS, DIRECTORIES
New LIFESTYLES Guide to Senior Living and Care. www.NewLifestyles.com. (800) 869-9549.
READER’S DIGEST. You and Your Rights: The Essential Guide to Federal, State and Local Benefits and Services. 1982. The Reader’s Digest Association, Inc. Available at www.abebooks.com/ Rights-Readers-Digest-Random-House-T/11210616969/bd.
Resources for Older Adults, People with Disabilities, Caregivers and Agencies Serving Seniors. Prepared by the City and County of San Francisco Department of Aging and Adult Services Intake Program. www.sfhsa.org/DAAS.htm. (415) 355-6700.
Senior Citizens Resource Directory, SAN FRANCISCO COUNTY. Resources, Services and Information for Senior Citizens. SeniorCitizensDirectory.com. (415) 681-8736.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors (Caring for an Aging Loved One: The Family Caregivers’ Guide Book), forum host Caring for an Aging Loved One. mattesonecs@yahoo.com.
June
2015
Let’s Talk Boomer Legal and Advance Care Planning
National Health Care Decisions Day
This year April 16 marks the 8th Annual National Healthcare Decisions Day and the 2nd Annual Healthcare Decisions Day in San Francisco.
National Healthcare Decisions Day is designed to raise awareness for the need to plan ahead for health care decisions related to end-of-life care and medical decision-making whenever patients are unable to speak for themselves and to encourage the specific use of advance directives to communicate these important decisions so that fewer families and health care providers will have to struggle with making difficult health care decisions in the absence of guidance from the patient.
An irrevocable trust is one that you make that you cannot revoke. These kinds of trusts are made for specific and complex purposes, among them, potential tax savings, and income but not principal distribution over a longer period of time. ”
For more information, visit www.nationalhealthcaredecisionsday.org
As Advocate for National Healthcare Decisions Day, I invited libraries citywide to participate in acknowledging April 16 National Healthcare Decisions Day in San Francisco with a books display the week of April 9 through 16 for Advance Directives, wills, trusts and estate planning.
Advance Directives are of such importance I have submitted a request for Mayoral Proclamation for April 16 as Healthcare Decisions Day in San Francisco.
Prepare for the unexpected. Set aside time on April 16—visit the library, discuss your wishes with your loved ones, primary care physician, or attorney. Name someone to speak for you when you cannot speak for yourself. When you have completed your Advance Directive, you may want to carry a wallet card that states you have advance directives.
BOOMER LEGAL
Living Trust
Also known as a revocable trust, this is an estate planning device that allows you to fund a trust that you create with your property, be it real property, financial assets, or tangible personal property. You may make changes to the trust (amendments); you may add and subtract property, e.g., buy a new house and add it to the trust; sell stocks and buy different ones. You are usually the trustee of your trust; you will name successor trustees who will be able to step in and manage the trust assets should you become incapacitated, and at your death. The benefits of a trust in lieu of a will are several: there is an orderly succession of persons to manage it during your life, including your incapacity; you can arrange for distribution of income and principal for your beneficiaries over the course of their lives; you can set up separate trusts for spouse, children, charities. And, there is no probate of the trust assets at your death.
What Happens To The Estate If The Deceased Does Not Have A Will?
In California, if your estate is greater than $150,000 in probatable assets, your estate will have to go through a process called probate. In California, the cost of probate will be about 8% of the value of the entire estate at death. In places like San Francisco and the Bay Area, that will be a considerable sum: some goes to the attorney; some to the executor, the rest to fees and the county court. Not only expensive, probate is also a time consuming and lengthy court-controlled series of petitions, hearings and filings that must take place when a California resident dies without a will, and surprisingly, when a California resident dies with a Will. Most people think, erroneously, that if they have a will, they can avoid probate. Not so.
The only sure way to avoid probate is not to die; or to die with a trust; or to die with each of your assets naming beneficiaries; or having ‘pay on death’ clauses, or ‘in trust for’ designations on each account. If you have real property in your name only, it will be a probatable asset. The only way to avoid probate of your home is to hold it in joint tenancy or as community property, not available to all persons, or desirable in all situations; or to place it in a trust.
Preparing for the Appointment if an Attorney Prepares Documents
Each attorney has her own intake procedure. Call the attorney or attorneys with whom you wish to meet. Ask them or their staff what you should bring with you. Usually an attorney will provide you with a list and/or a questionnaire that will help you organize your papers and think about the people you want to name as your agents for all of the documents.
The Difference Between “Revocable” And “Irrevocable” Living Trust
A trust is a way to hold property and arrange for its distribution at your death. A revocable trust is just that: it is a document that you may revoke (and/or amend) during your life, at any time, for any reason. You are the owner (settlor/trustor) of the property; you may also be the Trustee; and for all intents and purposes you are the beneficiary of your trust as long as you are alive and have legal capacity. An irrevocable trust is one that you make that you cannot revoke. These kinds of trusts are made for specific and complex purposes, among them, potential tax savings, and income but not principal distribution over a longer period of time. These kinds of savings are available in return for your giving up the authority to control them or change them at will. It is also customary to execute complex trusts where parts become irrevocable upon your death; but the trust is revocable during your life.
Last Month:
Power of Attorney: The Importance and Types of Designee
Advance Health Care Directive: How to Make it a Legal Document and Who Should Have a Copy
Physician Orders for Life-Sustaining Treatment
Living Will
Will
The Difference Between a “Living Will” and a “Will”
Reminder: For specific questions and advice, please contact your physician. If you require legal advice, you should seek the services of an attorney.
Helene V. Wenzel is a solo practitioner in Estate Planning and Elder Law. Her estate planning practice includes the preparation of wills, trusts, durable powers of attorney and advance health care directives; trust administration; and probate. Her Elder Law practice focuses on planning for incapacity; conservatorships; long-term and Nursing Home care; asset management and Medi-Cal eligibility.
Helene is past President of the Northern California Chapter of the National Academy of Elder Law Attorneys (www.NAELA.org), the largest elder law association of attorneys in the country. Helene regularly addresses community meetings, attorneys and other concerned professionals about estate planning and elder law concerns.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, Advocate – National Healthcare Decisions Day 2015, writer of reference books for seniors and Caring Boomers Newsletter. “Boomer Legal” was written by Helene Wenzel, Esq. for Caring Boomers Newsletter, mattesonecs@yahoo.com.
April 2015
Let’s Talk Boomer Legal and Advance Care Planning
By Anise J. Matteson
The Patient Self-Determination Act (PSDA) is a 1991 act of U.S. Congress that preserves individual rights to decisions related to personal survival. There are several methods for preserving autonomy: filing appropriating for durable power of attorney for health care, making a living will, or giving a directive to the physician (Taber’s Cyclopedic Medical Dictionary).
I asked an elder law attorney to write a few pages for my Caring Boomers Newsletter, ©April 2012. Helene V. Wenzel, a solo practitioner in Estate Planning and Elder Law provided the following information in the article Boomer Legal.”
Elder law attorney refers to an attorney who specializes in providing legal services for the elderly, especially in the areas of Estate Planning and Medicaid Planning. They handle general estate planning issues and counsel clients about planning for the management of assets and health care with alternative decision-making documents to prepare for the possibility of becoming incapacitated. Elder law is a specialized area of legal practice, covering estate planning, wills, trusts, arrangements for care, social security and retirement benefits, protection against elder abuse (physical, emotional and financial) and other involving older people (http://definitions.uslegal.com/e/elder-law-attorney/)
Citing a radio talk show host on Saturday evening, February 19, 2012, devoting an hour of his show to “How prepared are you?” and encouraging listeners to think about getting their documents in order: Advance Directives, Durable Power of Attorney (health care, financial) and a will, I asked an elder law attorney to write a few pages for my Caring Boomers Newsletter, ©April 2012. Helene V. Wenzel, a solo practitioner in Estate Planning and Elder Law provided the following information in the article “Boomer Legal.”
BOOMER LEGAL
Getting your “powers of attorney” completed — the Advance Health Care Directive and the Durable Powers of Attorney — is probably more important than executing your Will or your Trust. Why? Because, as is discussed below, the Executor of your Will is only authorized to distribute your “stuff” when you are dead; an Executor has no authority to do anything while you are alive; and nothing to say about your health or finances. While a trust can have effect in your lifetime as well as after your death (if you cannot manage your affairs, the trustee can “step up to the plate” to handle only those assets which are in the trust), again, it is limited in its scope. Meanwhile, should you have an accident or stroke, or should you lose your ability to make health and financial decisions for any reason for any period of time, your agent whom you named in your Advance Health Care Directive will have the authority – in writing – to discuss your situation with your doctors, ask for and receive medical reports, relate your concerns to the doctors and hospital personnel and make the kinds of decisions you would want made about your health care, including end of life care, nutrition, hydration and hospice care. And, the agent whom you named in the Durable Power of Attorney for Property and Finances will have authority, again, in writing, to handle those matters for you at your bank, brokerage, with your government benefits, with your property. If you have not prepared these two documents in advance, had them witnessed or notarized (a DPAP must be notarized because it controls property and finances), you could well find yourself in a CONSERVATORSHIP of your PERSON, your ESTATE or both. You do not want to be in any type of conservatorship.
POWER OF ATTORNEY: THE IMPORTANCE AND TYPES OF DESIGNEE
A Power of Attorney is a document that authorizes someone of your choosing, your “agent” or “attorney in fact” to make financial and property decisions for you should you be unable or incapable of making them. There are several types of powers of attorney: a Durable Power of Attorney means that the power you have authorized will endure after you are incapacitated. You could sign a durable power of attorney now that is immediately effective, meaning that your agent may act tomorrow, even though you are still competent to act.
You may want to execute a “springing” Power of Attorney, which means the Person you authorize to act must wait for an event to take place before s/he may act. You may want your power of attorney to come into effect on a specific date, say, your 80th birthday. Most people want a power of attorney to come into effect when your primary doctor has determined that you are no longer able to make financial decisions in your best interest. This determination requires a doctor’s intervention and medical examination.
There are “general” Powers of Attorney which can be short range or specific to a particular event. For example, you will be out of the country when the escrow on your house closes and you authorize a trusted person to complete the necessary paperwork for the sale. Or you authorize your accountant to make inquiry into your bank accounts.
These must be signed and notarized powers of attorney; they may have a limited time period: “From January 1, 2012 to April 15, 2012, from today to the sale closing”.
There is a short (3 page), Uniform Statutory Form Power of Attorney available on line; as well as longer, more complex DPAPs drafted by attorneys. Please be advised that a Durable Power of Attorney is a very powerful legal document and can be very dangerous if misused. You want your agent to have the widest scope of powers available. However, it is just such a broad set of authorities that presents the greatest risks of abuse. Choose your agent(s) wisely. If your DPAP is effective immediately, your agent should have a copy. If not, your primary agent should at least know where to find the document should it become necessary to use it.
ADVANCE HEALTH CARE DIRECTIVE: HOW TO MAKE IT A LEGAL DOCUMENT AND WHO SHOULD HAVE A COPY
Only a few years ago, Advance Care Health Directives were not considered important, if they were even known about. You may or may not recall the Terri Schiavo story which was all over the news for a period of time until she died on March 31, 2005.
Basically, Terri had been in what is known as a “persistent vegetative state” for about five years following some medical event. Her husband repeatedly stated that Terri and he had discussed the possibility of either of them being unable to communicate their wishes about healthcare and life saving measures, and that Terri had expressed her wish that she not be kept on life-saving procedures. However, Terri’s parents argued forcefully that she should be kept alive. The bottom line was that TERRI DID NOT HAVE A SIGNED HEALTH CARE DIRECTIVE. Everyone got involved, including the President of the country. We cannot say for certain that had Terri had a written advance health care directive, things would have gone more smoothly with fewer participants. However, what became clear was that a signed writing was the minimum necessary for a hospital or a court to acknowledge a person’s end of life wishes.
An Advance Health Care Directive is a document which authorizes someone of your choosing, your “agent” or “attorney in fact” to make health care decisions for you should you be unable, incapable, of making them. You may write in your own words or simply initial choices presented on a printed form. The agent named on this form has authorities you give her/him: about where you want to live if you become too ill to live at home; who may visit you in a hospital; about kinds of end-of-life care you may wish or not want; about any kinds of religious or spiritual services; about burial, cremation; and the person named in this document has the authority to claim your body at the hospital.
There are short forms and long forms. You can contact the California Medical Association to get an Advance Health Care Kit in several different languages (www.cmanet.org); there is an Aging with Dignity: Five Wishes booklet available which includes an advance health care directive.
You’ll want to be sure that your agents agree with your end-of-life decisions and will represent them to your doctors. As with a Durable Power of Attorney, you may give your agent immediate authority to handle your health care even though you are still capable of making decisions. Or, you may choose to have the document effective only after your doctor or doctors, in consultation with your agent, have determined that you lack the capacity to manage your health care. Which kind of document you choose is important; but making that decision is NOT an excuse for not executing a document as soon as possible. As long as you are competent, you may always amend it, replace it. But if you do not have one, chances that you will need a conservatorship of your person are great, too great to wait.
PHYSICIAN ORDERS FOR LIFE-SUSTAINING TREATMENT
Like the Advance Health Care Directive, but narrower in its scope, a California state POLST as it is known, is a document which sets forth your wishes for end-of-life care: do you want CPR (cardiopulmonary resuscitation); kinds of comfort care; nutrition.
However, this form is signed by your doctor with whom you have discussed your situation, and your doctor has effectively agreed to treat you as you wish. There are endorsed POLST programs and developing POLST programs throughout the states.
The California form is a bright pink form which is made to stand out among your papers accompanying you to a hospital. You can find the document on the internet at www.polst.org. This is a newer form; its use is not widespread. For many people, it may be too specific; but you should check it out.
LIVING WILL
A “living will” is basically a statement about the kinds of end-of-life care that you want your physicians to perform. It speaks directly to the physician, eliminating the need for an agent to act as an intermediary. For many people who do not have anyone they would trust, or want to burden, with making health care decisions, this document makes his or her wishes known to the physician. Even without designating an agent, the AHCD can also direct a physician to provide the kinds of medical care or end-of-life care that the principal wants when he or she is no longer capable of explaining them to anyone. This form effectively skips to the chase: it is about not wanting to be kept on artificial life support. As with the Advance Health Care Directive, it must be completed and executed by the principal while he or she has legal capacity to know what is being signed. It should be given to your medical provider to keep with your medical files.
WILL
Your “will,” what used to be known as a “Last Will and Testament”, basically is a document that has no effect until you die. You may change it during your life, but must execute a codicil and have it witnessed with the same formalities as the original will. If you change the will too often there can be complications at your death regarding the “correct” or “last” distribution plan. At your death, the person you nominate as your Executor will distribute your property according to the Will. However, your will may have to be probated; see below.
THE DIFFERENCE BETWEEN A “LIVING WILL” AND A “WILL”
OK, that’s easy; but it’s one of the most misunderstood differences. .A “will” is about property when you die. A ‘living’ will is about your health: keep me alive; pull the plugs. There used to be a separate form in California for a living will. Now, that form is rolled into the Advance Health Care Directive
Next Month: Living Trust
What Happens to the estate if the deceased does not have a will? If a person chooses to have an attorney prepare documents, how should they prepare for the appointment? The difference between “revocable” and “irrevocable” living trust
Helene V. Wenzel is a solo practitioner in Estate Planning and Elder Law. Her estate planning practice includes the preparation of wills, trusts, durable powers of attorney and advance health care directives; trust administration; and probate. Her Elder Law practice focuses on planning for incapacity; conservatorships; long-term and Nursing Home care; asset management and Medi-Cal eligibility.
Helene is past President of the Northern California Chapter of the National Academy of Elder Law Attorneys (www.NAELA.org), the largest elder law association of attorneys in the country. Helene regularly addresses community meetings, attorneys and other concerned professionals about estate planning and elder law concerns.
RESOURCES: ADVANCE DIRECTIVE
California Health Care Association. www.cmanet.org/resource-library/detail?item=advance-health-care-directive-kit-english. See website for cost of Advance Health Care Directive Kit (English).
California Hospital Association. www.calhospital.org/resource/advance-health-care-directive. Download
FREE Form 3-1: Advance Health Care Directive (English/Spanish).
Five Wishes – Aging with Dignity. http://www.agingwithdignity.org/five-wishes.php
Who you want to make health care decisions for you when you can’t make them. The kind of medical treatment you want or don’t want. How comfortable you want to be. How you want people to treat you. What you want your loved ones to know.
Physician Orders for Life Sustaining Treatment. To download “POLST FOR Patients and Loved Ones,” visit http://capolst.org.
State Bar of California educational guide Seniors and the Law: A Guide for Maturing Californians section titled “PLANNING AHEAD.” To request publications contact 1-888-875-5297 or visit www.calbar.gov.
RESOURCES: WILLS
Write Your Will Workshop, Write Your Will Seminar, and Introductory to Wills & Trusts are held at various branches of the San Francisco Public Library. You can find information on upcoming sessions at sfpl.org
SAVE THE DATE: April 16 – National Healthcare Decisions Day!
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors—Elder Diary: Starter Kit, ©2007, is available for your care planning needs—mattesonecs@yahoo.com
March 2015
Learning from Grief
The subject of grief is emotionally challenging and explains the deficiency in family pre-needs planning.
Being a health care professional does not lessen coping with the loss of a loved one.
Clergy were contacted for contribution to this article, but did not respond; therefore, the article addresses the subject of grief from a medical terminology perspective. For specific questions and advice, please contact your health care professional. If you require legal advice, you should seek the services of an attorney.
As an advocate for National Healthcare Decisions Day (April 16), I encourage you to discuss advance care planning and complete an Advance Directive form so that your representative can speak for you should you become unable to speak for yourself. This will facilitate the grieving process [in the event of a death in the family].
Words of Wisdom
Say ‘I love you’ and ‘goodbye’ every day to your loved ones while they are alive.
Keeping secrets from adult children complicates the grieving process. The offspring need this information, especially if they are the executor of the estate.
Your age and the length of time you knew the deceased affects the grieving process.
Read books on the subject to know what to expect as you go through the grieving process.
People will take advantage of your vulnerability (e.g., before your loved one has been buried: a realtor solicits you to sell your house; a neighbor wants to buy your house for an offspring). These actions are disrespectful to the griever!
Your coworkers are not your grief companion. Limit your discussion. They will ask probing questions, listen, share ‘their loss’ story, and then complain to your supervisor about having the conversation.
Death changes relationships. Not everyone you know has a need to know of your loss.
Take enough time off from your job.
The first 60 days following the death of a loved one are the most crucial. Important decisions have to be made that cannot be postponed and require discussion with an attorney. Any irreversible decisions should be postponed and decided after considerable thought and discussion with an attorney.
If you are experiencing medical complaints, you should seek medical care from a medical doctor who recognizes your symptoms as part of the grieving process and prescribes an appropriate treatment plan.
In time, you will be able to adjust to a new chapter in life’s journey—planning for new goals, cherishing the memories and finding hidden gifts. Those gifts may be hidden amongst the clutter.
DEFINING GRIEF
Grief reaction is a bereavement by the death of, or separation from a significant person which may be first expressed by feelings of numbness and later by profound yearning for the lost one, restlessness and psychophysical responses. It may also be related to matters of importance such as enforced retirement or loss of home. (Understanding Medical Terminology)
Facts about grief response
Louis E. La Grand, PhD explains grief response in Healing Grief, Finding Peace:
• Grief is your response to deep love—an essential of life.
• Grief is exclusively individual.
• A condition—legitimate suffering.
• In the mourning process we start a transition, in effect to build a new persona and way of life.
• Healing grief is a natural process.
Types of grief
Chronic grief is the unresolved denial of the reality of a personal loss. Also called dysfunctional grieving.
Anticipatory grief is the intellectual and emotional responses and behaviors by which individuals (families, communities) work through the process of modifying self-concept based on the perception of potential loss.
It is characterized by sorrow; guilt; anger [choked feelings]; denial of potential loss; denial of the significance of the loss; Expression of distress at potential loss, [ambivalence, sense of unreality]; bargaining; Alterations in activity level, eating habits, sleep patterns, dream patterns, libido.
Dysfunctional grieving is the extended, unsuccessful use of intellectual and emotional responses by which individuals (families, communities) attempt to work through the process of modifying self-concept based upon the perception of potential loss.
It is characterized by Persistent anxiety; Depression; Altered activities of daily living; Prolonged difficulty coping; Loss-associated sense of despair; Intrusive images; Feelings of inadequacy; Decreased self-esteem; Diminished sense of control; Dependency; Death anxiety; Self-criticism.
Risk for dysfunctional grieving is the at risk for extended, unsuccessful use of intellectual and emotional responses and behaviors by an individual (family, community) following a death or perception of loss.
Risk factors include Preloss neuroticism; Preloss psychological symptoms; Frequency of life events; Predisposition for anxiety and feelings of inadequacy; Past psychiatric or mental health treatment.
(Taber’s Cyclopedic Medical Dictionary)
Disenfranchised grief is losses that are not socially recognized or sanctioned and given status of culturally recognized losses; therefore, they are not publically mourned. Formal rituals are limited or nonexistent. It may also occur to professional caregivers after the death of a patient. (La Grand, p. 189)
Ambiguous loss involves a lack of certainty that a loved one has died. May be psychological as well as physical (addictions, Alzheimer’s disease, comas caused by accidents). (La Grand, p. 196)
PHYSICAL RESPONSES OF GRIEF
Dr. La Grand describes the physical responses of grief as thus: “Sadness and sorrow will be expressed throughout the body in painful ways. Headaches, digestive disturbances, stress-related disorders of sleep and fatigue, and various aches and muscle pains are not uncommon when grieving. The degree of physical discomfort is directly proportional to the constant sad and hopeless thoughts you dwell on without deliberately deciding to take a break.”
EMOTIONS ASSOCIATED WITH GRIEF
Emotions associated with grief include: sorrow, longing (to see them again), guilt, numbness, anger, hopelessness, loneliness, and despair. (www.counselling-directory.org.uk/bereavement.html)
HOW WE GRIEVE
Elisabeth Kübler-Ross, MD explains how we grieve in her book, On Death and Dying:
Children
Young children have different concepts of death, and they have to be taken into consideration in order to talk to them and to understand their communication.
Children will react differently to the death of a parent…
Adolescent
Things are not much different than with an adult. The loss of a parent, in addition to adolescence, is often too much for them to endure.
Adults
Five Stages of Grief
Denial and Isolation: Denial is usually a temporary defense and will soon be replaced by partial acceptance.
Anger: When denial cannot be maintained any longer, it is replaced by feelings of anger, rage, envy and resentment. “Why me?”
Bargaining: An agreement which may postpone the inevitable from happening. Making a bargain with God in exchange for some additional time. Sets an imposed deadline (e.g., an offspring’s wedding).
Depression: A sense of great loss replaces anger and rage.
Reactive depression: Depression that is usually self-limiting following a serious event such as a death in the family, the loss of a job, or a personal financial catastrophe. The disorder is longer lasting and more marked than the usual reaction. (Taber’s)
Preparatory depression: Is taking into account impending losses. Preparatory grief. Preparing for final separation in order to facilitate the state of acceptance.
Acceptance: Almost void of feeling. (pp. 52, 63, 93, 97, 124, 185.)
DEFINING BEREAVEMENT
Bereavement is the time we spend adjusting to loss. The period of grief and mourning we go through after someone close to us dies. The expected reactions of grief and sadness upon learning of the loss of a loved one.
Stages of Bereavement
• Accepting that your loss really happened.
• Experiencing the pain that comes with grief.
• Trying to adjust to life without the person who died.
• Putting less energy into your grief and finding a new place to put it (i.e., moving on).
Bereavement Counseling
Bereavement counseling is designed to help people cope more effectively with the death of a loved one. Specifically, bereavement counseling can:
• Offer an understanding of the mourning process.
• Explore areas that could potentially prevent you from moving on.
• Help resolve areas of conflict still remaining.
• Address possible issues of depression or suicidal thoughts.
Bereavement counseling aims to get you to a point where you can function normally—however long it takes. (www.counselling-directory.org.uk/bereavement. html)
Bereavement Support Groups
Bereavement support groups provide opportunities for you to discuss your experiences and learn about grief with others who have experienced loss. (http://www.ucsfhealth.org/education/bereavement_services _and_information/bereavement_ resources_and_services/)
For a list of support groups, see “Senior Smarts: Coping with the Holidays During Bereavement” (December 2014) at www.westsideobserver.com/health.html.
MOURNING
Mourning is normal grief produced by the death of a loved one. It is an important part of bereavement. Mourning involves rituals—funerals, wakes—allows us to say goodbye.
Cyber mourning is the use of social media by mourners to express their condolences.
RITUALS
Formal and informal ritual promotes connection to the deceased and helps survivors by giving support, facilitating transition, and providing comfort. Ritual connections help establish an important pathway to accepting loss, establishing a new relationship with the deceased.
GRIEF COMPANION
Grief companions are people who will stand with you, listening to the pain being experienced and expressed.
GRIEF COUNSELOR
Grief counseling is a form of psychotherapy that aims to help people cope with grief and mourning following the death of loved ones, or with major life changes that trigger feelings of grief (e.g., divorce). (http://en.wikipedia.org/wiki/Grief_counseling)
CHAPLAIN
A chaplain is accountable as part of a professional patient care team; provides supportive care through emphatic listening, demonstrating an understanding of persons in distress; provides grief loss care; designs and leads religious ceremonies of worship and rites (memorials and funerals). (www.healthcare chaplaincy.org/userimages/professional-chaplaincy-its-role-and-importance-in-healthcare.pdf)
HEALING
Dr. La Grand explains how grief helps you heal and be at peace with the loss:
To successfully heal from suffering the death of a loved one is peace of mind through radical acceptance.
To help yourself experience inner peace: increase your ability to relate to others with courtesy, respect and humility, even as you grieve.
A crucial task of grieving is to establish new routines; create a nurturing support network; recognize when denial has run its course; “bad days” are normal; honor your spiritual self; start loving in separation; never self-pity.
GRIEF JOURNAL
Dr. La Grand explains:
Writing is a major therapeutic release.
Writing a journal serves as tool for managing the pain of grief. It helps you gain perspective and understanding of life that you did not possess previously.
Write in the journal at a selected time each evening or whenever you feel overwhelmed by feelings that need to be expressed.
Write your “specific” goals, either the night before or the first thing in the morning. Identify exactly what you want to get through and how you will do it as the day unfolds. (pp. 105-108)
WORDS OF CONSOLATION
“After the funeral, after the departure of relatives—family members feel most grateful to have someone to talk to, especially if it is someone who had recent contact with the deceased and can share anecdotes of some good moments towards the end of the deceased’s life. This helps the relatives over the shock and the initial grief and prepares him for gradual acceptance.” (Kübler-Ross, MD, p. 184)
RESOURCES: GRIEF COUNSELING/SUPPORT GROUPS
San Francisco Suicide Prevention. www.sfsuicide.org. Crisis Line: (415) 781-0500 or (800) 273-TALK (8255). Crisis Lines are for anyone experiencing crisis, grief or distress. Grief Support Group: Eight week peer led (not clinical) support groups for people who have lost a loved one to suicide. For information, call (415) 288-7105.
St. Mary’s Cathedral. www.stmaryscatheralsf.org. Sessions provide information on grief process, and tips on coping with loss of a loved one. Third Wed., 10:30 am-noon. Contact: Sr. Esther McEgan, RSM, (415) 567-2020, ext. 218.
Institute on Aging. Center for Elderly Suicide Prevention and Grief Counseling. www.ioaging.org/ collaborations-elder-protection/center-for-elderly-suicide-prevention/grief-services. 8-Week Basic Traumatic Grief Group, 8-Week Advanced Traumatic Loss Grief Group, Monthly Traumatic Drop-In Grief Group, Saturday morning Drop-In Grief Group, and Individual Trauma Loss Grief Counseling. Contact (415) 750-4111 for more information or to enroll.
Life Transitions Network (LTN). www.transitionalworkshops.com. (415) 263-4822. Moving Through Loss and Transition workshops provides a safe place to share your story, fully experience your feelings and learn new approaches to coping with losses and obstacles of all kinds
RESOURCES: BOOKS
Available at San Francisco Public Library:
How we grieve: relearning the world. Thomas Attig (1996).
Bereavement: counseling the grieving throughout the life cycle. David A. Crenshaw (1990).
The Mourning Handbook: The Most Comprehensive Resource Offering Practical and Compassionate Advice on Coping with All Aspects of Death and Dying. Helen Fitzgerald (1995, c1994).
Death and the family: the importance of mourning. Lily Pincus (1974).
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors, forum host Caring for an Aging Loved One (forums.delphiforums. com/ elder_care)—mattesonecs@yahoo.com
February 2015
Coping with the Holidays During Bereavement
By Anise J. Matteson
Christmastide is the festival season from Christmas Eve until after New Year’s Day.
Christmas is observed as a legal holiday that commemorates the birth of Christ—a Christian feast on December 25 or among Eastern Orthodox on January 6. It is observed with religious ceremonies and prayer.
The word Christmas comes from the early English phrase Christes Masse, which means Christ’s Mass.
This article is intended to provide solace for families coping with an anticipated loss or who have lost a family member this year.”
Many people write Xmas instead of Christmas. This form of the name originated in the early Christian Church. In Greek, X is the first letter of Christ’s name. It was frequently used as a holy symbol.
Christmas is a family occasion—relatives gather to exchange gifts and share their happiness.
The custom of exchanging Christmas gifts is a tradition associated with the gifts the Wise Men brought the Christ Child. Gifts are homemade or bought and wrapped with bright paper and ribbons.
Santa, a symbol of gift giving, creates an atmosphere of cheerfulness.
Family dinner consists of: meat, potatoes, vegetables, dressing, gravy, cranberry sauce, nuts and fruits. Dessert: fruit cake, plum pudding, pumpkin or mince pie. Drinks: eggnog.
Usually the word “White Christmas” is associated with snow at Christmastime. It is also a term associated with churches and social groups celebrated as a way of sharing. Several days before Christmas, members of the group wrap canned goods, turkeys, and other foods in white paper. They distributed these gifts to needy persons in the community. This tradition continues today with receptacles throughout the city for donating food items or purchasing a $10 bag of groceries for supermarkets to donate to a charity. (The World Book Encyclopedia)
HOLIDAY COPING STRATEGIES
This article is intended to provide solace for families coping with an anticipated loss or who have lost a family member this year.
To all my readers, may you and your loved ones enjoy a Merry Christmas and a healthy New Year.
Evaluate Your Coping Plans
♥ Do your plans isolate you?
♥ Do your plans reflect what a particular holiday means for you?
♥ The most difficult part of the holiday season?
♥ The most difficult people to be with?
♥ Grief triggers?
♥ Traditions you want to include?
♥ Traditions you do not want to include?
♥ People you would like to be with you?
♥ People you do not want to spend the holidays with?
♥ Things that might help you when you are feeling intense grief?
Assert Yourself
Dr. Louis E. LaGrand offers the following advice in his book Healing Grief, Finding Peace:
♥ Your needs come first. Tell family and friends specifically what you can and cannot do.
♥ You may want to eat out, have someone else hold it this year, or have others assume more responsibility.
♥ You don’t have to follow the exact schedule or routines of the past. Consider starting a new tradition.
♥ There is nothing wrong with reducing the amount of time you spend at events or in preparation for the day. Tell all concerned what your level of participation will be.
♥ Find a way to symbolically honor your deceased loved one. Make it a habit to acknowledge the memory of your loved one at major family events. It’s okay if tears flow.
♥ Tell yourself and accept the fact that the holidays will be different. Identify what emotions you are feeling and express them to your grief companion.
♥ Diligently manage your anticipation. Keep things simple and focus on the values, beliefs, joy, and wisdom of the deceased. Remember that laughter and a smile are still important parts of life.
TIPS FOR ADULTS ON PROVIDING EMOTIONAL SUPPORT FOR THEIR KIDS
DURING THE HOLIDAYS
Be aware of the behavior of adults, particularly parents on a grieving child. Parents must let the child know that adult tears are not a rejection of the child.
Don’t avoid long-standing family tradition. Traditions are often comfortable for the children. (e.g., decorating the tree, lighting the candles, the big family dinner.) Focus on available support from family and close friends.
Create a specific time during the holiday season to talk as a family about favorite memories of the person who dies.
Provide children with special amounts of attention, praise and emotional support.
Take an active role in helping the child cope.
Pay attention to cues and talk openly about how natural it is to be thinking of your loved one.
Recognize that the child may have questions about the death…Be patient and honest in your answers.
Provide reassurance through actions as well as words.
Recognize that children need to talk, not just to be talked to.
©Suggestions provided by: Hospice by the Bay, from: Helping Children Cope With Grief, by Dr. Alan Wolfelt—printed with permission of Hospice by the Bay for inclusion in Elder Caregivers NEWSLETTER – October 2003, p. 8.
GENERAL TIP FOR ADULTS ON PROVIDING EMOTIONAL SUPPORT FOR ADOLESCENTS
They should be listened to and allowed to ventilate their feelings, whether they be guilt, anger or plain sadness. (Elisabeth Kübler-Ross, MD, On Death and Dying, p. 185.)
SYMPATHY NOTE
How to write a letter to enclose with a holiday card to someone who has experienced the death of a loved one?
Barbara Kate Repa, Senior Editor at Caring.com has these suggestions:
♥ A handwritten note.
♥ Avoid explanations or excuses for tardiness.
♥ The note can be brief or long. The intent is to convey that you are thinking of him or her and sending support.
♥ Concentrate on extending sympathy rather than personal updates. Do not inject recounting your own loss.
♥ If you do not know what to say, phrases often used are:
With deepest sympathy,
Our heartfelt condolences,
My heart goes out to you and your family.
I’m so sorry for your loss.
_______ will be sorely missed.
Your family is in my thoughts and prayers.
♥ Use the deceased’s name.
♥ Talk about the deceased. Include specific comments about the person who died—an anecdote that captured the person’s personality, comment on how the person inspired or taught you or made you happy.
♥ Skip the unpleasantries (drudging up past disagreements, sums of money owed, comparison to other relatives death, apologies or explanations for having been out of touch or less-than-flattering words about the deceased).
♥ Avoid platitudes—clichés about death.
♥ Write from your heart.
♥ Include your return address and full name.
(www.caring.com/articles/sympathy--note)
CHEF’S CORNER
Everyone is invited to share your favorite holiday recipes for appetizers, soups, salads, meat, potatoes, dressing, gravy, desserts (cakes, pudding, pies), beverages and their history for easy-to-prepare meals for seniors and caregivers at Caring for an Aging Loved One Forum at http://forums. delphiforums.com/elder_care. Nutrition. Click on Holiday Recipes.
SUPPORT GROUPS
Support groups reduce the sense of isolation, become networks for cultivating new friends who understand what you are going through, provide a place where you can really tell it like it is. (Dr. Louis LaGrand. Healing Grief, Finding Peace, p. 169.)
Association for Death Education and Counseling. www.adec.org. Networking Groups: Online year-round on ADEC’s group page on Linked-In. Free for members to join and participate in discussions, share links and resources, ask questions and meet fellow ADEC members. Participation in Networking Groups is limited to ADEC members. To join, send an email to the Networking Group Chair. Bereavement Support Groups: Grief and Families. Grief at Work. Grief Camp. Hospital-Based Bereavement Programs.
Pathways. www.pathwayshealth.org/grief-support/support-groups.html. From September through June, Pathways provides separate support groups for loss of a parent, a spouse or a child. Groups examine common grief issues such as coping skills, loneliness, anger, “normal” grief and lifestyle changes. Afternoons (San Francisco – Weds). (650) 808-4603 or (510) 613-2092.
Caregiver Resilience Group: Meets in San Francisco 94102. (415) 801-0882.
Free Drop-In Support Group: Meets Fri. in San Francisco 94117. (415) 789-3759.
12 Week Grief Recovery Program: Meets Tues. in San Francisco 94131. (415) 691-7807.
Love, Loss and Letting Go: A Grief Process Group: Meets in San Francisco 94114. (415) 767-1585.
Widows Retreat: Brentwood, CA 94513. (925) 308-5494.
Hospice by the Bay Grief Support Groups. www.hospicebythebay.org/index.php/about/calendar/ grief-support-groups. Free Drop-In Support Group – SF: Comfort, emotional support and healing advice after the loss of a loved one. Weekly. No registration required. (415) 526-5699.
HOLIDAY EVENTS
Holiday Bazaar: San Francisco Senior Center. 481 O’Farrell St. (415) 771-7950. Holiday Bazaar Preview Sale. Contact the Senior Center in November for dates and details.
Holiday Meal: Richmond Senior Center. 6221 Geary Blvd. (415) 752-6444. Call in October for information on: Thanksgiving Meal, Christmas Meal and New Year’s Day Meal. Meals are served 11:45 am. It is recommended that you call ahead. Suggested Donation: $.
Holiday Event: Stonestown YMCA – Senior Annex. 3150 20th Ave. (415) 242-7135. Hot Lunches: Monday through Friday. Holiday Events Calendar and ongoing events. Contact the Senior Annex.
Nutcracker Ballet: War Memorial Opera House. www.sfballet.org. 301 Van Ness Ave. (415) 865-2000. No senior or children discount.
Christmas Concert: Davies Symphony Hall. www.sfsymphony.org. Grove St./Van Ness Ave. (415) 846-6000. Concerts for the kids, adults, the whole family.
(©Elder Caregivers NEWSLETTER – October 2013, p. 11.)
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors including Coping with the Holidays: Excerpts from Elder Caregivers NEWSLETTER, ©2007, and forum host for Caring for an Aging Loved One. cfaalo@yahoo.com.
December 2014
Alzheimer’s Awareness
By Anise J. Matteson
November is National Alzheimer’s Awareness Month!
Viewing the symptoms of Alzheimer’s as normal may result in delayed access to treatment and services.
In many cultures, the symptoms of Alzheimer’s and related disorders is viewed as part of the normal aging processes.
Benefits of early diagnosis
With early consultation, there is more Mild Cognitive Impairment and Early Alzheimer’s Disease diagnoses.
Individuals benefit from available treatments, eligibility for clinical trials, and can take an active part in planning for the future.
DIFFERENCE BETWEEN ALZHEIMER’S DISEASE AND DEMENTIA
Alzheimer’s disease is a geriatric mental disorder of older adults occurring in people over 65. Early onset [younger-onset] Alzheimer’s occurs before the age of 65. Senile dementia of the Alzheimer’s type [SDAT] is the most common form. The presenile form can begin between the ages of 40 and 60 [occurring before the expected onset of age-related changes— in middle age]. A chronic progressive degenerative cognitive disorder that accounts for more than 60% of all dementias; pathologically characterized by cortex atrophy, loss of nerve cells, senile plaques in gray matter and neurofibrillar degeneration. The onset of dementia is insidious. The person loses interest in social contacts, becomes anxious, depressed, disoriented; aphasia, agnosia and apraxia develop; the gait shows a hesitant shuffle and incapacitating flexion contractures mark the terminal decerebrate phase of life.
Dementia is an irreversible impairment of cognitive intellectual capacities, marked by memory impairment and, often, deficits in reasoning, judgment, abstract thought, registration comprehension, learning, task execution, and use of language. The cognitive impairments diminish a person’s social, occupational, and intellectual abilities. Dementia is somewhat more common in women than in men.
Senile dementia of the Alzheimer’s type (SDAT) is dementia occurring in older persons, usually over the age of 65, resulting from Alzheimer’s disease. (medical-dictionary.thefreedictionary.com/senile-dementia-Alzheimer’s-type)
SYMPTOMS
Cognitive: Symptoms that affect memory, awareness, language, judgment and ability to plan, organize and carry out other thought processes.
Behavioral: A group of additional symptoms that occur to at least some degree in many individuals with Alzheimer’s.
In early stages people may experience personality changes such as irritability, anxiety or depression.
In later stages, individuals may develop sleep disturbances; wandering impulses; agitation (physical or verbal aggression, general emotional distress, restlessness, pacing, shredding paper or tissues, yelling); delusions (firmly held belief in things that are not real); or hallucinations (seeing, hearing or feeling things that are not there). (Brochure #770-10-0003, p. 24.)
THE BRAIN: HOW ALZHEIMER’S AFFECTS IT
Plaques and tangles begin in the brain area involved in memory. They gradually spread to other areas. Eventually much of the brain is affected.
Plaques are deposits of a protein fragment called beta-amyloid that build up in the spaces between nerve cells.
Tangles are twisted fibers of another protein called tau that build up inside cells.
The destruction and death of nerve cells causes memory failure, personality changes, problems in carrying out daily activities and other symptoms of Alzheimer’s disease. (Brochure #770-10-0003, p. 12.)
In an October 25, 2011 email from Angela Geiger, Chief Strategy Officer, Alzheimer’s Association, “The Brain: How it works & how Alzheimer’s affects it,” Geiger offers these tips:
“Stay physically active: Physical exercise helps to maintain good blood flow to the brain and encourages the growth of new brain cells.
Eat a healthy diet: High cholesterol may contribute to stroke and brain cell damage, so follow a low-fat, low-cholesterol diet.
Remain socially active: Social activity can reduce stress levels, which help maintain healthy connections among brain cells.
Stay mentally active: Mental stimulating activities strengthen brain cells and the connections between them, may even create new nerve cells.”
The interactive brain tour can be found at alz.org/brain.
WHO IT AFFECTS
Statistics: An estimated 5.4 million Americans have Alzheimer’s and include 13 percent over age 65 and 50 percent 85 and older; seventy percent living at home—the impact affects family members, caregivers and friends.
Baby Boomers began turning 65 in 2011 creating an increase in the number of persons with Alzheimer’s. By 2030, the percentage of persons age 65+ with Alzheimer’s is expected to increase to over 19 percent.
In 2030 the average life expectancy will reach 81 years; by 2050—83 years.
Nearly two-thirds of Americans living with Alzheimer’s are women. About 13 million women are either living with Alzheimer’s or caring for someone who has it.
Risk Factors: Risk factors for developing Alzheimer’s are age, family history and genetics, and race. Latinos and African-Americans are at risk because they have higher rates of vascular disease. Other risk factors—serious head injury (auto, sports, falls), or conditions that damage the heart and blood vessels (heart disease, diabetes, stroke, high blood pressure and high cholesterol)—vascular dementia.
10 WARNING SIGNS OF ALZHEIMER’S
Memory changes that disrupt daily life
Challenges in planning or solving problems
Difficulty completing familiar tasks at home, at work or at leisure
Confusion with time or place
Trouble understanding visual images and spatial relationships
New problems with words in speaking or writing
Misplacing things and losing the ability to retrace steps
Decreased or poor judgment
Withdrawal from work or social activities
Change in mood or personality
10 Warning Signs Brochure
THE STAGES OF ALZHEIMER’S DISEASE
According to the Alzheimer’s Association, a system for defining the seven stages of Alzheimer’s was developed by Barry Reisenberg, MD:
STAGE 1: No impairment. Normal function. The person does not experience any memory problems.
STAGE 2: Very mild decline. May be normal age-related changes or the earliest signs of Alzheimer’s. The individual may feel that he or she is having memory lapses—forgetting familiar words or the location of everyday objects.
STAGE 3: Mild cognitive decline. Early-stage Alzheimer’s may be diagnosed in some but not all individuals at this point. Friends, family or co-workers may notice difficulties.
STAGE 4: Moderate cognitive decline. Mild or early-stage Alzheimer’s. At this point, a careful medical interview should be able to detect clear-cut problems in several ways.
STAGE 5: Moderately severe cognitive decline. Moderate or mild stage dementia. Gaps in memory and thinking are noticeable, and individuals begin to need help with day-to-day activities.
STAGE 6: Severe cognitive decline. Moderately severe or mid-stage Alzheimer’s. Memory continues to worsen, personality changes may take place and individuals need significant help with daily activities.
STAGE 7: Very severe cognitive decline. Severe or late-stage Alzheimer’s. In the final stage of this disease, individuals lose the ability to respond to the environment, carry on a conversation and, eventually, to control movement. They may still say words and phrases.
At this stage, individuals need help with much of their daily personal care, including eating or using the toilet. They may also lose the ability to smile, to sit without support and to hold their heads up. Reflexes become abnormal. Muscles grow rigid. Swallowing is impaired. (Brochure #770-10-0003, pp. 19-22.)
CARE PLANNING
Finding a doctor
Your local chapter of the Alzheimer’s Association can help you find the right doctor.
Family meeting
Hold family meetings to discuss your loved ones care needs. The Alzheimer’s Association can help caregiver’s plan together after diagnosis. Call (800) 272-3900 for a copy of “How to Hold a Family Meeting.”
Legal issues
Advance care planning for health care discussion-making when your loved one is no longer able to speak for themselves (e.g., Durable Power of Attorney, Advance Health Care Directives, will).
Medical issues
Setup a health care journal [elder diary] to assist the caregiver (and the elder, if able) with organizing medical information (e.g., Advance Health Care Directive, Durable Power of Attorney, instructions from health care professionals, medications, treatments, lab results).
Screening
Evaluation for diseases before they become clinically obvious. Screening can play an important part in early diagnosis and management of selected illnesses.Memory Screening: November 18 is Alzheimer’s Foundation of America’s National Memory Screening Day to promote early detection of memory problems including Alzheimer’s.
PROBLEM MANAGEMENT
Medic Alert ID
Medical identification continues to be a critical lifesaving tool for millions of people every day. Anyone living with diabetes, asthma, heart conditions, stroke risk, memory impairment, or allergies such as insect, food or medicines should wear a custom-engraved ID, in case they are unconscious and unable to speak for themselves. And those who are the primary caregiver for many individuals with these conditions should also wear a medical ID in order to ensure their loved one receives the attention they need. ©Information courtesy of Dick Van Slyke, American ID. ©2007. Caring for an Aging Loved One: The Family Caregiver’s Guide Book. (Matteson).
Wandering
Medical Alert® + Alzheimer’s Association Safe Return®: A 24-hour emergency response service that provides assistance when a person with dementia wanders and becomes lost or has a medical emergency. Enroll at (888) 572-8566 or alz.org/safereturn. (Brochure #770-10-0003, p.29.)
GPS Shoe: When a person wanders off from a pre-set distance, the caregiver will immediately receive an alert to their smartphone and computer, with a direct link to a Google map plotting the wanderer’s location. Available online through the Aetrix e-commerce site (www.aetrex.com). ©Information courtesy of Jerry Barber, SVP of Business Development, GTX Corp (GCT.013) for Caring Boomers Newsletter ©2011.
A June 25, 2014 email received from GTX Corp. announced the availability of its products on Amazon.com: “The first products offered include the company’s VL2000 Take-Along GPS Tracker and the Code Amber Alertags.”
Alzheimer’s Association Comfort Zone®: A web-based GPS location management service that allows families to monitor a person with Alzheimer’s.
Alzheimer’s door lock: Attaches to the inside of the door. Simple to use and people who experience Alzheimer’s cannot operate this lock. Available at Assist Security Product Div. of ALS,LLC,www.assistsecurityproducts.com.
Silver Alert: A public notification system in the United States to broadcast information about missing persons—especially senior citizens with Alzheimer’s disease, dementia or other mental disabilities – in order to aid in their capture.
Silver Alerts use a wide array of media outlets–such as commercial radio stations, television stations, and cable television – to broadcast information about missing persons. Silver Alerts also use variable-message signs on roadways to alert motorists to be on the lookout for missing seniors. In cases in which a missing person is believed to be missing on foot, Silver Alerts have used Reverse 911 or other emergency notification systems to notify nearby residents of the neighborhood surrounding the missing person’s last known location. (http://en.wikipedia.org/wiki/Silver_Alert.)
Name Label: Something not mentioned by the Alzheimer’s Association—sewing name label in clothing. If the person is not wearing a medic alert ID or GPS shoes, they can be identified by emergency responders.
SUPPORT GROUPS
Early Stage Group: Institute on Aging (San Francisco)
Mild Cognitive Impairment Support Group: VA Palo Alto Health Care System (Palo Alto)
S.F. (1): Open Discussion. 2nd Wed, 2-330pm. Institute on Aging, Alzheimer’s Adult Day Care. 750-5330 x368.
S.F. (2): Adult Children Caregiver Support Group, 3rd Tues, 5-630pm. Institute on Aging, Alzheimer’s Day Care. 750-5330 x368.
S.F. (3): Cantonese Language. 3rd Wed, 5-630pm. Self-Help for the Elderly, Adult Day Care Services. 677-7556.
S.F. (4): Open Discussion. 1st Sat, 1030am-noon. Institute on Aging, Alzheimer’s Day Care. 750-5330 x370.
S.F. (5): Support Group for Lesbian, Gay, Bisexual and Transgender Caregivers. Date & Time TBA. (925) 284-7942 or (650) 962-8111.
S.F. (8): Open Discussion. 2nd Thu, 1-230p. Jones United Methodist Church. 921-7653.
(www.alz.org/norcal/documents/12-2010-bayarea.insert_web.pdf)
Telephone Support Groups: Dementia Caregiver Group. 4th Mon, 7-830pm. Register: (800) 272-3900. www.alz.org/norcal/in_my_community_support.asp.
Learning Circles: Designed to help caregivers seeking additional support and knowledge about Alzheimer’s disease. Meets monthly. www.alz.org/norcal/in_ my_ community _support.asp.
RESOURCES
Alzheimer’s Association Northern California Chapter. www.alznorcal.org.
· 24/7 Helpline: Provides information, referral and care consultations in more than 140 languages.
· Website: Provides comprehensive information about Alzheimer’s disease and how the Association can help those affected.
· Support groups.
· Educational workshops.
· Green-Field Library: Resource center devoted to Alzheimer’s and dementia.
· Educational materials: Provides information about all aspects of Alzheimer’s—for individuals with Alzheimer’s; for Spanish-speaking audience; for African-American audiences; for caregivers.
· Support: Many chapters also provide special programs tailored to their communities including services for African-Americans, Latinos, rural residents and those who live alone.
· Brochure #770-10-0003*: “basics of alzheimer’s disease: What it is and what you can do.”
· Local Association: Alzheimer’s Association – Northern California Chapter. www.alznorcal.org.
· Alzheimer’s Association Northern California & Northern Nevada Newsletter. www.alz.org.norcal. Print subscription and weekly e-newsletter.
Alzheimer’s Foundation of America. www.alzfdn.org. Provides optimal care and services to individuals confronting dementia, and their caregivers and families—through member organizations dedicated to improving quality of life.
care Advantage magazine. www.alzfdn.org. www.afacareadvantage.org. A FREE magazine for caregivers of people with Alzheimer’s disease and related illnesses.
Catholic Charities CYO. cccyo.org. San Francisco Adult Day Services, Alzheimer’s Day Care Resource Center. Access to extensive counseling and assistance with in-home-help referrals, financial counseling, and discussions about the difficulties of caring for loved ones for families and caregivers with Alzheimer’s disease.
Institute on Aging. www.ioaging.org.
· A 24-hour Support Hotline (Friendship Line)
· Adult Day Health and Social Programs
· Alzheimer’s Day Care Resource Center
· Art Programs
· Care Coordination and Care Management
· Elder Abuse Prevention Resources
· Counseling and Bereavement Services
· Education programs
· Elder Suicide Prevention Services
· Financial Management and Estate Planning
· Geriatric/Psychological Assessment Services
· Home Care
· Information and Referral
· Medication Monitoring and Reminders
· Memory Care Services
· Spiritual Care and Support
(Services for Seniors and Adults with Disabilities. City & County of San Francisco Dept. of Aging and Adult Intake Program, p.34)
Family Caregiver Alliance. www.caregiver.org.
· Offers free and low-cost services to caregivers.
· Information and Referral: Information about caregiving issues, including care for someone with Alzheimer’s disease and other dementias, and strategies for taking care of yourself. Fact Sheets, newsletters, publications on health conditions, care planning, legal issues and other topics.
· Family consultation.
· FCA Respite Options
· Legal/Financial Consultations
· Education and Support
· Online Services
o www.caregiver.org: FCA publications, newsletters, online support groups and more.
o Link2Care: A secure password-protected dementia care website offering a caregiver discussion group, free access to health and legal experts, journals with guided exercise, and care-related articles.
o Learning Together: Sign up online to find out about upcoming classes and workshops.
o Caregiving Policy Digest: Bi-monthly e-newsletter. Focuses on public policy issues.
o California Caregiver: Monthly e-newsletter designed for families and caregivers who live in California.
Transitioning
New LifeStyles (San Francisco Bay). www.NewLifeStyles.com. Provides a listing of Memory Care facilities in alphabetical order from Alameda to Walnut Creek for those with Alzheimer’s and other dementia.
Memory Care: Communities offering specialized programs for residents suffering from Alzheimer’s disease or other forms of memory loss. These programs can be offered by Residential, Assisted Living or Nursing communities. (p. 8)
San Francisco Alzheimer’s and Dementia Clinic: www.sfcrs.com. San Francisco Clinical Resource Center participates in clinical trials.
Senior Gems Program. www.seniorhelpers.com. Emphasis on what clients are still able to do. Caregivers use techniques designed to: foster supportive communication; promote positive environment; provide meaningful activities. Senior Gems classification system allows Senior Helpers to understand which stage of dementia the person is experiencing for care planning and selecting a caregiver for the individual. Complementary Senior Gems® DVD: An information DVD that can assist in your efforts to help your family with this disease.
If you are a caregiver or the loved one of someone who is caring for a person with Alzheimer’s, who takes care of you? Caregiving impacts the caregiver’s emotional well-being, health, employment and financial security. Your stress level is elevated. Your diet habits change. Where is the time for exercising? With the holidays approaching, it is a hectic time for the elderly, ill, families and friends. May this article provide information and support. I wish you and your loved ones the holidays best.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books or seniors (Elder Diary: Starter Kit, Caring for an Aging Loved One: The Family Caregivers Guide Book), and Advocate, National Alzheimer’s Awareness Month 2014. Photo courtesy of Dick Van Slyke, American Medical ID. For specific questions and advice, please contact your health care specialist and other professional service provider. If you require legal advice, you should seek the services of an attorney. cfaalo@yahoo.com.
November 2014
Stroke Survival:
Assistive Technology Products
By Anise J. Matteson
I heard about assistive technology products [Proloquo] from a listener who called in to a radio talk show in August 2011 during the segment on Apple Products. Therefore, I included information on computer access and speech software for Windows and Mac OS X in the October 2011 issue of my Caring Boomers Newsletter. New products have been added since then.
Mac OS X SOFTWARE
Proloquo: a multilingual speech and communication solution, Augmentative and Alternative Communication (AAC), for Mac OS X for people who have difficulty speaking or cannot speak. The software offers features for users with limited vision or learning difficulties.
Other Communication Products
Proloquo2Go: an Augmentative and Alternative Communication (AAC) application for iPad, iPod touch and iPhone.
Proloquo4Text: a text-based communication app for people who cannot speak.
Infovox iVox: natural sounding voices and a choice of language.
Layout Kitchen®: functions as an editor for SwitchXS, Proloquo and KeyStrokes® panels and keyboards. Users can design their own switch panels with colorable and resizable buttons containing texts or images.
AssistiveWare describes itself as “a leading innovator of assistive technology software for iOS and Mac OS X and is committed to collaborating with the global community to make a difference in peoples’ lives; offers several assistive technology software products for Apple’s Mac OS X and iPhone, iPad and iPod touch.” For more products/information, visit www.assistiveware.com.
Head-Controlled Computer Access
Headmouse®Extreme: provides head-controlled access to computers and augmentative communication devices for people who have limited or no use of their hands.
WINDOWS SOFTWARE
SofType: an on-screen keyboard with a built-in mouse button utility—Dragger—and can be accessed using a mouse emulator (i.e., HeadMouse®Extreme).
Dragger: a software utility for manipulating the mouse buttons of a standard mouse or mouse emulator [by people who have physical motor challenges].
Origin Instruments Corporation describes itself as “the North American distributor for AssistiveWare, the leading supplier of assistive software for the Apple Macintosh. These products provide solutions for physical access, communications, speech synthesis, and low vision. Develops and delivers access software for Microsoft Windows including SofType and Dragger. Develops and delivers access solutions for people who do not have the ability to control a computer or iOS Device (iPads, iPhone or iPod touch) with their hands.”
You can download free, time-limited, full-function versions of their software for review and email them to request information on their free loan program for assessments, evaluations and demonstrations. For more products/information, visit www.orin.com.
When care planning, contact your health care specialist for specific questions and advice.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors and Caring Boomers Newsletter ©2011. Part IV in a four-part series focusing on stroke was revised August 2014 from the Newsletter for this article. Photo: enablemart.com file. Email: cfaalo@yahoo.com.
October 2014
Adaptive Clothing for Stroke Survivors
By Anise J. Matteson
After a stroke it may be difficult to perform activities of daily living, especially donning and doffing clothes. Simple Pleasures provides a solution with garments for women.
For the September 2011 issue of Caring Boomers Newsletter, I asked Lynn Dow of Simple Closures for permission to use the description and photos from her flyer for adaptive clothing for the Problem Management section of the newsletter. In response, Lynne wrote: “Coming in September, we have a new line of clothes which fasten down the front with easy closure which will be particularly helpful for people with strokes. These can be viewed on our website around the middle of September. www.simpleclosures.com or phone 1-800-282-1163.” The clothing are Designed in San Francisco. Made in the U.S.A.
ADAPTIVE CLOTHING is designed specifically for women who experience wide-ranging physical and/or mental challenges.
Shirts
Simple Closure tops eliminate the twisting and turning movements common to putting on and taking off conventional tops and blouses. Each top fastens in back, maintaining the appearance of a pullover or front opening blouse
• Physical exertion is decreased, to conserve energy and reduce painful movements
• Closures are strategically placed to minimize discomfort on pressure points along the spine
Pants
• Waistbands have large openings which, when fastened, form deep functional pockets
• Elastic waistband in back allows for fluctuations in waist size
• Extra roomy legs accommodate edematous (swollen ankles and splints)
• Fast removal and ease during toileting, with minimal snaps along the waistband
Skirts
• Easy on and off, with elastic waists and full-length side openings
• Easy dressing of individuals who are unable to stand
• Skirts tuck underneath and snap in place easily as the wearer is turned from side to side in bed
Culottes
• Elastic waists and wide pockets
• Great coverage: looks like a skirt, but has all the practical advantages of pants
• Roomy legs allow for unrestricted movement
Reprinted with the permission of Simple Closures.
Next Month: Part IV: Assistive Technology Products
Anise Mattson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors and Caring Boomers Newsletter ©2011. Part III © Information courtesy of Lynn Dow, Simple Closures. Email: cfaalo@yahoo.com.
September 2014
Senior Smarts
Stroke Survival: Stroke Aftercare
By Anise J. Matteson
When I decided to write an issue of the 2011 Caring Boomers Newsletter addressing stroke, one of the topics included was the SaeboFlex®
Saint Francis Memorial Hospital conducted a seminar and candidate screening on August 8, 2011 offering a “revolutionary” new therapy to stroke patients—The SaeboFlex® device. At this time, they were the first and only hospital to offer the therapy. Saint Francis Memorial Hospital has had great success with this splint and expanded its outpatient program; therefore, I thought this topic would be of significant interest to readers. Shanna Humphrey, OT wrote the following article telling the readers what they need to know to make an informed decision for qualifying as a candidate for use of the SAEBO in occupational therapy sessions.
Cerebral vascular accidents, or strokes, affect over 700,000 Americans each year. Many stroke survivors have a long-term loss of hand function and a resulting loss of independence. The Saebo Reach splint was designed by occupational therapists to address this type of injury. ”
A Revolutionary New Therapy: The “Saebo Reach” Splint
Cerebral vascular accidents, or strokes, affect over 700,000 Americans each year. Many stroke survivors have a long-term loss of hand function and a resulting loss of independence. The Saebo Reach splint was designed by occupational therapists to address this type of injury.
Occupational therapists, similar to physical therapists, address arm weakness in stroke survivors. Occupational therapists focus on functional activities during therapy with the end goal of increasing a patient’s independence in daily activities. Prior to the Saebo splint, therapists had difficulty incorporating the affected hand and arm into treatment during stroke rehabilitation. This splint allows the patient to immediately incorporate the arm into therapeutic activities. Occupational therapists at Saint Francis have had specialized training to fit patients with the Saebo splint and to progress the patient using this splint as a therapeutic tool. Patients cannot order the splint on their own without assist from a trained therapist and can only receive this therapy from trained therapists.
The splint is based on documented research of the brain’s remarkable ability to “re-program” itself following a stroke. Saebo splints have been effective for patients up to 20 years after their stroke. The splint is custom fit for each person, and works on a mechanical spring system. The splint opens the affected hand after the patient grasps, allowing the patient to incorporate the affected arm into functional activities. Repetitive practice of task-oriented, grasp and release activities can forge new pathways in the brain and result in increased hand and arm strength, control, and range of motion. The patient wears the splint during therapy sessions and also during daily practice sessions at home.
Stroke survivors need to have some function in their affected side to be a candidate for this therapy. The person needs to be able to lift his arm at the shoulder joint at least 15 degrees, bend his elbow at least 15 degrees, and close his hand. The candidate does not need to be able to actively open the affected hand. The candidate will need a caregiver to assist them to put on the splint for the therapy at home. Medicare and some commercial insurances pay for 80-100% of the splint and the occupational therapy. Medi-Cal and Healthy San Francisco do not pay for the splint. The splint costs $1600 without insurance coverage.
For the Saebo program, occupational therapy sessions usually last 1 hour, 2 times a week, for 3-6 months. To start O.T. at Saint Francis, a person needs a physician’s referral for “occupational therapy evaluation for Saebo splint.” Prior to calling, please verify from your insurance company if you are covered for occupational therapy and for the Saebo splint. Call (415) 353-6275 for an appointment.
Please visit the Saebo company’s website for more information, research, and videos: www.saebo.com
©Information courtesy of Shanna Humphrey, Occupational Therapist.
Next Month: Stroke Survival Part III: Adaptive Clothing
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors and Caring Boomers Newsletter ©2011, “Saint Francis Memorial Hospital the First to Offer A Revolutionary New Therapy.” Email: cfaalo@yahoo.com.
July/August 2014
Stroke Survival: Understanding Stroke
By Anise J. Matteson
Astroke, also referred to as apoplexy, cerebrovascular accident, cerebral hemorrhage, or transient ischemic attack is caused by the effects of any interference with circulation within the brain.
The blood supply to the brain is blocked by a thrombus or clot which blocks the entrance to a narrowed and roughened section of an artery (thrombus); and embolus (clot) that is carried from another part of the body, usually the heart, blocks normal blood passage; a brain artery burst (hemorrhage) and is unable to furnish blood cells with essential, nourishing blood; and in rare instances brain tumors or abscesses press on an artery and close it off (compression).
In a full scale stroke, there is paralysis of one side of the body, the face, or limbs, speech is affected, or there is a period of unconsciousness. In a mini stroke, there are dizzy spells, confusion, memory loss, handwriting change, a numb arm or leg.”
It is the fourth leading cause of death.
Warning Signs
The National Stroke Association What is Stroke lists the following symptoms as warning signs of a stroke:
Sudden numbness or weakness of the face, arm or leg—especially on one side of the body.
Sudden confusion, trouble speaking or understanding.
Sudden trouble seeing in one or both eyes.
Sudden trouble walking, dizziness, or loss of balance or coordination.
Sudden severe headache with no known cause.
Types of Stroke
The New Illustrated Medical and Health Encyclopedia indicates: In a full scale stroke, there is paralysis of one side of the body, the face, or limbs, speech is affected, or there is a period of unconsciousness. In a mini stroke, there are dizzy spells, confusion, memory loss, handwriting change, a numb arm or leg.
Risk Factors
Risk factors for a stroke include: heart failure, hyperlipidemia, hypertension, history of myocardial infarction, male gender, atherosclerosis of the aortic arch, atrial fibrillation, advanced age (especially older than 65 years), carotid artery disease, nonwhite race, peripheral vascular disease, physical inactivity, or a recent transient ischemic attack.
Statistics
Seven million people in the United States have survived a stroke.
Rehabilitation Options
According to the National Stroke Association, depending on the severity of a stroke, rehabilitation options include: a rehabilitation unit in the hospital; a subacute care unit; a rehabilitation hospital; home therapy; home with outpatient therapy; or a long-term care facility that provides therapy and skilled nursing care.
Resources
Stroke Survivor Support Group
National Stroke Association
Stroke Smart Magazine
This is part one of a four-part series of articles will focus on stroke: Part I: Understanding Stroke, Part II: Stroke Aftercare, Part III: Adaptive Clothing, and Part IV: Assistive Technology Products.
Next Month: Part II: Stroke Aftercare
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, writer of reference books for seniors and Caring Boomers Newsletter ©2011. Part I is revised from the Newsletter for this article. Email: cfaalo@yahoo.com.
June 2014
Defining the Parish Nurse
When we refer to a nurse, it is usually as a licensed vocational nures (LVN), registered nurse (RN), or nurse practitioner (NP) in health care settings such as acute care facility, long-term care facility (e.g., skilled nursing facility (SNF)), home care, hospice, clinic and doctors office).
Faith community nurses are not expected to provide patient care in the church or at a patient's home but rather to be a source of referrals for services in the community. They coordinate existing services and supplement them with holistic dimension of health and caring.”
Nurses also provide services to the congregation of a religious faith as a Visiting Nurse or Parish Nurse—another resource for the homebound.
OVERVIEW
Faith Community Nursing, also known as Parish Nursing, Parrish Nursing, Congregational Nursing or Church Nursing is a movement of over 15,000 registered nurses.
Faith Community Nursing (FCN) is recognized as a specialty nursing practice.
Faith Community Nursing: Scope and Standards of Practice was approved by the American Nurses Association in 2005 (and updated in 2012) and define the specialty as "...the specialized practice of professional nursing that focuses on the intentional care of the spirit as part of the process of promoting holistic health and preventing or minimizing illness in the faith community."
(American Nurses Association, 2012, Faith Community Nursing Scope and Standards of Practice, Silver Springs, MD: Author, p.1).
To become a faith community nurse, the registered nurse must have a minimum of 2 years experience, must have a current license in the state where the faith community is located, and have completed a parish nurse foundation course for the specialty practice as recognized by the American Nurses Association.
Faith community nurses are not expected to provide patient care in the church or at a patient's home but rather to be a source of referrals for services in the community. They coordinate existing services and supplement them with holistic dimension of health and caring.
Faith community nurses typically belong to the Health Ministries Association which is the national professional membership organization for faith community nurses.
(en.wikipedia.org/wiki_Faith_community_nursing.)
Registered Nurse
Taber's Cyclopedic Medical Dictionary defines registered nurse as a nurse who has graduated from a state approved school of nursing, has passed the professional nursing state board examination, and has been granted a license to practice within a given state.
Holistic Health
Taber's Cyclopedic Medical Dictionary defines holistic medicine as the comprehensive and total care of a patient. The needs of the patient in all areas such as physical, emotional, social, spiritual, and economic, are considered and cared for.
PARISH NURSE
This month's glossary term from "Caring for an Aging Loved One: The Family Caregiver's Guide Book" is parish nurse.
When I asked a registered nurse for permission to use text from carle.com website for the definition of a "Parish Nurse" and the role of the "Parish Nurse," Faith Roberts, RN, BSN approved the following information with one change/addition. Under definition: many places are using the term faith community nurse. This can be used interchangeablly with parish nurse.
Definition of a Parish Nurse
A registered nuse who acts as a vital link between the faith and medical communities.
The role of the Parish Nurse
Health educator: Presents educational programs to the congregation for health screening and illness prevention.
Health counselor: Provides individual counseling services in the home or long-term care setting.
Advocate: Provides assistance to congregational members in finding their way through the health care systems.
Referral agent: Provides assistance with finding and making referrals to agencies, organizations and support services to improve the congregational member's quality of life.
Develops support groups; Initiates and organizes groups designed to assist the participants with a specific issue.
Volunteer training: Recruits and trains volunteers to provide assistance.
The Parish Nurse is a source of preventative and restorative care, ministering holistically to individuals and families.
The Parish Nurse is not a direct medical care provider.
Some of the services a Parish Nurse can provide:
Help in accessing and navigating the health care system.
Programs to promote healthy exercise and nutrition.
Education on health issues.
Support groups.
Health screening.
Assistance to new patients.
Support for hospitalized or homebound family members.
©Information courtesy of Faith Roberts, RN, BSN, carle.com.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, and writer of reference books for seniors, "Caring for an Aging Loved One: The Family Caregiver's Guide Book, ©2007. This article is an excerpt from her book. She can be reached at cfaalo@yahoo.com.
April 2014
Preparing for the Unexpected – Part I
March article will address planning for the unexpected from the health care professional perspective. April will present the elder law attorney perspective.
When a resident is admitted to a long-term care facility, he or she must provide information for the responsible party, next of kin in emergency, and mortuary preference.
Elder law is a specialized area of legal practice, covering estate planning, wills, trusts, arrangements for care, social security and retirement benefits, protection against elder abuse (physical, emotional and financial), and other involving older people.”
CARE PLANNING
Care Planning is defined as: Mobility/Safety/Self-Care (physical functioning); Nutrition (oral/dental); Elimination; Skin Condition; Sensory/Communication (hearing, speech, vision); Psychosocial/Recreation/Activity/Socialization (cognitive, behavior patterns, moods, psychosocial well-being, activity pursuits); Medical Management (disease diagnoses, health conditions, medications, special treatments and procedures).
Medical Management focuses on a specific problem: alteration in health maintenance; potential for injury; impaired adjustment; potential for death; alteration in diagnosis; unstable condition; exacerbation of diagnosis; refuses treatment; condition changes; recurrent symptoms; seizures.
Related approaches for addressing the problem: terminal care; Durable Power of Attorney; hospice; treatment as prescribed; medication as prescribed; monitoring signs and symptoms; notification of M.D.; diagnostic tests; emergency treatment; No CPR/Do Not Resuscitate; counseling; therapy.
ADVANCE DIRECTIVES
Advance Directives and Durable Power of Attorney provide instructions in your own words to family/caregivers, friends, and health care professionals when there is a significant condition change.
“Physicians and more than 75 national organizations believe that advance directives are so important that recently 50 states adopted the first National Healthcare Decisions Day, which takes place on April 16. [WHAT IS AN ADVANCE DIRECTIVE, July 16, 2009. By Jeneane Brian. www.livestrong.com/article/14354-what-is-an-advance-directive/]
National Healthcare Decision Day
April 16 is a day to “inspire, educate and empower the public and providers about the importance of advance care planning.”
“…National Healthcare Decisions Day is an initiative to encourage patients to express their wishes regarding healthcare and or providers and facilities to respect those wishes, whatever they may be.” (nhdd.org)
Examples
Some examples of Advance Directives with supporting documentation are: living will; Do Not Resuscitate (No Cardiopulmonary Resuscitation); do not hospitalize; organ donation; autopsy request; feeding restriction; medication restriction; other treatment restrictions.
RESOURCES: WILLS
Write Your Will Workshop, Write Your Will Seminar and Introduction to Wills & Trusts are held at various branches of the San Francisco Public Library. You can find information on upcoming sessions at sfpl.org.
RESOURCES: ADVANCE DIRECTIVES
Advance Health Care Directive. To download form visit the California Health Care Association at cmanet.org.
Five Wishes - Aging with Dignity. www.agingwithdignity.org/forms/5wishes.pdf.
FIVE WISHES
MY WISH FOR:
• The Person I Want to Make Care Decisions for Me When I Can’t
• The Kind of Medical Treatment I Want or Don’t Want
• How Comfortable I want to Be
• How I Want People to Treat Me
• What I Want My Loved Ones to Know
State Bar of California educational guide Seniors & the Law: A Guide for Maturing Californians section titled “PLANNING AHEAD.” To request publications contact 1-888-875-5297 or visit www.calbar.gov.
Next Month: Boomer Legal by Helene V. Wenzel, Esq., solo practitioner in Estate Planning and Elder Law.
TERMINOLOGY
Elder law attorney refers to an attorney who specializes in providing legal services for the elderly, especially in the areas of Estate Planning and Medicaid Planning. They handle general estate planning issues and counsels clients about planning for the management of assets and health care with alternative decision-making documents to prepare for the possibility of becoming incapacitated. Elder law is a specialized area of legal practice, covering estate planning, wills, trusts, arrangements for care, social security and retirement benefits, protection against elder abuse (physical, emotional and financial), and other involving older people. (http://definitions.uslegal.com/e/elder-law-attorney/)
Anise Matteson is an elder care consultant, retired Registered Health Information Technician and writer of reference books for seniors. Article revised from Caring Boomers Newsletter ©2012. Email: cfaalo@yahoo.com.
March 2014
Celebrating the Holidays
During the holiday season the elderly or ill, family members, friends and caregivers will experience a more hectic schedule.
When I decided to write the October 2013 Elder Caregivers NEWSLETTER to help with holiday planning, I asked health care professionals for suggestions to help with caring for your loved ones.
Mobility
The tips of assistive devices are well maintained and in good condition.
Have someone with you for transferring to car and buildings.
Wear good safe shoes.
Get plenty of rest before and after.
Have a wheelchair when needed.
Use safety ramps and access, if possible.
Watch floors for wet spots.
Avoid peak shopping hours.
Have someone with you.
Have an emergency system to call for help (e.g. cell phone).
Keep Oxygen safe, transportable. Check the equipment. Make sure you have enough oxygen.
Decorating
Can a step stool be handled safely.
Packages under the Christmas tree are not in walkways.
Another option for placing packages: a table in another room.
Allow room for turning, if in a wheelchair.
Adhesive backing on throw rugs and doormats.
Traveling
Call ahead for airline assistance on and off plane.
Let public transportation services know that they will have an individual that needs special assistance.
Use an alternative to public transportation (e.g., Ready Wheels).
©Suggestions provided by Sharol, Physical Therapist.
Commentary
Wear shoes that are appropriate for weather conditions, comfortable, and appropriate heel height, for a lot of walking.
Caregivers, family members and friends may want to consider a fanny pack or backpack to carry necessary items so that your hands are free if pushing a wheelchair or providing ambulatory assistance. Raincoat and rain boots in lieu of an umbrella.
NUTRITION
Strategies to Handle Holiday Eating
Try not to overeat.
Eating should not be "all or nothing."
Eat low-fat tasty snacks in lieu of holiday candy.
Try to prevent yourself from gaining a lot of weight by trying to balance special treats with lower fat foods.
Be careful when prioritizing—do not overdue. Have a treat on Christmas, not the day before or the day after. (Prioritize—choosing the foods that are important to you and choosing these items as your "treats" for the event.)
Do not just take one of everything—you will get extra fat and calories you do not even care about.
Exercise
Party Tips: Attending a Party
Never go hungry—eat a snack before you go to the party to prevent being too hungry.
Take one, but not one of everything.
Watch the portion size.
Do not overeat. Try to eat slowly and move away from the food so that you do not get too tempted by "seconds."
Do not rush up to the food and start eating—chat with family and friends first.
Fill up on the low fat items such as salads, fruit, fresh vegetables, etc.
If you like to drink, try alternating each drink with a mineral water, or drink Spritzers that have only a little wine.
Party Tips: Hosting a Party
Prepare both low fat choices and high fat treats.
Do not prepare lots of extra, potentially left-over food.
Make sure you eat properly yourself on the day of the party so that you will not overdo it while chatting with your guests.
Try to modify your own traditional recipes to be lower in fat without sacrificing the taste: substitutesome fat; eliminate some fat; reduce the amount of fat.
©Suggestions provided by Judith Levine, RD, MS, Nutritionist, National Heart Assn.
Commentary
While enjoying the holidays remember to follow dietary regimen prescribed by your primary care physician and other health care professionals involved in your treatment plan. If you are taking medications, remember to follow the instructions on the prescription.
Dentures
Corn or cream corn.
Sweet potato pie with marshmallows.
What dentures can tolerate.
Offer choices.
Cook dishes that all (elderly, ill or caregiver, guests) can enjoy (e.g., pot pie).
©Suggestions provided by Barbara, Occupational Therapist.
PSYCHOSOCIAL
Family Involvement
The holidays are stressful and tend to fatigue one party or the other. The key to managing: Planning. Anticipate where conflict can evolve.
Caregiver
Plan to get needs met by someone else (e.g., a facility).
Plan festivity around the patient's best time of day when he/she is able to participate, then family members can have their own festivities.
Caregiver's family
Plan to make it as much as possible not to seem an additional burden.
Take over some of the holiday duties.
Realize how much the caregiver has given and give to them.
Patient
Listen to the person's reason for not participating.
How to cope with the holidays
Practice assessment and planning.
Hold a family meeting—give other members something to do (e.g., someone cooks the turkey, someone cooks dessert.
Move the dinner to a room that is comfortable for the patient (e.g., family gathers in the bedroom, if the family member is semi-bedridden).
Bring the party to wherever it needs to be brought to.
Be creative (in the living room—use the coffee table for a buffet table, in the bedroom—use the dresser for a buffet table).
With planning and forethought, the holiday festivities need not be all or nothing. Consider: patient, primary caregiver, rest of the family.
©Suggestions provided by John Bogardus, LCSW.
MEDICAL MANAGEMENT
Medication & Treatment
Maintain medication and treatment schedule.
Change of Condition
Medications and medical responses should follow the usual pattern prescribed by the doctor.
©Suggestions provided by Herbert Lints, MD, Internist.
CHEF'S CORNER: HOLIDAY RECIPES
Boomer and seniors, share your favorite holiday recipes and their history for easy to prepare meals for the seniors and caregivers at http://forums.delphiforums.com/elder_care. Nutrition. Click: Holiday Recipes.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, and writer of reference books for seniors, "Coping with the Holidays: Excerpts from Elder Caregivers NEWSLETTER," ©2007, included in this article. Contact: cfaalo@yahoo.com.
December 2013
Honor Our Vets
Veterans Day honors men and women who served in the United States Armed services. In 1919, President Woodrow Wilson proclaimed November 11 as Armistice Day to remind Americans of the tragedy of war. A law adopted in 1938 made the day a federal holiday. In 1954, Congress changed the name to Veterans Day to honor all United States Veterans.
Health care specific to veterans is outside of my area of expertise, except for an internship at Letterman Army Medical Center, Presidio of San Francisco, in the curriculum for Medical Record Technology.
The Department of Veterans Affairs is an important resource for veterans, their family/caregiver and friends. The San Francisco telephone directory White Pages (US (Federal) Government) listings provide departments and telephone numbers. The Department's website (www.sanfrancisco.va.gov) provides information on services available to veterans and their families for: health care, benefits, crisis line, veteran services, and burials and memorials.
Neither you nor your loved ones have to experience a season of life alone. Everyone goes through each season. The difference is how it is experienced and who is willing to walk with you."
HEALTH CARE AND BENEFITS
San Francisco VA Medical Center: A 104-bed facility and 120-bed Community Living Center. Primary and mental health care is provided at five outpatient clinics. There is a specialized homeless Veterans clinic in downtown San Francisco. The Medical Center is affiliated with UCSF School of Medicine. (www.sanfrancisco.va.gov)
Aid and Attendance Program: Financial assistance for in-home care, assisted living or nursing home. www.canhr.org/factsheets/misc _fs/html/fs_aid_&_attendance.htm)
Respite Care: Can be received as an inpatient, outpatient or a home setting; and is for veterans who need skilled services, case management, and assistance with daily living or instrumental activities of daily living, are isolated, or their caregiver is experiencing burden. www.va.gov/GERIATRICS/Guide/LongTermCare/Respite_Care.asp)
Local Support Services for Veterans: VA Medical Centers; Outpatient Clinics; Vet Centers; PTSD Program; Suicide Prevention Coordinators; VA Chaplains; Veterans Administration Offices. Connected by: Who You Are; Life Experiences; Video Gallery; Signs & Symptoms (http://maketheconnection.net/resources?gclid=CImMgfy9LkCFc01Qgodq2oAg)
Chaplain Services: To speak with a chaplain at the San Francisco VA Medical Center, call Customer Service and your call will be transferred to Patient Advocacy where you can speak to one of three Patient Advocates. Chaplain Services is also available to visitors. (www.sanfrancisco.va.gov/visitors)
CAREGIVER SUPPORT
The San Francisco VA Medical Center offers seven support groups for caregivers:
(Web-Based Support Group) Building Better Care Givers: Workshop: managing fatigue and stress; managing difficult behaviors and feelings; making good decisions and future plans for your loved ones; improving your sleep, diet and stay active.
Starting the Conversation: Housing Options—Finding the Right Fit: Focuses on strategies to enhance resilience and restore balance.
Parkinson's Disease and Caregiver Support Group: Provides education and emotional support to deal with the stress and strain of care giving.
Community Living Center Support Group: Provides caregiver support for family members of Community Living Center residents.
Voluntary Respite Program: Volunteers provide home respite for caregivers of homebound Veterans.
Family 2 Family Program: Co-facilitated by Psychosocial Rehabilitation and Recovery Center (PRRC) staff and local chapter of the National Alliance for the Mentally Ill.
Caregiver Program for Post 9/11 Veterans: Provides additional support to eligible post-9/11 Veterans who elect to receive care in a home setting from a primary Family Caregiver.
For more information, contact SFVAMC Caregiver Support Coordinator.
National Caregiver Support Line: (855) 260-3274. Research/referral center for caregivers, Veterans and others seeking caregiver information; provides referrals to local VA Medical Center Support Coordinators and VA/community resources; and provide emotional support. www.sanfrancisco.va.gov/services/caregiver/index.asp)
Patient Service Administration: Provides Patient Information for: Before Your Visit; During Your Stay or Care; and After Your Visit. (www.sanfrancisco.va.gov/patients/)
PATIENT TRANSPORTATION
SFVAMC Shuttle Schedule: Local – San Francisco VA Medical Center: Three shuttle routes run Monday through Friday to: Downtown Clinic (3rd & Harrison St.); San Bruno Clinic; UCSF. (www.sanfrancisco.va.gov/patients/shuttlelocal.asp)
NURSNG HOME
Geriatrics & Extended Care – San Francisco VA Medical Center: Offers clinical services for older or functionally dependent Veterans. Geriatric Services and Programs available: Community Living Center; Respite Care; Rehabilitative Care; Hospice and Palliative Care; Geriatric Medicine Clinic; Home-Based Primary Care; Geriatric Teaching Programs; Geriatric Research. (www.sanfrancisco.va.gov/services/Geriatrics.asp)
ELIGIBILITY INFORMATION
Veterans Benefit Administration: Provides information on pre-discharge; compensation; education & training; vocational rehabilitation & employment; home loans; life insurance; pension... (http://benefits.va.gov/benefits)
CRISIS LINE
Veterans Crisis Line: (800) 273-8255, press 1. Formerly the National Veterans Suicide Prevention Hotline, provides confidential help for Veterans, their families and friends. Responders are available around-the-clock, year-round, for confidential support calls. Website provides: Self-Check Quiz; Confidential Homeless Veterans Chat; Support for Deaf and Hard of Hearing; anonymous online chat service; text-messaging service; Learn to Identify the Warning Signs; Suicide and Crisis Resources. (www.veteranscrisisline.net)
VETERAN SERVICES
San Francisco County Veterans Service Office: Provides: help to veteran or the dependent with understanding and applying for benefits and entitlements from the U.S. Department of Veterans Affairs; claim assistance; case management; advocacy. (www6.sfgov.org/ index. aspx?page=162) The Outreach Field Office is located at SFVA Medical Center. (www.sfhsa.org/134.htm)
Swords to Plowshares: Core services include: Health & Human Services; Supportive Housing; Employment & Training; Legal Assistance. (www.swords-to-plowshares.org)
DOMICILIARY CARE PROGRAM
VA Homes (Domiciliaries) were established for veterans who do not require hospital care, but who are unable to earn a living and have no adequate means of support. The first U.S. Soldiers' Home was established for invalid and disabled soldiers.
Homeless Veterans
The Domiciliary [“Soldiers' Home”] evolved to become an active clinical rehabilitation and treatment program for veterans. The programs are integrated with the Mental Health Residential Rehabilitation and Treatment Programs (MH RRTPs). MH RRTPs provide specific treatment of medical conditions, mental illness, addictive disorders and homelessness. (www.va.gov/homeless/dchv.asp)
A Google Search for “Veterans: domiciliary homes – San Francisco” lists Veterans Homes of California – Yountville. VHC – Yountville provides residential accommodations, recreational, social and therapeutic activities for independent living; offers: residential care (assisted living), and inpatient care: intermediate care, skilled nursing care, and general acute care). (http://www.countyofkings.com/Veterans_ Services/VetsHomesofCalifornia.htm)
VETERANS ORGANIZATIONS
American Legion: Services: Health care; career assistance; financial center; youth support; family support; education information; claim assistance; benefits. Veterans Health Care: Provides health care information on various conditions; updated information on Department of Veterans Affairs. Family Support Network: Provides immediate assistance to service personnel and families whose lives have been directly affected by Operation Iraqi Freedom and America's war on terror. (www.legion.org)
AMVETS National Services Foundation: Services: National Services Office assists veterans or veterans' dependent attempting to obtain compensation and benefits from the Veterans Administration; thrift store open to the general public; scholarships to veterans and their dependents; Americanism Program educates youth on American history; carillon bells in many National and State veterans cemeteries; VAVS volunteers at VA health care facilities; Task Force DVD provides safe entertainment for troops stationed overseas. (www.amvetsnsf.org)
American Veterans Center. Preserves the legacy of American servicemen. The site provides an interactive environment to view, read, share or listen to veterans' stories. (www.americanveteranscenter.org)
(CA Vets of Foreign Wars) Veterans of Foreign Wars, Department of California: Provides college scholarships to high school students. Provides free phone cards to active duty military personnel. (www.vfwca.org)
DECEDENT AFFAIRS
Burials & Memorials. Provides information on: cemetery services; burials; headstones, markers and medallions; Presidential Memorial Certificates; cemeteries; national gravestone locator; burial flags; burial allowance. (www.cem.va.gov/cem/burial_benefits/)
Life's journey takes us through many seasons. Neither you nor your loved ones have to experience a season of life alone. Everyone goes through each season. The difference is how it is experienced and who is willing to walk with you.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, and writer of reference books for seniors. She can be reached at cfaalo@yahoo.com.
November 2013
Homebound Survival
By Anise J. Matteson
At sometime in our life, some of us are homebound due to injury, accident or chronic illness.
According to an article on the National Center for Biotechnology Information website, “there are up to 3.6 million people considered homebound. People who are homebound suffer from a multitude of medical and psychiatric illnesses. The homebound elderly suffer from metabolic, cardiovascular and musculoskeletal disease, as well as from cognitive impairment, dementia and depression at higher rates than the general elderly population.”
The adverse effects of being homebound have medical and psychological ramifications. They are often non-compliant with their treatment plan.”
In San Francisco, as of 2008, approximately 106,169 seniors (approximately 20 percent of the City’s residents aged 60 and over) were living in San Francisco. Seniors are defined by the U.S. Census as adults 60 years and older.
DEFINITION
The homebound in some religious faiths are referred to as shut-ins.
Webster’s Dictionary defines homebound as confined to the home, and shut-in as confined to one’s home or an institution by illness or incapacity.
Degrees of confinement varies from one week, one month, to never leaving the home except in the case of emergencies, or no more than two days per week.
CONTRIBUTING FACTORS
Medical
Diagnoses that may contribute to causing the elderly to be homebound: hypertension, diabetes mellitus, heart disease, osteoarthritis, arthritis of the spine, history of stroke and angina. Falls may also be a contributor.
Psychiatric Disorders
According to the NCBI article, “the two most prevalent mental disorders among the homebound elderly are dementia and depression. Dementia, including Alzheimer’s disease, is the leading problem associated with being homebound, affecting 29 percent of the homebound population.” They also experience cognitive impairment.
PROBLEM MANAGEMENT
The adverse effects of being homebound have medical and psychological ramifications. They are often non-compliant with their treatment plan.
There are resources that can help make the transition manageable, for example, Homebound Ministry.
HOMEBOUND MINISTRY
This month’s Glossary term from “Caring for an Aging Loved One: The Family Caregiver’s Guide Book” is homebound ministry.
I asked a clergyman to write one page for: the definition of “homebound ministry;” the role of the homebound ministry; how the elderly, their caregiver and loved ones can find out about a church’s Homebound Ministry. Rev. Richard Helmer provided the following information.
What are Homebound Ministries?
Homebound ministries describe churches or other religious communities providing support, visitation, and pastoral care at home for members who are unable to attend worship or otherwise join in the regular life of the community.
The nature of these ministries varies widely from religious community to community, from church to church. Most ministries include visits from the clergy for prayers, healing rites, and other sacramental acts (e.g. Communion). Lay (non-clergy) ministers may also participate by offering prayers, sacred readings, and other important religious services to the homebound and elderly. Support services such as transportation and providing meals can also be a part of the ministry of the religious community to the homebound.
Why participate in or receive Homebound Ministries?
The key to homebound ministries is to keep members in community even during times of illness or infirmity that prevent them from being active. Since they are unable to participate in the regular life of their religious community, that community comes to them, offering support, guidance, prayer, and solace.
How can I find out more about the Homebound Ministries my church or religious community provides?
Call the primary office of your religious organization or speak with a member of the clergy. Here are key points to remember:
• Be prepared to ask for specific religious services if you or those whom you care for desire or need them (e.g. meals, special prayers, transportation, etc.). Even if your religious community might not be able to meet all your requests, they may be able to refer you to services offered by other organizations.
• Ask how those participating in the Homebound Ministries program are trained and prepared this ministry. Training is now required by many religious organizations to screen those participating in homebound ministries and better equip them to be effective in their work with the homebound and elderly.
• To make you or those under your care more comfortable, ask that someone from your religious community already familiar to you make an initial visit or attend with the member or clergy first bringing the ministry to your home.
• Prior to the first visit, briefly describe the condition of those being visited (in bed, unable to walk, special medical conditions, etc.). This will help prepare the ministers for their initial visit as they will know what to expect. If they are bringing a meal, be sure to specify any dietary needs.
• Provide directions to the home and any details about gaining access, as necessary.
• In scheduling a homebound ministry visit, it is appropriate to select a time when a caregiver is also present, should assistance be needed.
• Those providing ministry to the homebound and elderly should be respectful. Visits of over an hour are not usual. If any situation with homebound visitations makes you or those under your care uncomfortable, notify the clergy or church office immediately with your concerns.
©Information courtesy of Rev. Richard E. Helmer, Rector, Episcopal Church of Our Savior.
Questions for boomer and senior readers
If you are homebound, why?
What are the challenges?
What tools can help you age in place?
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, and writer of reference books for seniors, “Caring for an Aging Loved One: The Family Caregiver’s Guide Book.” This article is an excerpt. Feedback: cfaalo@yahoo.com.
October 2013
Celebrating Independence
By Anise J. Matteson
Managing at-home living changes when one reaches the season of "old" age [the golden years]. Walking becomes more difficult, hearing and vision decreases, you cannot enjoy some of the foods that you love to eat.
Neither you nor your loved ones have to experience this season of life alone. Everyone goes through each season. The difference is how it is experienced and who is willing to walk with you.
When I decided to write a reference book for the elderly, their caregivers, family members and friends that would include a Glossary for non-medical caregivers, I asked a Certified Aging-in-Place Specialist to write one page for: The definition of "aging-in-place;"the definition of a Certified Aging-in-Place Specialist;and the role of a Certified Aging-in-Place Specialist. Michael Menn, a licensed architect, remodeler, and frequent industry speaker provided the following information.
Definitions
aging-in-place- 1: living in your home safely, independently and comfortably regardless of age, income or ability level; 2: the pleasure of living in a familiar environment throughout one's maturing years; 3: the ability to enjoy the familiar daily rituals and the special events that enrich our lives;4: the reassurance of being able to call a house a "home" for a lifetime; 5: using products, services and conveniences to allow or enable you not to have to move as physical and social circumstances change.
Universal Home Design- is intended to make the home friendly, or easy to navigate, for everyone.
Certified Aging-in-Place Specialist (CAPS)- professionals trained in working with older and maturing adults in remodeling their homes to provide comprehensive and practical "aging-in-place," "universal design" and "visibility" solutions.
What is CAPS?
The American Association of Retired People (AARP) and the National Association of Home Builders (NAHB) have been working together to create the "Certified Aging in Place Specialists" (CAPS) program to help home remodeling professionals meet the needs of the burgeoning market. This training program is offered through individual state homebuilders associations to home remodelers.
The program teaches the technical, business management and customer service skills essential to compete in this fast growing segment of the residential remodeling industry. It provides comprehensive, practical, market-specific information about working with older and maturing adults to remodel their homes for aging-in-place.
CAPS professionals have the answer to your questions. They have been taught the strategies and techniques for designing and building aesthetically enriching barrier-free living environments. The CAPS program goes beyond design to address the codes and standards, common remodeling expenditures and projects, product ideas and resources needed to provide comprehensive and practical "aging-in-place," "universal design" and "visibility" solutions. CAPS graduates pledge to uphold a code of ethics, and are required to maintain their designation by attending continuing education programs and participating in community service.
What is the role of a "Certified Aging-in-Place Specialist?"
A Certified Aging-in-Place Specialist (CAPS) has been trained in the following:
The unique needs of the older adult population.
"Aging-in-Place" home modifications.
Common remodeling projects.
Solutions to common barriers
Knowledge of "Universal Design."
Knowledge of "Visibility."
While most CAPS professionals are remodelers, an increasing number are general contractors, designers, architects and health care consultants.
Abbreviations
AIA - American Institute of Architects
CRG - Certified Graduate Remodeler
© Information courtesy of Michael A. Menn, AIA, CGR, CAPS, Principal, Design Constructions Concept, Ltd.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, and writer of reference books for seniors. She can be reached at cfaalo@yahoo.com
July 2013
Senior Smarts:
Celebrating Father's Day
By Anise J. Matteson
Are you undecided what to give as a Father's Day gift?
Consider a discussion about Dad taking care of his health by scheduling a physical examination to include prostate exam [digital rectal exam].
Prostate cancer, a malignant tumor of the prostate gland, is the most common neoplasm in men over 65.
According to the American Cancer Society, nearly two-thirds of men age 65 or older are diagnosed with prostate cancer. About 238,590 new cases will be diagnosed in the United States and 29,720 men will die from the disease. It is the second leading cause of death in American Men.
According to the Prostate Cancer Research Institute, African-American men have the highest frequency of prostate cancer in the world and the highest death rate from the disease.
…nearly two-thirds of men age 65 or older are diagnosed with prostate cancer. About 238,590 new cases will be diagnosed in the United States and 29,720 men will die from the disease. It is the second leading cause of death in American Men.”
The disease is often asymptomatic, or with symptoms—dysuria, urinary hesitancy, nocturia; when the cancer has spread to the bone—localized or general bone pain. (For a complete list of symptoms, visit http://prostate-cancer.org, What are Prostate Cancer Symptoms?)
Complications in cancer of the prostate manifest when the cancer is not diagnosed early and it metastasizes.
Lab tests can define negative or abnormal findings: prostate specific antigen (PSA), a blood test that monitors the progression and response to surgical, radiation, and/or hormonal therapy. (It is also an early detector of recurrence of prostate cancer; urine test.); Prostate Cancer gene 3 (PCA3 (uPM3)), a gene-based test conducted on a urine sample; ultrasonography which uses ultrasound to produce an image or photograph of an organ; biopsy to confirm the diagnosis—TRUS, a biopsy of the prostate using transurethral ultrasound; saturation or mapping biopsy. These procedures are performed by physician's order.
Treatment options may include: pelvic lymphadenectomy; prostatectomy; transurethral resection of the prostate (TURP); radiation therapy; hormonal therapy; chemotherapy; biological therapy.
According to the Prostate Cancer Research Institute website, clinical trials include: cryosurgery; high-density focused ultrasound; proton beam radiation therapy.
Proper health care requires the expertise of your primary care physician and referral to the appropriate health care professionals. Information herein is for educational purposes.
Father's Day is celebrated the third Sunday in June to honor fathers; in my opinion, while wishing a stranger "Happy Father's Day" is well-intended, it may not be appropriate. The individual may have experienced a loss in the family--their father or a child, or are caring for an ill father.
To boomers with aging fathers—Happy Father's Day.
Anise Matteson is an elder care consultant, retired Registered Health Information Technician, and writer of reference books for seniors. She can be reached at cfaalo@yahoo.com
June 2013
Senior Smarts
Celebrating Mother's Day
By Anise J. Matteson
As we approach Mother's Day, the elderly, ill, family members, friends and caregivers will experience a more hectic schedule.
While enjoying the holidays, remember to follow the dietary regimen prescribed by your primary care physician and other health care professionals involved in your treatment plan.
If you are taking medications, remember to follow the instructions on the prescription.
Kitchen aids seniors may find helpful: long handle reachers; talking food scales; big and bold 60-minute timer; large digit hand-held timer; jar opener with flexible ribbing on a built-up handle; peelers: vegetable peelers with cushion grip or horizontal peelers with soft, comfortable grip; grater with suction feet; built-up handle eating utensils; food prep board (one-handed); bladeless hand-held electric can opener; curved eating utensils (comfort grip cutlery); plastic coated spoon [protects teeth and gums]; knife with sharp curved blade and solid handle [for those with the use of only one hand]; scoop bowl; scoop plate; tumbler with special cutout (nosey cup); spill-proof cup with lid that accepts a straw; 3-section plate; terry cloth food catcher; grip knob (faucet handles); wide-base pitcher; insulated pitcher; insulated mug; spouted beverage lid; two handle transparent mug; food guard [keeps food on plate]; non-slip matting [in lieu of place mat].
Albeit Mother's Day is celebrated the second Sunday in May to honor mothers, in my opinion, while wishing a stranger Happy Mother’s Day is well-intended, it may not be appropriate. The individual may have experienced a loss in the family—their mother or a child, or caring for an ill mother. ”
Creative Cooking Made Easy instructions for cooking are: Be accurate. Read recipe and gather ingredients before starting to cook. Preheat oven to degree specified. Gather the necessary utensils. Use standard measuring cups and spoons. Glass cups with graduated markings are recommended for measuring liquids.
The Settlement Cookbook instructions for serving food are: Serve in the most pleasing manner possible. Serve in small quantities. Serve at frequent intervals. Serve in appealing dishes.
Albeit Mother's Day is celebrated the second Sunday in May to honor mothers, in my opinion, while wishing a stranger Happy Mother’s Day is well-intended, it may not be appropriate. The individual may have experienced a loss in the family—their mother or a child, or caring for an ill mother.
To boomers with aging mothers—Happy Mother's Day.
Anise Matteson is an elder care consultant and writer of reference books for seniors, Coping with the Holidays: Excerpts from Elder Caregivers NEWSLETTER, ©2007, included in this article. She can be reached at cfaalo@yahoo.com.
May 2013
Ready for West Nile Virus Season?
First WNV positive Bird found Near City College
West Nile Virus (WNV) infection, caused by the bite of a mosquito carrying the virus, is on the rise throughout California and across the nation. As of September 18, 2012, 126 human cases of WNV infection have been reported in California, including 6 WNV-related deaths. Nationally, 3,142 cases including 134 fatalities have been reported to the US Centers for Disease Control, making this year the highest number of cases reported year-to-date since 2003. Almost forty percent of the nationally reported cases are from Texas.
San Franciscans will be at risk for West Nile during the summer and fall when mosquito activity is at its peak,” observed Rajiv Bhatia, MD, Medical Director for Environmental Health at the DPH. “West Nile Virus is preventable and it takes all of us working together to continue to keep ourselves and our families protected.”
West Nile Virus can occur here, though no locally acquired human cases have ever been reported in the City since 2005 when it became a reportable disease. Mosquitoes can transmit WNV to birds, and so the recent finding of one West Nile-infected dead bird indicates that the virus is present in the local environment This is only the third WNV-positive bird in the City since 2007. The warm weather beginning in September is the environment that sets the stage for mosquitoes to breed and multiply. Preventing a mosquito bite is always the best first step in combating disease.
Working on the success of the popular Fight the Bite campaign that helped launch West Nile Virus awareness throughout California, local authorities are focusing their efforts on eliminating mosquitoes.
“San Franciscans will be at risk for West Nile during the summer and fall when mosquito activity is at its peak,” observed Rajiv Bhatia, MD, Medical Director for Environmental Health at the DPH. “West Nile Virus is preventable and it takes all of us working together to continue to keep ourselves and our families protected.”
In urban areas, the single largest source of mosquito breeding are storm drains and basins which are being regularly inspected and treated to prevent mosquitoes from hatching into adults. Homeowners can prevent mosquito breeding by keeping fish in ornamental ponds, repairing plumbing leaks, letting lawns dry before watering, clearing drains and gutters, and changing water in birdbaths, plant saucers , etc. weekly. Avoid mosquito bites by wearing long sleeved clothing, using a repellent and putting screens on windows.
DPH is available to enforce health code violations such as standing water or plumbing leaks. Complaints can be made through the City’s 3-1-1 customer service system, either on line or by calling 3-1-1.
“We are once again asking San Franciscans to be vigilant about mosquitoes and mosquito bite prevention,” said Tomás Aragón, MD, “People over the age of 50 and anyone with a weakened immune system need to be particularly cautious. Anyone with a high fever and headache for seven days should see a health care professional. Like sunburn, West Nile Virus is completely preventable. ”
Fight the Bite San Francisco campaign recommends the following methods to reduce the likelihood of getting bitten by an infected mosquito:
• Eliminate all sources of standing water where mosquitoes can breed
• While outdoors at dawn and dusk, wear long pants and shirts
• Apply insect repellent to exposed skin according to label instructions
• Report significant mosquito activity to DPH by calling 3-1-1
• Report dead birds to the State at 1/877/WNV-BIRD
Info::www.sfmosquito.org and www.westnile.ca.gov.
October 2012
A Winning Treatment for Sciatica
Scott Swanson, BS, DC
Sciatica often starts suddenly with pain in your lower back that radiates down from your buttock to one thigh and into your leg. You may have pain when you sit, sneeze or cough. You may also feel weakness, “pins and needles,” numbness, or a burning or tingling sensation down your leg.
Sciatica symptoms may result from general wear and tear, plus any sudden pressure on a disc. Most commonly, this occurs when a protruding or herniated disc irritates the sciatic nerve. Sciatica is a major source of disability and impairment of daily living activities. About 20 percent those with sciatica experience symptoms for more than six weeks. Fortunately, new evidence published this year in an international medical journal, The Spine Journal, identifies an effective treatment for this debilitating condition.
Medical doctors recently published the results of a study involving sciatica treatment. In the high quality study, 102 patients with acute back pain and sciatica with disc protrusion were randomized to active and simulated manipulation. Treatments were administered 5 days per week by experienced chiropractors for up to 4 weeks.
Results of the study were dramatic. Chiropractic care delivered a significant pain reduction benefit compared with simulated manipulation, and no patient experienced an adverse event. These impressive findings have important implications for the treatment of sciatica. Practitioners managing patients with acute back pain and sciatica with protruding discs should consider chiropractic care as a first option.
Dr. Scott Swanson is a chiropractor in Outer Sunset District of San Francisco specializing in the treatment of non-surgical spinal conditions. Call 415-566-7134 for additional information.
February 2010
To X-ray or Not to X-ray?
That is the Question
By Scott Swanson, DC
Patients with a brief history of back pain frequently request an x-ray to determine the cause of their pain and to make sure it is nothing serious. While an x-ray might seem helpful, is it? Does it benefit the patient or simply expose him to risks?
Research studies confirm that x-rays are not necessary for most patients with a recent incident of low back pain and have generally been overused. A complete medical history and physical examination can usually identify any dangerous conditions that may be associated with back pain.
There are a couple major reasons why x-ray offers little value for patients with a recent attack of back pain. First, a lot back pain comes from ligaments and muscles that cannot be seen on an x-ray. Second, as we get older, the bones of the back change due to normal wear. On an x-ray, these normal changes can be mistakenly identified as the cause of back pain. Given these limitations, x-ray seldom provides information useful to treatment.
Aside from its lack of benefit, x-ray exposes patients to potentially harmful radiation. Medical health physicists have noted that low-back x-rays expose sex organs to large doses of ionizing radiation (many times greater than that associated with a chest x-ray). Pregnant women have been warned for decades to avoid x-rays because of the potential harm to the fetus. Although the precise effects of x-ray radiation remain uncertain, it is linked to serious risks, including cancer and death.
Another concern with x-ray is the financial cost. The US government recently estimated that the average cost for two low back x-rays is about $150. That means the overall cost of low back x-rays in America is nearly $1 billion every year -- most of which is estimated to be an unnecessary expense.
While x-ray generally is not helpful for assessing back pain, it may be necessary when a patient’s symptoms indicate a more serious condition requiring further assessment. For example, if a patient had a severe spinal trauma, a doctor might want to investigate the possibility of spinal fracture.
The advice for patients is to avoid x-rays unless there is a compelling reason for their use. Talk openly with your doctor about your specific condition and possible alternative means of diagnosis.
Dr. Scott Swanson is a chiropractor in Outer Sunset District of San Francisco specializing in the treatment of non-surgical spinal conditions. Call 415-566-7134 for additional information.
December 2009